Voicing the lifeworld: Parental accounts of responsibility in genetic consultations for polycystic kidney disease
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References listed on IDEAS
- Wertz, Dorothy C., 1992. "Ethical and legal implications of the new genetics: Issues for discussion," Social Science & Medicine, Elsevier, vol. 35(4), pages 495-505, August.
- Koch, Lene & Nordahl Svendsen, Mette, 2005. "Providing solutions-defining problems: the imperative of disease prevention in genetic counselling," Social Science & Medicine, Elsevier, vol. 60(4), pages 823-832, February.
- Arribas-Ayllon, Michael & Sarangi, Srikant & Clarke, Angus, 2008. "Managing self-responsibility through other-oriented blame: Family accounts of genetic testing," Social Science & Medicine, Elsevier, vol. 66(7), pages 1521-1532, April.
- Taylor, Sandra D., 2004. "Predictive genetic test decisions for Huntington's disease: context, appraisal and new moral imperatives," Social Science & Medicine, Elsevier, vol. 58(1), pages 137-149, January.
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KeywordsPolycystic kidney disease Genetic information Family communication Accounts Responsibility Lifeworld UK Childhood genetic testing Parents;
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