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Expectations of an Online-Self-Management Program for Rheumatoid Arthritis

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  • Su-Hui Chen
  • Kuang-Hui Yu
  • Yi-Hui Lee
  • Jung-Hua Shao

Abstract

This qualitative descriptive study aimed to explore expectations of patients and healthcare experts for an online self-management program for rheumatoid arthritis. Participants were recruited from rheumatology clinics, medical centers, and universities in Taiwan. Individual face-to-face, semi-structured interviews were conducted with patients ( n  = 16) and healthcare experts ( n  = 7). Content analysis of the interview data resulted in five subthemes for expectations of an online self-management program: information about how the disease trajectory would impact future health status, availability of opportunities for self-monitoring, opportunities to interact with fellow patients and healthcare providers, simplicity and ease-of-use of the program, and methods to facilitate patient-motivation. These subthemes formulated two overarching themes: content and format. An online self-management program for patients with rheumatoid arthritis should provide evidence-based information about disease variables and behaviors aligned with the specific needs of the individual and adopt strategies that encourage and increase motivation and confidence.

Suggested Citation

  • Su-Hui Chen & Kuang-Hui Yu & Yi-Hui Lee & Jung-Hua Shao, 2022. "Expectations of an Online-Self-Management Program for Rheumatoid Arthritis," Clinical Nursing Research, , vol. 31(6), pages 1023-1032, July.
  • Handle: RePEc:sae:clnure:v:31:y:2022:i:6:p:1023-1032
    DOI: 10.1177/10547738211041692
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    References listed on IDEAS

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    1. Karin Schölin Bywall & Jorien Veldwijk & Mats G. Hansson & Ulrik Kihlbom, 2019. "Patient Perspectives on the Value of Patient Preference Information in Regulatory Decision Making: A Qualitative Study in Swedish Patients with Rheumatoid Arthritis," The Patient: Patient-Centered Outcomes Research, Springer;International Academy of Health Preference Research, vol. 12(3), pages 297-305, June.
    2. Arja Rantala & Minna Pikkarainen & Tarja Pölkki, 2020. "Health specialists’ views on the needs for developing a digital gaming solution for paediatric day surgery: A qualitative study," Journal of Clinical Nursing, John Wiley & Sons, vol. 29(17-18), pages 3541-3552, September.
    3. repec:aph:ajpbhl:10.2105/ajph.2017.303999_5 is not listed on IDEAS
    4. Su‐Hui Chen & Jung‐hua Shao, 2012. "‘Have you had your bowl of rice?’: a qualitative study of eating patterns in older Taiwanese adults," Journal of Clinical Nursing, John Wiley & Sons, vol. 21(1‐2), pages 2-10, January.
    5. Cohen, A.C. & Zimmerman, F. & Prelip, M. & Glik, D., 2017. "A smartphone application to reduce time-to-notification of sexually transmitted infections," American Journal of Public Health, American Public Health Association, vol. 107(11), pages 1795-1800.
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