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An Integrated Framework to Conceptualize and Develop the Vancouver Airways Health Literacy Tool (VAHLT)

Author

Listed:
  • Iraj Poureslami

    (Faculty of Medicine, Respiratory Medicine Division, University of British Columbia, Vancouver, BC V5Z 1M9, Canada)

  • Jacek Kopec

    (School of Population and Public Health, University of British Columbia, Vancouver, BC V6T 1Z31Z3, Canada)

  • Noah Tregobov

    (Faculty of Medicine, Respiratory Medicine Division, University of British Columbia, Vancouver, BC V5Z 1M9, Canada)

  • Jessica Shum

    (Faculty of Medicine, Respiratory Medicine Division, University of British Columbia, Vancouver, BC V5Z 1M9, Canada)

  • Rick Sawatzky

    (School of Nursing, Trinity Western University, Langley, BC V2Y 1Y11Y1, Canada)

  • Richard Hohn

    (Department of Psychology, Simon Fraser University, Burnaby, BC V5A 1S61S6, Canada)

  • J. Mark FitzGerald

    (Faculty of Medicine, Respiratory Medicine Division, University of British Columbia, Vancouver, BC V5Z 1M9, Canada
    On behalf of the Canadian Airways Health Literacy Study Group.)

Abstract

There is currently no comprehensive tool to assess the functional health literacy (HL) skills of chronic airway disease (CAD) patients. The purpose of this article is to describe the development of a new HL measure, the Vancouver Airways Health Literacy Tool (VAHLT). The tool was developed through the following phases: (1) Tool conceptualization , consisting of: (A) a systematic review (SR), (B) focus group sessions with CAD patients to understand barriers and facilitators to CAD management, (C) a survey with key-informants to obtain strategies to mitigate self-management barriers and validate patient-derived topics, and (D) respiratory physicians’ review of the topics; (2) Scenario and item development; and (3) Tool testing and content validation . The SR identified the lack of a valid HL measurement tool for CAD patients. Patients provided an initial shortlist of disease-related self-care topics. Key-informants helped to finalize topics for inclusion. Respiratory physicians and patients contributed to the development of a scenario-based questionnaire, which was refined during three rounds of testing to develop a 44-item instrument comprising nine self-management passages. We highlight the holistic process of integrating information from the literature with knowledge gained from key stakeholders into our tool framework. Our approach to stakeholder engagement may be of interest to researchers developing similar tools, and could facilitate the development and testing of HL-based interventions to ultimately improve patient outcomes and reduce the burden on the healthcare system.

Suggested Citation

  • Iraj Poureslami & Jacek Kopec & Noah Tregobov & Jessica Shum & Rick Sawatzky & Richard Hohn & J. Mark FitzGerald, 2021. "An Integrated Framework to Conceptualize and Develop the Vancouver Airways Health Literacy Tool (VAHLT)," IJERPH, MDPI, vol. 18(16), pages 1-16, August.
    • Handle: RePEc:gam:jijerp:v:18:y:2021:i:16:p:8646-:d:615278
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    References listed on IDEAS

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    1. Lindsay C. Kobayashi & Jane Wardle & Michael S. Wolf & Christian von Wagner, 2016. "Aging and Functional Health Literacy: A Systematic Review and Meta-Analysis," The Journals of Gerontology: Series B, The Gerontological Society of America, vol. 71(3), pages 445-457.
    2. Laura M. Mackey & Catherine Doody & Erik L. Werner & Brona Fullen, 2016. "Self-Management Skills in Chronic Disease Management," Medical Decision Making, , vol. 36(6), pages 741-759, August.
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    1. Marta Falcão & Mariateresa Allocca & Ana Sofia Rodrigues & Pedro Granjo & Rita Francisco & Carlota Pascoal & Maria Grazia Rossi & Dorinda Marques-da-Silva & Salvador C. M. Magrinho & Jaak Jaeken & Lar, 2023. "A Community-Based Participatory Framework to Co-Develop Patient Education Materials (PEMs) for Rare Diseases: A Model Transferable across Diseases," IJERPH, MDPI, vol. 20(2), pages 1-17, January.

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