IDEAS home Printed from https://ideas.repec.org/a/sae/evarev/v47y2023i5p820-870.html

A Mixed Methods Evaluation of a Pilot Multidisciplinary Breathlessness Support Service

Author

Listed:
  • Amanda Drury
  • Julie Goss
  • Jide Afolabi
  • Gillian McHugh
  • Norma O’Leary
  • Anne-Marie Brady

Abstract

Breathlessness support services have demonstrated benefits for breathlessness mastery, quality of life and psychosocial outcomes for people living with breathlessness. However, these services have predominantly been implemented in hospital and home care contexts. This study aims to evaluate the adaptation and implementation of a hospice-based outpatient Multidisciplinary Breathlessness Support Service (MBSS) in Ireland. A sequential explanatory mixed methods design guided this study. People with chronic breathlessness participated in longitudinal questionnaires ( n = 10), medical record audit ( n = 14) and a post-discharge interview ( n = 8). Caregivers ( n = 1) and healthcare professionals involved in referral to ( n = 2) and delivery of ( n = 3) the MBSS participated in a cross-sectional interview. Quantitative and qualitative data were integrated deductively via the pillar integration process, guided by the RE-AIM framework. Integration of mixed methods data enhanced understanding of factors influencing the reach, adoption, implementation and maintenance of the MBSS, and the potential outcomes that were most meaningful for service users. Potential threats to the sustainability of the MBSS related to potential preconceptions of hospice care, the lack of standardized discharge pathways from the service and access to primary care services to sustain pharmacological interventions. This study suggests that an adapted multidisciplinary breathlessness support intervention is feasible and acceptable in a hospice context. However, to ensure optimal reach and maintenance of the intervention, activities are required to ensure that misconceptions about the setting do not influence willingness to accept referral to MBSS services and integration of services is needed to enable consistency in referral and discharge processes.

Suggested Citation

  • Amanda Drury & Julie Goss & Jide Afolabi & Gillian McHugh & Norma O’Leary & Anne-Marie Brady, 2023. "A Mixed Methods Evaluation of a Pilot Multidisciplinary Breathlessness Support Service," Evaluation Review, , vol. 47(5), pages 820-870, October.
    • Handle: RePEc:sae:evarev:v:47:y:2023:i:5:p:820-870
    DOI: 10.1177/0193841X231162402
    as

    Download full text from publisher

    File URL: https://journals.sagepub.com/doi/10.1177/0193841X231162402
    Download Restriction: no
    File URL: https://libkey.io/10.1177/0193841X231162402?utm_source=ideas
    LibKey link: if access is restricted and if your library uses this service, LibKey will redirect you to where you can use your library subscription to access this item
    ---><---

    References listed on IDEAS

    as
    1. Glasgow, R.E. & Vogt, T.M. & Boles, S.M., 1999. "Evaluating the public health impact of health promotion interventions: The RE-AIM framework," American Journal of Public Health, American Public Health Association, vol. 89(9), pages 1322-1327.
    2. Soo Kyung Park & Janet L Larson, 2014. "Symptom cluster, healthcare use and mortality in patients with severe chronic obstructive pulmonary disease," Journal of Clinical Nursing, John Wiley & Sons, vol. 23(17-18), pages 2658-2671, September.
    3. Sergi Fàbregues & Quan Nha Hong & Elsa Lucia Escalante-Barrios & Timothy C. Guetterman & Julio Meneses & Michael D. Fetters, 2020. "A Methodological Review of Mixed Methods Research in Palliative and End-of-Life Care (2014–2019)," IJERPH, MDPI, vol. 17(11), pages 1-16, May.
    4. Gaglio, B. & Shoup, J.A. & Glasgow, R.E., 2013. "The RE-AIM framework: A systematic review of use over time," American Journal of Public Health, American Public Health Association, vol. 103(6), pages 38-46.
    Full references (including those not matched with items on IDEAS)

    Most related items

    These are the items that most often cite the same works as this one and are cited by the same works as this one.
    1. Chelsea M. Cooper & Mary Drake & Justine A. Kavle & Joyce Nyoni & Ruth Lemwayi & Lemmy Mabuga & Anne Pfitzer & Mary Makungu & Elizabeth Massawe & John George, 2021. "Implementing a Novel Facility-Community Intervention for Strengthening Integration of Infant Nutrition and Family Planning in Mara and Kagera, Tanzania," IJERPH, MDPI, vol. 18(8), pages 1-21, April.
    2. Marsha L. Brierley & Lindsey R. Smith & Angel M. Chater & Daniel P. Bailey, 2022. "A-REST (Activity to Reduce Excessive Sitting Time): A Feasibility Trial to Reduce Prolonged Sitting in Police Staff," IJERPH, MDPI, vol. 19(15), pages 1-27, July.
    3. Krisdaniel Berreta & Cynthia Nguyen & Alexis M. Stoner & Lindsey Ridgeway & Angela Wilson & Natalie Fadel & Duke Biber, 2023. "A RE-AIM Analysis of a Mental Health App for Undergraduate and Medical Students during the COVID-19 Pandemic: A Retrospective Cross-Sectional Study," IJERPH, MDPI, vol. 20(13), pages 1-9, June.
    4. Glasgow, LaShawn & Adams, Elizabeth & Smith, Lucia Rojas & Renaud, Jeanette, 2020. "Key Insights on Participation Measurement from Real-world Health Care Interventions," Evaluation and Program Planning, Elsevier, vol. 78(C).
    5. Kristen C. Reilly & Daniel Briatico & Jennifer D. Irwin & Patricia Tucker & Erin S. Pearson & Shauna M. Burke, 2019. "Participants’ Perceptions of “C.H.A.M.P. Families”: A Parent-Focused Intervention Targeting Paediatric Overweight and Obesity," IJERPH, MDPI, vol. 16(12), pages 1-24, June.
    6. Liliana Tenney & Amy G. Huebschmann & Carol E. Brown & Natalie V. Schwatka & Lee S. Newman, 2022. "Leveraging an Implementation Science Framework to Measure the Impact of Efforts to Scale Out a Total Worker Health ® Intervention to Employers," IJERPH, MDPI, vol. 19(3), pages 1-20, January.
    7. Natale, Ruby A. & Kolomeyer, Ellen & Robleto, Ana & Jaffery, Zafreen & Spector, Rachel, 2020. "Utilizing the RE-AIM framework to determine effectiveness of a preschool intervention program on social-emotional outcomes," Evaluation and Program Planning, Elsevier, vol. 79(C).
    8. McCabe, Lisa A. & Ruberti, Mary R. & Endres, Thomas, 2022. "Sustaining program implementation: A co-constructed technical assistance process to support continuous high-quality implementation of the Therapeutic Crisis Intervention program," Evaluation and Program Planning, Elsevier, vol. 91(C).
    9. Rehana A Salam & Jai K Das & Zahra Hoodbhoy & Karim Rizwan Nathani & Zulfiqar A Bhutta, 2018. "PROTOCOL: Effects of lifestyle modification interventions to prevent and manage child and adolescent obesity: a systematic review," Campbell Systematic Reviews, John Wiley & Sons, vol. 14(1), pages 1-33.
    10. Shanahan, Meghan & Fleming, Phyllis & Nocera, Maryalice & Sullivan, Kelly & Murphy, Robert & Zolotor, Adam, 2014. "Process evaluation of a statewide abusive head trauma prevention program," Evaluation and Program Planning, Elsevier, vol. 47(C), pages 18-25.
    11. Patrícia de Oliveira Bastos & Ana Suelen Pedroza Cavalcante & Wallingson Michael Gonçalves Pereira & Victor Hugo Santos de Castro & Antonio Rodrigues Ferreira Júnior & Paulo Henrique Guerra & Kelly Sa, 2020. "Health Promoting School Interventions in Latin America: A Systematic Review Protocol on the Dimensions of the RE-AIM Framework," IJERPH, MDPI, vol. 17(15), pages 1-9, July.
    12. Natalie Bradford & Shirley Chambers & Adrienne Hudson & Jacqui Jauncey‐Cooke & Robyn Penny & Carol Windsor & Patsy Yates, 2019. "Evaluation frameworks in health services: An integrative review of use, attributes and elements," Journal of Clinical Nursing, John Wiley & Sons, vol. 28(13-14), pages 2486-2498, July.
    13. Kristen C. Reilly & Patricia Tucker & Jennifer D. Irwin & Andrew M. Johnson & Erin S. Pearson & Dirk E. Bock & Shauna M. Burke, 2018. "“C.H.A.M.P. Families”: Description and Theoretical Foundations of a Paediatric Overweight and Obesity Intervention Targeting Parents—A Single-Centre Non-Randomised Feasibility Study," IJERPH, MDPI, vol. 15(12), pages 1-23, December.
    14. Norris, E. & Dunsmuir, S. & Duke-Williams, O. & Stamatakis, E. & Shelton, N., 2018. "Mixed method evaluation of the Virtual Traveller physically active lesson intervention: An analysis using the RE-AIM framework," Evaluation and Program Planning, Elsevier, vol. 70(C), pages 107-114.
    15. Sebastià Mas-Alòs & Antoni Planas-Anzano & Xavier Peirau-Terés & Jordi Real-Gatius & Gisela Galindo-Ortego, 2021. "Feasibility Assessment of the Let’s Walk Programme (CAMINEM): Exercise Training and Health Promotion in Primary Health-Care Settings," IJERPH, MDPI, vol. 18(6), pages 1-18, March.
    16. Arora, Prerna G. & Connors, Elizabeth H. & Blizzard, Angela & Coble, Kelly & Gloff, Nicole & Pruitt, David, 2017. "Dissemination and implementation science in program evaluation: A telemental health clinical consultation case example," Evaluation and Program Planning, Elsevier, vol. 60(C), pages 56-63.
    17. Francisco Javier de la Garza Iga & Marinés Mejía Alvarez & Joshua D Cockroft & Julia Rabin & Ana Cordón & Dina Maria Elias Rodas & Maria del Pilar Grazioso & Maria Espinola & Christine O’Dea & Ch, 2023. "Using the project ECHO™ model to teach mental health topics in rural Guatemala: An implementation science-guided evaluation," International Journal of Social Psychiatry, , vol. 69(8), pages 2031-2041, December.
    18. Sebastian-Ion Ceptureanu & Eduard-Gabriel Ceptureanu & Mihai Cristian Orzan & Irinel Marin, 2017. "Toward a Romanian NPOs Sustainability Model: Determinants of Sustainability," Sustainability, MDPI, vol. 9(6), pages 1-26, June.
    19. Michelle Nichols & Ronald Teufel & Sarah Miller & Mohan Madisetti & Christine San Giovanni & Katherine Chike-Harris & Lacy Jones & Margaret Prentice & Kenneth Ruggiero & Teresa Kelechi, 2020. "Managing Asthma and Obesity Related Symptoms (MATADORS): An mHealth Intervention to Facilitate Symptom Self-Management among Youth," IJERPH, MDPI, vol. 17(21), pages 1-15, October.
    20. Floor A. van den Brand & Tessa Magnée & Lotte de Haan-Bouma & Cas Barendregt & Niels H. Chavannes & Onno C. P. van Schayck & Gera E. Nagelhout, 2019. "Implementation of Financial Incentives for Successful Smoking Cessation in Real-Life Company Settings: A Qualitative Needs Assessment among Employers," IJERPH, MDPI, vol. 16(24), pages 1-16, December.

    More about this item

    Keywords

    ;
    ;
    ;
    ;
    ;
    ;

    Statistics

    Access and download statistics

    Corrections

    All material on this site has been provided by the respective publishers and authors. You can help correct errors and omissions. When requesting a correction, please mention this item's handle: RePEc:sae:evarev:v:47:y:2023:i:5:p:820-870. See general information about how to correct material in RePEc.

    If you have authored this item and are not yet registered with RePEc, we encourage you to do it here. This allows to link your profile to this item. It also allows you to accept potential citations to this item that we are uncertain about.

    If CitEc recognized a bibliographic reference but did not link an item in RePEc to it, you can help with this form .

    If you know of missing items citing this one, you can help us creating those links by adding the relevant references in the same way as above, for each refering item. If you are a registered author of this item, you may also want to check the "citations" tab in your RePEc Author Service profile, as there may be some citations waiting for confirmation.

    For technical questions regarding this item, or to correct its authors, title, abstract, bibliographic or download information, contact: SAGE Publications (email available below). General contact details of provider: .

    Please note that corrections may take a couple of weeks to filter through the various RePEc services.

    IDEAS is a RePEc service. RePEc uses bibliographic data supplied by the respective publishers.