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Making It Work: The Invisible Work of Mothers in Pursuit of Inclusion in School Settings

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  • Jessica A. Harasym

    (Faculty of Rehabilitation Medicine, University of Alberta, Edmonton, AB T6G 2G4, Canada
    School of Nursing, Faculty of Applied Science, University of British Columbia, Vancouver, BC V6T 1Z4, Canada)

  • Paige Reeves

    (Faculty of Rehabilitation Medicine, University of Alberta, Edmonton, AB T6G 2G4, Canada
    Skills Society, Edmonton, AB T5N 1R5, Canada)

  • Shanon K. Phelan

    (School of Occupational Therapy, Faculty of Health, Dalhousie University, Halifax, NS B3H 4R2, Canada
    Department of Pediatrics, Faculty of Medicine, Dalhousie University, Halifax, NS B3H 4R2, Canada)

Abstract

Inclusive education is at the forefront of transnational policy agendas. Yet, normative, deficit-oriented disability discourses and institutional gaps continue to shape how inclusion is enacted in schools, often displacing extensive and unacknowledged labour onto families, especially mothers. Drawing on feminist theories of invisible work, this article critically examines the everyday labour performed by mothers of disabled children as they navigate inclusive education systems in Alberta, Canada. Situated within a broader collective case study, this analysis asks: What forms of invisible work do mothers undertake in pursuit of inclusion within education systems labelled as inclusive? Semi-structured interviews were conducted with nine mothers of disabled children. Reflexive thematic analysis illuminated four intersecting dimensions of invisible work: (1) working within the system, (2) working to fit the system, (3) crafting system workarounds, and (4) working above and beyond the system. These forms of work reveal how inclusive education systems rely on mothers to bridge the gap between policy rhetoric and lived experiences. Findings illuminate how mothers’ invisible work simultaneously sustains, negotiates, and resists systemic ableism, highlighting the need to recognize and redistribute this work and reimagine inclusion as a shared structural responsibility rather than an individual, maternal pursuit.

Suggested Citation

  • Jessica A. Harasym & Paige Reeves & Shanon K. Phelan, 2026. "Making It Work: The Invisible Work of Mothers in Pursuit of Inclusion in School Settings," Social Sciences, MDPI, vol. 15(1), pages 1-19, January.
  • Handle: RePEc:gam:jscscx:v:15:y:2026:i:1:p:43-:d:1840108
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