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Developing guiding principles with a community of neurodiverse individuals: An essential first step toward principles-focused evaluation

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  • Jewiss, Jennifer
  • Wood, Valerie F.
  • Shepherd, Katharine G.
  • Massey, Dorsey
  • Kleinman, Allison
  • McInerney, Caitlin

Abstract

Leaders of organizations serving individuals with disabilities often view their work as rooted in core values. Michael Quinn Patton, a prominent evaluation expert, provides an opportunity to frame the development and evaluation of organizational endeavors around guiding principles or values in action. The following account illustrates how a principles-focused approach can meaningfully engage adults with disabilities in evaluation efforts, empowering individuals that are frequently excluded. We describe the process used to develop a set of guiding principles for Adaptations, a non-residential community serving neurodiverse adults at the Jack and Shirley Silver Center for Diverse Abilities. This six-month evaluation technical assistance project was designed to explore how Adaptations might approach evaluation in a manner that aligns with its core values of belonging, inclusion, and self-determination. To inform the development of Adaptations' six guiding principles, we orchestrated a day-long workshop with a cross-section of community members. The principles subsequently informed the organization’s internal data collection efforts. The article concludes with reflections on lessons learned, including the value of approaching this effort with a co-learning lens and engaging community members in identifying guiding principles for future use in principles-focused evaluation.

Suggested Citation

  • Jewiss, Jennifer & Wood, Valerie F. & Shepherd, Katharine G. & Massey, Dorsey & Kleinman, Allison & McInerney, Caitlin, 2025. "Developing guiding principles with a community of neurodiverse individuals: An essential first step toward principles-focused evaluation," Evaluation and Program Planning, Elsevier, vol. 112(C).
  • Handle: RePEc:eee:epplan:v:112:y:2025:i:c:s0149718925001089
    DOI: 10.1016/j.evalprogplan.2025.102641
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    References listed on IDEAS

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    1. Duncan, Andrea & Dainty, Katie N. & Wodchis, Walter P. & Kirst, Maritt & Stergiopoulos, Vicky, 2021. "A principles-focused evaluation of community mental health short-term case management," Evaluation and Program Planning, Elsevier, vol. 89(C).
    2. King, Jean A., 2020. "Putting evaluation capacity building in context: Reflections on the Ontario Brain Institute’s Evaluation Support Program," Evaluation and Program Planning, Elsevier, vol. 80(C).
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