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Hospice Caregivers’ Perception of Family and Non-Family Social Support and Stress over Time: Associations with Reports of General Support

Author

Listed:
  • Maija Reblin

    (Department of Family Medicine, Larner College of Medicine, University of Vermont, Burlington, VT 05405, USA)

  • Djin L. Tay

    (College of Nursing, University of Utah, Salt Lake City, UT 84112, USA)

  • Eli Iacob

    (College of Nursing, University of Utah, Salt Lake City, UT 84112, USA)

  • Kristin G. Cloyes

    (School of Nursing, Oregon Health & Sciences University, Portland, OR 97239, USA)

  • Megan C. Thomas Hebdon

    (School of Nursing, University of Texas at Austin, Austin, TX 78712, USA)

  • Lee Ellington

    (College of Nursing, University of Utah, Salt Lake City, UT 84112, USA)

Abstract

Social support has been identified as a key factor to protect wellbeing for home hospice cancer caregivers. However, few studies have assessed social support over time in this context, and measures of support are often limited to general assessments of perceived support. Our goal was to (1) describe change in cancer home hospice caregivers’ social support over time during care and into bereavement and (2) explore the impact of perceived stress and support from family and non-family members on caregivers’ perceived general social support. We conducted a secondary analysis of longitudinal prospective questionnaire data. Forty caregivers completed measures of general perceived support, family and non-family support and stress during hospice enrollment and 2 and 6 months post the patient’s death. Linear mixed models were used to determine change in support over time and the contribution of specific support/stress ratings to general support assessments. Caregivers overall had moderate and stable levels of social support over time, though there was significant variation between and within individuals. Family and non-family support and stress from family predicted general perceptions of social support, while no effects were found for non-family stress. This work suggests a need for more specific measures of support and stress, and the need for research to focus on improving baseline levels of caregiver perceived support.

Suggested Citation

  • Maija Reblin & Djin L. Tay & Eli Iacob & Kristin G. Cloyes & Megan C. Thomas Hebdon & Lee Ellington, 2023. "Hospice Caregivers’ Perception of Family and Non-Family Social Support and Stress over Time: Associations with Reports of General Support," IJERPH, MDPI, vol. 20(6), pages 1-9, March.
    • Handle: RePEc:gam:jijerp:v:20:y:2023:i:6:p:5009-:d:1095091
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    References listed on IDEAS

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    2. Julianne Holt-Lunstad & Timothy B Smith & J Bradley Layton, 2010. "Social Relationships and Mortality Risk: A Meta-analytic Review," PLOS Medicine, Public Library of Science, vol. 7(7), pages 1-1, July.
    3. Rafael del-Pino-Casado & Antonio Frías-Osuna & Pedro A Palomino-Moral & María Ruzafa-Martínez & Antonio J Ramos-Morcillo, 2018. "Social support and subjective burden in caregivers of adults and older adults: A meta-analysis," PLOS ONE, Public Library of Science, vol. 13(1), pages 1-18, January.
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