IDEAS home Printed from https://ideas.repec.org/a/cup/jomorg/v25y2019i04p464-480_00.html
   My bibliography  Save this article

Nothing about us, without us: A case study of a consumer-run organization by and for people on the autism spectrum in the Netherlands

Author

Listed:
  • van den Bosch, Karin E.
  • Krzeminska, Anna
  • Song, Eun Young
  • van Hal, Lineke B. E.
  • Waltz, Mitzi M.
  • Ebben, Hannah
  • Schippers, Alice P.

Abstract

In this exploratory case study based on qualitative research, we explore the perspectives and experiences of autistic self-advocates in the Netherlands regarding autism, (self-)advocacy, and consumer-run organizations. The focus of our study is a consumer-run organization by and for adult Persons on the Autism Spectrum in the Netherlands: PAS-Nederland or PAS for short. Our analysis reveals four themes relevant to the acceptance and integration of adults with autism into society and work: (1) invisibility of autistic adults; (2) diversity of the autism spectrum; (3) autistic leadership; and (4) collaboration between people with and without autism. We discuss the practical implications of our findings for the inclusion of people with autism in work and society. Our study underscores the importance of putting autistic people at the center of decision-making processes and solutions aimed at improving their outcomes in society, in general, and in the workplace specifically.

Suggested Citation

  • van den Bosch, Karin E. & Krzeminska, Anna & Song, Eun Young & van Hal, Lineke B. E. & Waltz, Mitzi M. & Ebben, Hannah & Schippers, Alice P., 2019. "Nothing about us, without us: A case study of a consumer-run organization by and for people on the autism spectrum in the Netherlands," Journal of Management & Organization, Cambridge University Press, vol. 25(4), pages 464-480, July.
    • Handle: RePEc:cup:jomorg:v:25:y:2019:i:04:p:464-480_00
    as

    Download full text from publisher

    File URL: https://www.cambridge.org/core/product/identifier/S1833367218000548/type/journal_article
    File Function: link to article abstract page
    Download Restriction: no
    ---><---

    More about this item

    Statistics

    Access and download statistics

    Corrections

    All material on this site has been provided by the respective publishers and authors. You can help correct errors and omissions. When requesting a correction, please mention this item's handle: RePEc:cup:jomorg:v:25:y:2019:i:04:p:464-480_00. See general information about how to correct material in RePEc.

    If you have authored this item and are not yet registered with RePEc, we encourage you to do it here. This allows to link your profile to this item. It also allows you to accept potential citations to this item that we are uncertain about.

    We have no bibliographic references for this item. You can help adding them by using this form .

    If you know of missing items citing this one, you can help us creating those links by adding the relevant references in the same way as above, for each refering item. If you are a registered author of this item, you may also want to check the "citations" tab in your RePEc Author Service profile, as there may be some citations waiting for confirmation.

    For technical questions regarding this item, or to correct its authors, title, abstract, bibliographic or download information, contact: Kirk Stebbing (email available below). General contact details of provider: https://www.cambridge.org/jmo .

    Please note that corrections may take a couple of weeks to filter through the various RePEc services.

    IDEAS is a RePEc service. RePEc uses bibliographic data supplied by the respective publishers.