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Methods of legitimation: How ethics committees decide which reasons count in public policy decision-making

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  • Edwards, Kyle T.

Abstract

In recent years, liberal democratic societies have struggled with the question of how best to balance expertise and democratic participation in the regulation of emerging technologies. This study aims to explain how national deliberative ethics committees handle the practical tension between scientific expertise, ethical expertise, expert patient input, and lay public input by explaining two institutions' processes for determining the legitimacy or illegitimacy of reasons in public policy decision-making: that of the United Kingdom's Human Fertilisation and Embryology Authority (HFEA) and the United States' American Society for Reproductive Medicine (ASRM). The articulation of these ‘methods of legitimation’ draws on 13 in-depth interviews with HFEA and ASRM members and staff conducted in January and February 2012 in London and over Skype, as well as observation of an HFEA deliberation. This study finds that these two institutions employ different methods in rendering certain arguments legitimate and others illegitimate: while the HFEA attempts to ‘balance’ competing reasons but ultimately legitimizes arguments based on health and welfare concerns, the ASRM seeks to ‘filter’ out arguments that challenge reproductive autonomy. The notably different structures and missions of each institution may explain these divergent approaches, as may what Sheila Jasanoff (2005) terms the distinctive ‘civic epistemologies’ of the US and the UK. Significantly for policy makers designing such deliberative committees, each method differs substantially from that explicitly or implicitly endorsed by the institution.

Suggested Citation

  • Edwards, Kyle T., 2014. "Methods of legitimation: How ethics committees decide which reasons count in public policy decision-making," Social Science & Medicine, Elsevier, vol. 113(C), pages 34-41.
  • Handle: RePEc:eee:socmed:v:113:y:2014:i:c:p:34-41
    DOI: 10.1016/j.socscimed.2014.04.043
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    References listed on IDEAS

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    1. Harvey, Alison & Salter, Brian, 2012. "Governing the moral economy: Animal engineering, ethics and the liberal government of science," Social Science & Medicine, Elsevier, vol. 75(1), pages 193-199.
    2. Abelson, Julia & Forest, Pierre-Gerlier & Eyles, John & Smith, Patricia & Martin, Elisabeth & Gauvin, Francois-Pierre, 2003. "Deliberations about deliberative methods: issues in the design and evaluation of public participation processes," Social Science & Medicine, Elsevier, vol. 57(2), pages 239-251, July.
    3. Alfred Moore, 2010. "Public Bioethics and Deliberative Democracy," Political Studies, Political Studies Association, vol. 58, pages 715-730, October.
    4. Alfred Moore, 2010. "Public Bioethics and Deliberative Democracy," Political Studies, Political Studies Association, vol. 58(4), pages 715-730, October.
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    1. Nihit Goyal & Michael Howlett & Araz Taeihagh, 2021. "Why and how does the regulation of emerging technologies occur? Explaining the adoption of the EU General Data Protection Regulation using the multiple streams framework," Regulation & Governance, John Wiley & Sons, vol. 15(4), pages 1020-1034, October.

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