IDEAS home Printed from https://ideas.repec.org/a/gam/jsoctx/v9y2019i4p81-d290316.html
   My bibliography  Save this article

An Exploration of the Practical and Ethical Issues of Research Using Multi-Visual Methods with Children Affected by Chronic Pain

Author

Listed:
  • Ana Patrícia Hilário

    (Instituto de Ciências Sociais, Universidade de Lisboa, 1600-189 Lisboa, Portugal)

  • Fábio Rafael Augusto

    (Instituto de Ciências Sociais, Universidade de Lisboa, 1600-189 Lisboa, Portugal)

Abstract

This paper intends to encourage further reflection on the research methods and approaches used to enhance the voices of children with chronic conditions. Visual methods (e.g., ‘draw, write, and tell’ and photo elicitation interviews) have been described as the most appropriate ways to develop research with children as they allow room for children to share their lived experiences in their own terms and to actively participate in the research process, by giving them the opportunity to act as co-researchers. In fact, the use of these methods also contributes to empowering children and mitigating the power differences that exist between the adult researcher and young participants. Drawing on an ongoing study on the experience and management of chronic pain in childhood, this paper provides insights on the usefulness of using these multi-methods to address (potentially) sensitive topics with a (potentially) vulnerable group. The ethical and methodological challenges faced by the researcher when conducting research with ill children in the healthcare context are addressed. The paper looks at the dilemmas of studying chronic pain in childhood and highlights the ways in which multi visual methods can help children in the meaning making of chronic pain.

Suggested Citation

  • Ana Patrícia Hilário & Fábio Rafael Augusto, 2019. "An Exploration of the Practical and Ethical Issues of Research Using Multi-Visual Methods with Children Affected by Chronic Pain," Societies, MDPI, vol. 9(4), pages 1-12, November.
  • Handle: RePEc:gam:jsoctx:v:9:y:2019:i:4:p:81-:d:290316
    as

    Download full text from publisher

    File URL: https://www.mdpi.com/2075-4698/9/4/81/pdf
    Download Restriction: no

    File URL: https://www.mdpi.com/2075-4698/9/4/81/
    Download Restriction: no
    ---><---

    References listed on IDEAS

    as
    1. Anja Hetland Smeland & Tone Rustøen & Torgun Næss & Lill Nybro & Stefan Lundeberg & Hanne Reinertsen & Trond H. Diseth & Alison Twycross, 2019. "Children’s views on postsurgical pain in recovery units in Norway: A qualitative study," Journal of Clinical Nursing, John Wiley & Sons, vol. 28(11-12), pages 2157-2170, June.
    Full references (including those not matched with items on IDEAS)

    Most related items

    These are the items that most often cite the same works as this one and are cited by the same works as this one.

      Corrections

      All material on this site has been provided by the respective publishers and authors. You can help correct errors and omissions. When requesting a correction, please mention this item's handle: RePEc:gam:jsoctx:v:9:y:2019:i:4:p:81-:d:290316. See general information about how to correct material in RePEc.

      If you have authored this item and are not yet registered with RePEc, we encourage you to do it here. This allows to link your profile to this item. It also allows you to accept potential citations to this item that we are uncertain about.

      If CitEc recognized a bibliographic reference but did not link an item in RePEc to it, you can help with this form .

      If you know of missing items citing this one, you can help us creating those links by adding the relevant references in the same way as above, for each refering item. If you are a registered author of this item, you may also want to check the "citations" tab in your RePEc Author Service profile, as there may be some citations waiting for confirmation.

      For technical questions regarding this item, or to correct its authors, title, abstract, bibliographic or download information, contact: MDPI Indexing Manager (email available below). General contact details of provider: https://www.mdpi.com .

      Please note that corrections may take a couple of weeks to filter through the various RePEc services.

      IDEAS is a RePEc service. RePEc uses bibliographic data supplied by the respective publishers.