IDEAS home Printed from https://ideas.repec.org/a/gam/jsusta/v16y2024i3p1020-d1326133.html

Global Research on Care-Related Burden and Quality of Life of Informal Caregivers for Older Adults: A Bibliometric Analysis

Author

Listed:
  • Aliya Zhylkybekova

    (Department of Evidence-Based Medicine and Scientific Management, West Kazakhstan Marat Ospanov Medical University, 030012 Aktobe, Kazakhstan)

  • Gulbakit K. Koshmaganbetova

    (Department of Evidence-Based Medicine and Scientific Management, West Kazakhstan Marat Ospanov Medical University, 030012 Aktobe, Kazakhstan)

  • Afshin Zare

    (PerciaVista R&D Co., Shiraz 1731, Iran)

  • Nadiar M. Mussin

    (Department of Surgery and Urology No. 2, West Kazakhstan Medical University, 030012 Aktobe, Kazakhstan)

  • Asset A. Kaliyev

    (Department of Surgery and Urology No. 2, West Kazakhstan Medical University, 030012 Aktobe, Kazakhstan)

  • Shabnam Bakhshalizadeh

    (Reproductive Development, Murdoch Children’s Research Institute, Melbourne, VIC 3052, Australia
    Department of Paediatrics, University of Melbourne, Melbourne, VIC 3052, Australia)

  • Nurgul Ablakimova

    (Department of Pharmacology, West Kazakhstan Marat Ospanov Medical University, 030012 Aktobe, Kazakhstan)

  • Andrej M. Grjibovski

    (Central Scientific Research Laboratory, Northern State Medical University, 163069 Arkhangelsk, Russia
    Department of Epidemiology and Modern Vaccination Technologies, I.M. Sechenov First Moscow State Medical University, 119048 Moscow, Russia
    Department of Biology, Ecology and Biotechnology, Northern (Arctic) Federal University, 163002 Arkhangelsk, Russia
    Department of Health Policy and Management, Al-Farabi Kazakh National University, 050040 Almaty, Kazakhstan)

  • Natalya Glushkova

    (Department of Epidemiology, Biostatistics and Evidence Based Medicine, Al-Farabi Kazakh National University, 050040 Almaty, Kazakhstan)

  • Amin Tamadon

    (PerciaVista R&D Co., Shiraz 1731, Iran
    Department for Natural Resources, West-Kazakhstan Marat Ospanov Medical University, 030012 Aktobe, Kazakhstan)

Abstract

As global populations continue to undergo demographic aging, the role of caregivers in providing essential support and assistance to older adults has become increasingly prominent. This demographic shift has led to a growing reliance on informal caregivers, often family members, who take on the responsibilities of caring for older adults. This not only affects immediate family dynamics but also holds broader implications for societal sustainability. The primary objective of this bibliometric analysis is to comprehensively examine the worldwide research output related to the quality of life and caregiver burden among individuals providing care to older adults. By understanding the worldwide research output related to caregivers and their quality of life and burden, we can assess the long-term sustainability of caregiving practices. We retrieved studies with titles containing the terms “caregivers”, “burden”, “quality of life”, and “aged” from the Web of Science (WOS) database. The collected publications were then subjected to analysis using the “bibliometric” package in the R programming environment. A total of 44 publications from 2006–2023 were included in the analysis. Spain emerged as the leading contributor in terms of the number of publications, accounting for 21.9%, followed by the USA at 16.5% and China at 13.6%. The most prolific institution was Kaohsiung Medical University, Taiwan, responsible for 25% of the publications. Among the authors, Cura-Gonzalez I.D. had the highest number of articles, contributing four publications, or 9.1% of the total output. An analysis of co-occurring keywords revealed that the predominant focus of the research revolved around caregiver burden, quality of life, health, care, stress, and impact, reflecting enduring areas of interest within this field. This bibliometric analysis may serve as a tool to provide insights into the current state of research on caregiver burden and quality of life among those caring for older adults. The results of this study can contribute to the assessment of research strategies and the encouragement of global cooperation in the field of care for older adults. By considering the multidimensional nature of caregiving challenges and promoting international cooperation, strides can be made towards sustainable caregiving practices that ensure the wellbeing of both caregivers and the aging population, thus safeguarding the sustainability of healthcare systems worldwide.

Suggested Citation

  • Aliya Zhylkybekova & Gulbakit K. Koshmaganbetova & Afshin Zare & Nadiar M. Mussin & Asset A. Kaliyev & Shabnam Bakhshalizadeh & Nurgul Ablakimova & Andrej M. Grjibovski & Natalya Glushkova & Amin Tama, 2024. "Global Research on Care-Related Burden and Quality of Life of Informal Caregivers for Older Adults: A Bibliometric Analysis," Sustainability, MDPI, vol. 16(3), pages 1-18, January.
    • Handle: RePEc:gam:jsusta:v:16:y:2024:i:3:p:1020-:d:1326133
    as

    Download full text from publisher

    File URL: https://www.mdpi.com/2071-1050/16/3/1020/pdf
    Download Restriction: no
    File URL: https://www.mdpi.com/2071-1050/16/3/1020/
    Download Restriction: no
    ---><---

    References listed on IDEAS

    as
    1. Rafael del-Pino-Casado & Marta Rodríguez Cardosa & Catalina López-Martínez & Vasiliki Orgeta, 2019. "The association between subjective caregiver burden and depressive symptoms in carers of older relatives: A systematic review and meta-analysis," PLOS ONE, Public Library of Science, vol. 14(5), pages 1-16, May.
    2. Mimi M. Y. Tse & Shamay S. M. Ng & Vivian Lou & Raymond Lo & Daphne Sze Ki Cheung & Paul Lee & Angel S. K. Tang, 2022. "A Dyadic Pain Management Program for Community-Dwelling Older Adults with Chronic Pain: Study Protocol for a Cluster Randomized Controlled Trial," IJERPH, MDPI, vol. 19(19), pages 1-11, September.
    3. Yossie Susanti Eka Putri & I Gusti Ngurah Edi Putra & Annida Falahaini & Ice Yulia Wardani, 2022. "Factors Associated with Caregiver Burden in Caregivers of Older Patients with Dementia in Indonesia," IJERPH, MDPI, vol. 19(19), pages 1-13, September.
    4. Bernard Berg & Werner Brouwer & Marc Koopmanschap, 2004. "Economic valuation of informal care," The European Journal of Health Economics, Springer;Deutsche Gesellschaft für Gesundheitsökonomie (DGGÖ), vol. 5(1), pages 36-45, February.
    Full references (including those not matched with items on IDEAS)

    Citations

    Citations are extracted by the CitEc Project, subscribe to its RSS feed for this item.
    as


    Cited by:

    1. Aliya Makasheva & Lyudmila Yermukhanova & Khatimya Kudabayeva & Saule Tazhbenova & Maral Nogayeva & Aidana Tautanova & Aliya Zhylkybekova, 2024. "Primary Care for Gestational Diabetes: A Bibliometric Analysis of Publications from 1991 to 2024," IJERPH, MDPI, vol. 21(11), pages 1-12, October.
    2. Das, Neha & Majumdar, Ishani K. & Agius, Paul A. & Lee, Peter & Robinson, Suzanne & Gao, Lan, 2024. "Absenteeism and presenteeism among caregivers of chronic diseases: A systematic review and meta-analysis," Social Science & Medicine, Elsevier, vol. 363(C).

    Most related items

    These are the items that most often cite the same works as this one and are cited by the same works as this one.
    1. McDonald, Rebecca & Powdthavee, Nattavudh, 2018. "The Shadow Prices of Voluntary Caregiving: Using Panel Data of Well-Being to Estimate the Cost of Informal Care," IZA Discussion Papers 11545, IZA Network @ LISER.
    2. Quitterie Roquebert & Marianne Tenand, 2024. "Informal care at old age at home and in nursing homes: determinants and economic value," The European Journal of Health Economics, Springer;Deutsche Gesellschaft für Gesundheitsökonomie (DGGÖ), vol. 25(3), pages 497-511, April.
    3. Bremer, Patrick & Cabrera, Esther & Leino-Kilpi, Helena & Lethin, Connie & Saks, Kai & Sutcliffe, Caroline & Soto, Maria & Zwakhalen, Sandra M.G. & Wübker, Ansgar, 2015. "Informal dementia care: Consequences for caregivers’ health and health care use in 8 European countries," Health Policy, Elsevier, vol. 119(11), pages 1459-1471.
    4. Urwin, Sean & Lau, Yiu-Shing & Grande, Gunn & Sutton, Matt, 2021. "The extent and predictors of discrepancy between provider and recipient reports of informal caregiving," Social Science & Medicine, Elsevier, vol. 277(C).
    5. Lena Flyckt & Anna Löthman & Leif Jörgensen & Anders Rylander & Thomas Koernig, 2013. "Burden of informal care giving to patients with psychoses: A descriptive and methodological study," International Journal of Social Psychiatry, , vol. 59(2), pages 137-146, March.
    6. Joan Costa‐Font & Cristina Vilaplana‐Prieto, 2025. "The Hidden Value of Adult Informal Care in Europe," Health Economics, John Wiley & Sons, Ltd., vol. 34(4), pages 791-812, April.
    7. Emmanouil Mentzakis & Mandy Ryan & Paul McNamee, 2011. "Using discrete choice experiments to value informal care tasks: exploring preference heterogeneity," Health Economics, John Wiley & Sons, Ltd., vol. 20(8), pages 930-944, August.
    8. Karine Chevreul & Coralie Gandré & Karen Berg Brigham & Julio López-Bastida & Renata Linertová & Juan Oliva-Moreno & Pedro Serrano-Aguilar & Manuel Posada-de-la-Paz & Domenica Taruscio & Arrigo Schiep, 2016. "Social/economic costs and health-related quality of life in patients with fragile X syndrome in Europe," The European Journal of Health Economics, Springer;Deutsche Gesellschaft für Gesundheitsökonomie (DGGÖ), vol. 17(1), pages 43-52, April.
    9. Donna Rowen & Simon Dixon & Mónica Hernández-Alava & Clara Mukuria, 2016. "Estimating informal care inputs associated with EQ-5D for use in economic evaluation," The European Journal of Health Economics, Springer;Deutsche Gesellschaft für Gesundheitsökonomie (DGGÖ), vol. 17(6), pages 733-744, July.
    10. Perla Werner & Aviad Tur-Sinai & Hanan AboJabel, 2021. "Examining Dementia Family Caregivers’ Forgone Care for General Practitioners and Medical Specialists during a COVID-19 Lockdown," IJERPH, MDPI, vol. 18(7), pages 1-11, April.
    11. Powdthavee, Nattavudh & van den Berg, Bernard, 2011. "Putting different price tags on the same health condition: Re-evaluating the well-being valuation approach," Journal of Health Economics, Elsevier, vol. 30(5), pages 1032-1043.
    12. Karine Chevreul & Morgane Michel & Karen Berg Brigham & Julio López-Bastida & Renata Linertová & Juan Oliva-Moreno & Pedro Serrano-Aguilar & Manuel Posada-de-la-Paz & Domenica Taruscio & Arrigo Schiep, 2016. "Social/economic costs and health-related quality of life in patients with cystic fibrosis in Europe," The European Journal of Health Economics, Springer;Deutsche Gesellschaft für Gesundheitsökonomie (DGGÖ), vol. 17(1), pages 7-18, April.
    13. Renske J. Hoefman & Job van Exel & Werner B. F. Brouwer, 2017. "Measuring Care-Related Quality of Life of Caregivers for Use in Economic Evaluations: CarerQol Tariffs for Australia, Germany, Sweden, UK, and US," PharmacoEconomics, Springer, vol. 35(4), pages 469-478, April.
    14. Herbert J A Rolden & David van Bodegom & Rudi G J Westendorp, 2014. "Changes in Health Care Expenditure after the Loss of a Spouse: Data on 6,487 Older Widows and Widowers in the Netherlands," PLOS ONE, Public Library of Science, vol. 9(12), pages 1-17, December.
    15. Marianna Cavazza & Yllka Kodra & Patrizio Armeni & Marta Santis & Julio López-Bastida & Renata Linertová & Juan Oliva-Moreno & Pedro Serrano-Aguilar & Manuel Posada-de-la-Paz & Domenica Taruscio & Arr, 2016. "Social/economic costs and health-related quality of life in patients with Duchenne muscular dystrophy in Europe," The European Journal of Health Economics, Springer;Deutsche Gesellschaft für Gesundheitsökonomie (DGGÖ), vol. 17(1), pages 19-29, April.
    16. Julio López-Bastida & Renata Linertová & Juan Oliva-Moreno & Pedro Serrano-Aguilar & Manuel Posada-de-la-Paz & Panos Kanavos & Domenica Taruscio & Arrigo Schieppati & Georgi Iskrov & Márta Péntek & Cl, 2016. "Social/economic costs and health-related quality of life in patients with scleroderma in Europe," The European Journal of Health Economics, Springer;Deutsche Gesellschaft für Gesundheitsökonomie (DGGÖ), vol. 17(1), pages 109-117, April.
    17. Vilaplana-Prieto C & Oliva-Moreno J, 2025. "Time value of informal care of people with alzheimer’s disease in Spain: a population-based analysis," The European Journal of Health Economics, Springer;Deutsche Gesellschaft für Gesundheitsökonomie (DGGÖ), vol. 26(3), pages 377-402, April.
    18. Carlos Rosa‐Jiménez & Rubén Mora‐Esteban & Germán Ortega‐Palomo & Juan Marcos Castro‐Bonaño, 2025. "The economic potential of home sharing cooperatives for active ageing of older people," Annals of Public and Cooperative Economics, Wiley Blackwell, vol. 96(3), pages 571-608, September.
    19. Allison Larg & John Moss, 2011. "Cost-of-Illness Studies," PharmacoEconomics, Springer, vol. 29(8), pages 653-671, August.
    20. Raúl Del Pozo-Rubio & Isabel Pardo-García & Francisco Escribano-Sotos, 2020. "Financial Catastrophism Inherent with Out-of-Pocket Payments in Long Term Care for Households: A Latent Impoverishment," IJERPH, MDPI, vol. 17(1), pages 1-19, January.

    More about this item

    Keywords

    ;
    ;
    ;
    ;
    ;

    Statistics

    Access and download statistics

    Corrections

    All material on this site has been provided by the respective publishers and authors. You can help correct errors and omissions. When requesting a correction, please mention this item's handle: RePEc:gam:jsusta:v:16:y:2024:i:3:p:1020-:d:1326133. See general information about how to correct material in RePEc.

    If you have authored this item and are not yet registered with RePEc, we encourage you to do it here. This allows to link your profile to this item. It also allows you to accept potential citations to this item that we are uncertain about.

    If CitEc recognized a bibliographic reference but did not link an item in RePEc to it, you can help with this form .

    If you know of missing items citing this one, you can help us creating those links by adding the relevant references in the same way as above, for each refering item. If you are a registered author of this item, you may also want to check the "citations" tab in your RePEc Author Service profile, as there may be some citations waiting for confirmation.

    For technical questions regarding this item, or to correct its authors, title, abstract, bibliographic or download information, contact: MDPI Indexing Manager The email address of this maintainer does not seem to be valid anymore. Please ask MDPI Indexing Manager to update the entry or send us the correct address (email available below). General contact details of provider: https://www.mdpi.com .

    Please note that corrections may take a couple of weeks to filter through the various RePEc services.

    IDEAS is a RePEc service. RePEc uses bibliographic data supplied by the respective publishers.