Estimating the economic impacts for caregivers of young people with mental health problems in a Brazilian cohort

Objectives: To assess the indirect economic impacts on caregivers resulting from mental health problems in their children and to explore the association with characteristics of the young people and their caregivers. Methods: Data from 1158 caregivers of young people aged 14 to 23 years with mental health problems in a Brazilian cohort were analyzed. We assessed productivity losses, additional household tasks, out-of-pocket expenses, and own healthcare utilization because of the young person's mental health problems over the past 6 months. The costs of productivity losses and household tasks were estimated in terms of caregivers’ earnings. Logistic regression models identified factors associated with reported impacts. Generalized linear models evaluated clinical and caregiver characteristics associated with the economic impact on caregivers. Results: Nearly 40% of caregivers (n = 458) experienced economic impacts because of mental health issues in their children over the previous 6 months. The total economic impact among these 458 caregivers who reported incurring costs amounted to half of their earnings, and this was consistent across socioeconomic groups. Factors associated with reporting impacts differed from those affecting their costs. Externalizing and comorbid diagnoses, service use, higher impairment, and female caregivers increased the likelihood of impacts, whereas the greatest economic impacts were associated with internalizing conditions and service use. Conclusions: Though these findings need to be interpreted with caution because of inherent limitations, they underscore the substantial economic impacts borne by caregivers of young people with mental health problems, suggesting the need for targeted policy interventions to promote equitable caregiving and provide more comprehensive childcare support.