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The Living Alone with Cognitive Impairment Project’s Policy Advisory Group on Long-Term Services and Supports: Setting a Research Equity Agenda

Author

Listed:
  • Elena Portacolone

    (Institute for Health & Aging, University of California, San Francisco, CA 94158, USA
    Philip Lee Institute for Health Policy Studies, University of California, San Francisco, CA 94158, USA)

  • Jacqueline M. Torres

    (Department of Epidemiology and Biostatistics, University of California, San Francisco, CA 94158, USA)

  • Julene K. Johnson

    (Institute for Health & Aging, University of California, San Francisco, CA 94158, USA)

  • Donna Benton

    (Leonard Davis School of Gerontology, University of Southern California, Los Angeles, CA 90089, USA)

  • Thomas Rapp

    (LIRAES, Université Paris Cité, 75006 Paris, France
    Sciences Po Paris, LIEPP, 75006 Paris, France)

  • Thi Tran

    (Institute for Health & Aging, University of California, San Francisco, CA 94158, USA)

  • Paula Martinez

    (Institute for Health & Aging, University of California, San Francisco, CA 94158, USA)

  • Carrie Graham

    (Institute for Health & Aging, University of California, San Francisco, CA 94158, USA
    Center for Health Care Strategies, Hamilton, NJ 08619, USA)

Abstract

(1) Background: A United States national policy advisory group (PAG) was convened to identify barriers and facilitators to expand formal long-term services and support (LTSS) for people living alone with cognitive impairment (PLACI), with a focus on equitable access among diverse older adults. The PAG’s insights will inform the research activities of the Living Alone with Cognitive Impairment Project, which is aimed at ensuring the equitable treatment of PLACI. (2) Methods: The PAG identified barriers and facilitators of providing effective and culturally relevant LTSS to PLACI via one-on-one meetings with researchers, followed by professionally facilitated discussions among themselves. (3) Results: The PAG identified three factors that were relevant to providing effective and culturally relevant LTSS to PLACI: (i) better characterization of PLACI, (ii) leveraging the diagnosis of cognitive impairment, and (iii) expanding and enhancing services. For each factor, the PAG identified barriers and facilitators, as well as directions for future research. (4) Conclusions: The barriers and facilitators the PAG identified inform an equity research agenda that will help inform policy change.

Suggested Citation

  • Elena Portacolone & Jacqueline M. Torres & Julene K. Johnson & Donna Benton & Thomas Rapp & Thi Tran & Paula Martinez & Carrie Graham, 2022. "The Living Alone with Cognitive Impairment Project’s Policy Advisory Group on Long-Term Services and Supports: Setting a Research Equity Agenda," IJERPH, MDPI, vol. 19(10), pages 1-14, May.
    • Handle: RePEc:gam:jijerp:v:19:y:2022:i:10:p:6021-:d:816245
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    References listed on IDEAS

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    1. Rapp, Thomas & Sicsic, Jonathan, 2020. "The contribution of the immigrant population to the U.S. long-term care workforce," Social Science & Medicine, Elsevier, vol. 263(C).
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