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Child–Parent Agreement in the Assessment of Health-Related Quality of Life Using the CHU9D and the PedsQLTM

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  • Diana Khanna

    (Flinders University)

  • Jyoti Khadka

    (Flinders University
    South Australian Health and Medical Research Institute)

  • Christine Mpundu-Kaambwa

    (Flinders University)

  • Julie Ratcliffe

    (Flinders University)

Abstract

Objective This study examined the inter-rater agreement between child-self and parental proxy health-related quality of life (HRQoL) ratings (overall and domain level) using two different generic child-specific measures, the Child Health Utility 9D (CHU9D) and the Pediatric Quality of Life Inventory (PedsQLTM), in a community-based sample of Australian children. A secondary objective was to investigate the impact of age on child–parent agreement across the dimensions of the two measures. Methods A total of 85 child–parent dyads (children aged 6–12 years) recruited from the community completed the self and proxy versions of the CHU9D and the PedsQLTM, respectively. The inter-rater agreement was estimated using Concordance Correlation Coefficients (CCC) and Gwet’s Agreement Coefficient (AC1) for the overall sample and across age-groups. Results Agreement was low for overall HRQoL for both the CHU9D (CCC = 0.28) and the PedsQLTM (CCC = 0.39). Across the CHU9D dimensions, agreement was the highest for ‘sad’ (AC1 = 0.83) and lowest for ‘tired’ (AC1 = 0.31). The PedsQLTM demonstrated stronger agreement (AC1 = 0.41–0.6) for the physical health dimension but weaker for the psychosocial dimensions (AC1

Suggested Citation

  • Diana Khanna & Jyoti Khadka & Christine Mpundu-Kaambwa & Julie Ratcliffe, 2023. "Child–Parent Agreement in the Assessment of Health-Related Quality of Life Using the CHU9D and the PedsQLTM," Applied Health Economics and Health Policy, Springer, vol. 21(6), pages 937-947, November.
    • Handle: RePEc:spr:aphecp:v:21:y:2023:i:6:d:10.1007_s40258-023-00831-7
    DOI: 10.1007/s40258-023-00831-7
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    References listed on IDEAS

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    1. Ungar, Wendy J. & Mirabelli, Cara & Cousins, Martha & Boydell, Katherine M., 2006. "A qualitative analysis of a dyad approach to health-related quality of life measurement in children with asthma," Social Science & Medicine, Elsevier, vol. 63(9), pages 2354-2366, November.
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