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Carers’ Perspectives on Sustainability of Informal Care for People With Dementia

Author

Listed:
  • Prabhjot Singh
  • Rafat Hussain
  • Adeel Khan
  • Lyn Irwin
  • Ros Foskey

Abstract

The majority of people with dementia, even at advanced stages, receive most of their care and support from family members, friends, and neighbors, rather than formal support systems. This qualitative research undertaken in the Australian state of Queensland explored how family carers of people with dementia living in the community successfully manage and sustain informal caring. It also considers challenges these carers anticipated in continuing to support their family member with dementia in the future. What emerges through this analysis of the carers’ perspective on the sustainability of care is the impact of factors including the living arrangements, generational cohort and life stage of the carer, financial issues, and ability to effectively combine caring with their other roles and responsibilities in life.

Suggested Citation

  • Prabhjot Singh & Rafat Hussain & Adeel Khan & Lyn Irwin & Ros Foskey, 2015. "Carers’ Perspectives on Sustainability of Informal Care for People With Dementia," SAGE Open, , vol. 5(3), pages 21582440156, September.
    • Handle: RePEc:sae:sagope:v:5:y:2015:i:3:p:2158244015607934
    DOI: 10.1177/2158244015607934
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    References listed on IDEAS

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    1. Daniel W. L. Lai, 2012. "Effect of Financial Costs on Caregiving Burden of Family Caregivers of Older Adults," SAGE Open, , vol. 2(4), pages 21582440124, December.
    2. Tarja Välimäki & Katri Vehviläinen‐Julkunen & Anna‐Maija Pietilä & Anne Koivisto, 2012. "Life orientation in Finnish family caregivers' of persons with Alzheimer's disease: A diary study," Nursing & Health Sciences, John Wiley & Sons, vol. 14(4), pages 480-487, December.
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    Cited by:

    1. Rafat Hussain & Stuart Wark & Peta Ryan, 2018. "Caregiving, Employment and Social Isolation: Challenges for Rural Carers in Australia," IJERPH, MDPI, vol. 15(10), pages 1-15, October.

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