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“It’s not if I get cancer, it’s when I get cancer”: BRCA-positive patients’ (un)certain health experiences regarding hereditary breast and ovarian cancer risk

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  • Dean, Marleah

Abstract

Women with a harmful mutation in the BReast CAncer (BRCA) gene are at significantly increased risk of developing hereditary breast and ovarian cancer (HBOC) during their lifetime, compared to those without. Such patients—with a genetic predisposition to develop cancer but who have not yet been diagnosed with cancer—live in a constant state of uncertainty and wonder not if they might get cancer but when.

Suggested Citation

  • Dean, Marleah, 2016. "“It’s not if I get cancer, it’s when I get cancer”: BRCA-positive patients’ (un)certain health experiences regarding hereditary breast and ovarian cancer risk," Social Science & Medicine, Elsevier, vol. 163(C), pages 21-27.
    • Handle: RePEc:eee:socmed:v:163:y:2016:i:c:p:21-27
    DOI: 10.1016/j.socscimed.2016.06.039
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    References listed on IDEAS

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    1. Paul K. J. Han & William M. P. Klein & Neeraj K. Arora, 2011. "Varieties of Uncertainty in Health Care," Medical Decision Making, , vol. 31(6), pages 828-838, November.
    2. Mary C. Politi & Paul K. J. Han & Nananda F. Col, 2007. "Communicating the Uncertainty of Harms and Benefits of Medical Interventions," Medical Decision Making, , vol. 27(5), pages 681-695, September.
    3. McCormack, Lauren A. & Treiman, Katherine & Rupert, Douglas & Williams-Piehota, Pamela & Nadler, Eric & Arora, Neeraj K. & Lawrence, William & Street Jr., Richard L., 2011. "Measuring patient-centered communication in cancer care: A literature review and the development of a systematic approach," Social Science & Medicine, Elsevier, vol. 72(7), pages 1085-1095, April.
    4. Paul K. J. Han & William M. P. Klein & Tom Lehman & Bill Killam & Holly Massett & Andrew N. Freedman, 2011. "Communication of Uncertainty Regarding Individualized Cancer Risk Estimates," Medical Decision Making, , vol. 31(2), pages 354-366, March.
    5. Babrow, Austin S. & Kline, Kimberly N., 2000. "From "reducing" to "coping with" uncertainty: reconceptualizing the central challenge in breast self-exams," Social Science & Medicine, Elsevier, vol. 51(12), pages 1805-1816, December.
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    Cited by:

    1. Boardman, Felicity & Clark, Corinna, 2022. "‘We're kind of like genetic nomads': Parents' experiences of biographical disruption and uncertainty following in/conclusive results from newborn cystic fibrosis screening," Social Science & Medicine, Elsevier, vol. 301(C).
    2. Derbez, Benjamin, 2018. "Is there a “right time” for bad news? Kairos in familial communication on hereditary breast and ovarian cancer risk," Social Science & Medicine, Elsevier, vol. 202(C), pages 13-19.
    3. Rauscher, Emily A. & Dean, Marleah & Campbell-Salome, Gemme & Barbour, Joshua B., 2019. "“How do we rally around the one who was positive?” Familial uncertainty management in the context of men managing BRCA-related cancer risks," Social Science & Medicine, Elsevier, vol. 242(C).

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