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Experiences of encounters with healthcare professionals through the lenses of families living with chronic illness

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  • Liselott Årestedt
  • Carina Persson
  • Margareta Rämgård
  • Eva Benzein

Abstract

Aims and objectives To describe and explore the experience of healthcare encounters in families living with chronic illness. Background Living with chronic illness is a family concern and often includes frequent encounters with healthcare professionals. These encounters affect how persons with illness and family members handle everyday life. Disease‐related explanations are perceived by healthcare professionals as being of higher importance than the actual experience of illness, even though patients are concerned with issues involving their everyday life. Design A descriptive design with a qualitative approach. Methods Narrative family interviews were conducted with twelve families, using a qualitative content analysis. Results One main category was indicated following analysis, specifically “The impact of an accompanying family member.” Additionally, three subcategories were revealed; “The importance of collaboration,” “Mutual understanding,” “A desire to be confirmed in one's illness”. Conclusions and relevance to clinical practice Having a participating family member increased the sense of power in families during encounters with healthcare professionals. This participation constitutes a level of support, making it easier for families to handle everyday life due to illness. Family members are, in most cases, included in discussions and decisions, both before and after encounters, and it should be a natural for healthcare professionals to invite them to the encounter too. This is an offer that may not fit every family, but the person with illness or the family should at least have the opportunity to choose.

Suggested Citation

  • Liselott Årestedt & Carina Persson & Margareta Rämgård & Eva Benzein, 2018. "Experiences of encounters with healthcare professionals through the lenses of families living with chronic illness," Journal of Clinical Nursing, John Wiley & Sons, vol. 27(3-4), pages 836-847, February.
    • Handle: RePEc:wly:jocnur:v:27:y:2018:i:3-4:p:836-847
    DOI: 10.1111/jocn.14126
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    References listed on IDEAS

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    1. Anna Nygren Zotterman & Lisa Skär & Malin Olsson & Siv Söderberg, 2016. "Being in togetherness: meanings of encounters within primary healtcare setting for patients living with long‐term illness," Journal of Clinical Nursing, John Wiley & Sons, vol. 25(19-20), pages 2854-2862, October.
    2. Carina Persson & Eva Benzein, 2014. "Family Health Conversations: How Do They Support Health?," Nursing Research and Practice, Hindawi, vol. 2014, pages 1-11, April.
    3. Annette Nygårdh & Dan Malm & Kerstin Wikby & Gerd Ahlström, 2012. "The experience of empowerment in the patient–staff encounter: the patient's perspective," Journal of Clinical Nursing, John Wiley & Sons, vol. 21(5‐6), pages 897-904, March.
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    Cited by:

    1. Patricia Marín-Maicas & Silvia Corchón & Leire Ambrosio & Mari Carmen Portillo, 2021. "Living with Long Term Conditions from the Perspective of Family Caregivers. A Scoping Review and Narrative Synthesis," IJERPH, MDPI, vol. 18(14), pages 1-22, July.

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