IDEAS home Printed from https://ideas.repec.org/a/gam/jijerp/v20y2023i16p6616-d1221116.html
   My bibliography  Save this article

Biographical Reinvention: An Asset-Based Approach to Understanding the World of Men Living with HIV in Indonesia

Author

Listed:
  • Nelsensius Klau Fauk

    (Centre for Public Health, Equity and Human Flourishing, Torrens University Australia, Adelaide, SA 5000, Australia
    Institute of Resource Governance and Social Change, Kupang 85227, Indonesia)

  • Lillian Mwanri

    (Centre for Public Health, Equity and Human Flourishing, Torrens University Australia, Adelaide, SA 5000, Australia)

  • Hailay Abrha Gesesew

    (Centre for Public Health, Equity and Human Flourishing, Torrens University Australia, Adelaide, SA 5000, Australia
    College of Health Sciences, Mekelle University, Mekelle P.O. Box 231, Tigray, Ethiopia)

  • Paul Russell Ward

    (Centre for Public Health, Equity and Human Flourishing, Torrens University Australia, Adelaide, SA 5000, Australia)

Abstract

HIV diagnosis and management have often caused disruption to the everyday life and imagined futures of people living with HIV, both at individual and social levels. This disruption has been conceptualised, in a rather dystopian way, as ‘biographical disruption’. This paper explores whether or not biographical disruption of living with HIV encourages men living with HIV (MLHIV; n = 40) in Yogyakarta and Belu, Indonesia, to reinvent their sense of self and future over time using internal and external assets. Our analysis uses the concepts of additive and subtractive resilience strategies, and we show how, rather than having a purely disrupted biography, participants talked about their experiences of ‘biographical reinvention’. Study participants were recruited using the snowball sampling technique, beginning with two HIV clinics as the settings. Data were collected using one-on-one in-depth interviews, and a qualitative framework analysis was used to guide step-by-step data analysis. The findings showed that, despite the disruptions in their everyday lives (i.e., mental health condition, work, activities, social relationships, etc.) following the HIV diagnosis and management, MLHIV in our study managed to utilise their internal assets or traits (i.e., hope, optimism, resilience) and mobilised external resources (i.e., support from families, friends and healthcare professionals) to cope with the disruptions. An interweaving of these internal assets and external resources enabled them to take on new activities and roles (additive resilience strategies) and give up health compromising behaviours (subtractive resilience strategies). These were effective for most MLHIV in our study, not only to cope with the HIV repercussions and improve their physical and mental health conditions, but to think or work on a ‘reinvented’ biography which encompassed resilience, hope and optimism for better health, life and future. The findings indicate the need for HIV interventions and healthcare systems that provide appropriate support for the development and maintenance of internal assets of PLHIV to enable them to cope with the repercussions of HIV and work on a ‘reinvented’ biography.

Suggested Citation

  • Nelsensius Klau Fauk & Lillian Mwanri & Hailay Abrha Gesesew & Paul Russell Ward, 2023. "Biographical Reinvention: An Asset-Based Approach to Understanding the World of Men Living with HIV in Indonesia," IJERPH, MDPI, vol. 20(16), pages 1-16, August.
    • Handle: RePEc:gam:jijerp:v:20:y:2023:i:16:p:6616-:d:1221116
    as

    Download full text from publisher

    File URL: https://www.mdpi.com/1660-4601/20/16/6616/pdf
    Download Restriction: no
    File URL: https://www.mdpi.com/1660-4601/20/16/6616/
    Download Restriction: no
    ---><---

    References listed on IDEAS

    as
    1. Engman, Athena, 2019. "Embodiment and the foundation of biographical disruption," Social Science & Medicine, Elsevier, vol. 225(C), pages 120-127.
    2. Green, Gill & Todd, Jennifer & Pevalin, David, 2007. "Biographical disruption associated with multiple sclerosis: Using propensity scoring to assess the impact," Social Science & Medicine, Elsevier, vol. 65(3), pages 524-535, August.
    3. Nelsensius Klau Fauk & Lillian Mwanri & Karen Hawke & Leila Mohammadi & Paul Russell Ward, 2022. "Psychological and Social Impact of HIV on Women Living with HIV and Their Families in Low- and Middle-Income Asian Countries: A Systematic Search and Critical Review," IJERPH, MDPI, vol. 19(11), pages 1-25, May.
    Full references (including those not matched with items on IDEAS)

    Most related items

    These are the items that most often cite the same works as this one and are cited by the same works as this one.
    1. Campbell, Chadwick K., 2021. "Structural and intersectional biographical disruption: The case of HIV disclosure among a sample of black gay and bisexual men," Social Science & Medicine, Elsevier, vol. 280(C).
    2. B. Svendsen & N. Grytten & L. Bø & H. Aarseth & T. Smedal & K-M. Myhr, 2018. "The economic impact of multiple sclerosis to the patients and their families in Norway," The European Journal of Health Economics, Springer;Deutsche Gesellschaft für Gesundheitsökonomie (DGGÖ), vol. 19(9), pages 1243-1257, December.
    3. Tan, Catherine D., 2018. "“I'm a normal autistic person, not an abnormal neurotypical”: Autism Spectrum Disorder diagnosis as biographical illumination," Social Science & Medicine, Elsevier, vol. 197(C), pages 161-167.
    4. Nelsensius Klau Fauk & Maria Silvia Merry & Lillian Mwanri & Karen Hawke & Paul Russell Ward, 2022. "Mental Health Challenges and the Associated Factors in Women Living with HIV Who Have Children Living with HIV in Indonesia: A Qualitative Study," IJERPH, MDPI, vol. 19(11), pages 1-12, June.
    5. Nelsensius Klau Fauk & Gregorius Abanit Asa & Caitlan McLean & Paul Russell Ward, 2023. "“I Was Very Shocked, I Wanted It to Be Over”: A Qualitative Exploration of Suicidal Ideation and Attempts among Women Living with HIV in Indonesia," IJERPH, MDPI, vol. 21(1), pages 1-14, December.
    6. Barry, L.E. & O'Neill, S. & Heaney, L.G. & O'Neill, C., 2021. "Stress-related health depreciation: Using allostatic load to predict self-rated health," Social Science & Medicine, Elsevier, vol. 283(C).
    7. Mathildah Mokgatle & Sphiwe Madiba, 2023. "Community Perceptions of HIV Stigma, Discriminatory Attitudes, and Disclosure Concerns: A Health Facility-Based Study in Selected Health Districts of South Africa," IJERPH, MDPI, vol. 20(14), pages 1-15, July.

    Corrections

    All material on this site has been provided by the respective publishers and authors. You can help correct errors and omissions. When requesting a correction, please mention this item's handle: RePEc:gam:jijerp:v:20:y:2023:i:16:p:6616-:d:1221116. See general information about how to correct material in RePEc.

    If you have authored this item and are not yet registered with RePEc, we encourage you to do it here. This allows to link your profile to this item. It also allows you to accept potential citations to this item that we are uncertain about.

    If CitEc recognized a bibliographic reference but did not link an item in RePEc to it, you can help with this form .

    If you know of missing items citing this one, you can help us creating those links by adding the relevant references in the same way as above, for each refering item. If you are a registered author of this item, you may also want to check the "citations" tab in your RePEc Author Service profile, as there may be some citations waiting for confirmation.

    For technical questions regarding this item, or to correct its authors, title, abstract, bibliographic or download information, contact: MDPI Indexing Manager (email available below). General contact details of provider: https://www.mdpi.com .

    Please note that corrections may take a couple of weeks to filter through the various RePEc services.

    IDEAS is a RePEc service. RePEc uses bibliographic data supplied by the respective publishers.