IDEAS home Printed from https://ideas.repec.org/a/eee/cysrev/v45y2014icp55-63.html
   My bibliography  Save this article

Hear our voices: A Photovoice project with children who are orphaned and living with HIV in a Ugandan group home

Author

Listed:
  • Fournier, Bonnie
  • Bridge, Andrea
  • Pritchard Kennedy, Andrea
  • Alibhai, Arif
  • Konde-Lule, Joseph

Abstract

In June 2010, we conducted a qualitative participatory research study to explore the experience of orphaned, HIV seropositive children who live in a group home in semi-urban western Uganda. Photovoice was used as a participatory method to enhance storytelling with children between 12 and 18years (n=5 girls; n=8 boys). In previous project work done by the research team in Uganda, children's affirming experiences in their group home suggested an extension to the dominant view that favors extended family placements, and raises the need for further inquiry regarding institutional care. Children in this study revealed how the group home supported key protective factors in their everyday lives that promote well-being, and resilience for coping with challenges such as stigma. Children expressed how their group home fostered a sense of belonging and appreciation for nature, home, resources and community. Children also described their hardships stemming from stigma, including associated psychological, emotional and social challenges. This forces us to re-think the role of institutional care for orphaned children who are HIV seropositive, guided by the unique perspective of children themselves. This research extends our understanding of key protective factors, while also challenging the dominant view to include institutional care as an effective placement option for those that require specialized care and support. Moreover, findings demonstrate that HIV seropositive orphaned children who live in a group home setting experience protective factors supporting their psychological, emotional and social well-being.

Suggested Citation

  • Fournier, Bonnie & Bridge, Andrea & Pritchard Kennedy, Andrea & Alibhai, Arif & Konde-Lule, Joseph, 2014. "Hear our voices: A Photovoice project with children who are orphaned and living with HIV in a Ugandan group home," Children and Youth Services Review, Elsevier, vol. 45(C), pages 55-63.
    • Handle: RePEc:eee:cysrev:v:45:y:2014:i:c:p:55-63
    DOI: 10.1016/j.childyouth.2014.03.038
    as

    Download full text from publisher

    File URL: http://www.sciencedirect.com/science/article/pii/S0190740914001443
    Download Restriction: Full text for ScienceDirect subscribers only
    File URL: https://libkey.io/10.1016/j.childyouth.2014.03.038?utm_source=ideas
    LibKey link: if access is restricted and if your library uses this service, LibKey will redirect you to where you can use your library subscription to access this item
    ---><---

    As the access to this document is restricted, you may want to search for a different version of it.

    References listed on IDEAS

    as
    1. Pinkerton, John, 2011. "Constructing a global understanding of the social ecology of leaving out of home care," Children and Youth Services Review, Elsevier, vol. 33(12), pages 2412-2416.
    2. Atwine, Benjamin & Cantor-Graae, Elizabeth & Bajunirwe, Francis, 2005. "Psychological distress among AIDS orphans in rural Uganda," Social Science & Medicine, Elsevier, vol. 61(3), pages 555-564, August.
    3. Desmond, Chris & Gow, Jeff & Loening-Voysey, Heidi & Wilson, Theresa & Stirling, Bridget, 2002. "Approaches to caring, essential elements for a quality service and cost-effectiveness in South Africa," Evaluation and Program Planning, Elsevier, vol. 25(4), pages 447-458, November.
    4. Nyamukapa, C.A. & Gregson, S. & Lopman, B. & Saito, S. & Watts, H.J. & Monasch, R. & Jukes, M.C.H., 2008. "HIV-associated orphanhood and children's psychosocial distress: Theoretical framework tested with data from Zimbabwe," American Journal of Public Health, American Public Health Association, vol. 98(1), pages 133-141.
    5. Bonnie Fournier & Andrea Bridge & Judy Mill & Arif Alibhai & Andrea Pritchard Kennedy & Joseph Konde-Lule, 2014. "Turning the Camera Back," SAGE Open, , vol. 4(2), pages 21582440145, May.
    6. Skovdal, Morten & Ogutu, Vincent O. & Aoro, Cellestine & Campbell, Catherine, 2009. "Young carers as social actors: Coping strategies of children caring for ailing or ageing guardians in Western Kenya," Social Science & Medicine, Elsevier, vol. 69(4), pages 587-595, August.
    7. Cluver, Lucie & Orkin, Mark, 2009. "Cumulative risk and AIDS-orphanhood: Interactions of stigma, bullying and poverty on child mental health in South Africa," Social Science & Medicine, Elsevier, vol. 69(8), pages 1186-1193, October.
    8. Madhavan, Sangeetha, 2004. "Fosterage patterns in the age of AIDS: continuity and change," Social Science & Medicine, Elsevier, vol. 58(7), pages 1443-1454, April.
    Full references (including those not matched with items on IDEAS)

    Citations

    Citations are extracted by the CitEc Project, subscribe to its RSS feed for this item.
    as


    Cited by:

    1. Costa, Mónica & Tagliabue, Semira & Matos, Paula Mena & Mota, Catarina Pinheiro, 2020. "Stability and change in adolescents’ well-being: The role of relationships with caregivers in residential care," Children and Youth Services Review, Elsevier, vol. 119(C).
    2. Khoo, Evelyn & Mancinas, Sandra & Skoog, Viktoria, 2015. "We are not orphans. Children's experience of everyday life in institutional care in Mexico," Children and Youth Services Review, Elsevier, vol. 59(C), pages 1-9.
    3. Eunice Magalhães & Maria Manuela Calheiros & Carla Antunes, 2018. "‘I Always Say What I Think’: a Rights-Based Approach of Young People’s Psychosocial Functioning in Residential Care," Child Indicators Research, Springer;The International Society of Child Indicators (ISCI), vol. 11(6), pages 1801-1816, December.
    4. Coral Gallardo-Masa & Rosa Sitjes-Figueras & Edgar Iglesias & Carme Montserrat, 2024. "How Adolescents in Residential Care Perceive their Skills and Satisfaction with Life: Do Adolescents and Youth Workers Agree?," Child Indicators Research, Springer;The International Society of Child Indicators (ISCI), vol. 17(1), pages 261-287, February.
    5. Roche, Steven, 2019. "A scoping review of children's experiences of residential care settings in the global South," Children and Youth Services Review, Elsevier, vol. 105(C), pages 1-1.
    6. Yanjun Cai, 2017. "Bonding, bridging, and linking: photovoice for resilience through social capital," Natural Hazards: Journal of the International Society for the Prevention and Mitigation of Natural Hazards, Springer;International Society for the Prevention and Mitigation of Natural Hazards, vol. 88(2), pages 1169-1195, September.

    Most related items

    These are the items that most often cite the same works as this one and are cited by the same works as this one.
    1. Rachel Goldberg & Susan Short, 2012. "“The Luggage that isn’t Theirs is Too Heavy…”: Understandings of Orphan Disadvantage in Lesotho," Population Research and Policy Review, Springer;Southern Demographic Association (SDA), vol. 31(1), pages 67-83, February.
    2. Rachel Goldberg, 2013. "Family Instability and Early Initiation of Sexual Activity in Western Kenya," Demography, Springer;Population Association of America (PAA), vol. 50(2), pages 725-750, April.
    3. Kaggwa, Esther B. & Hindin, Michelle J., 2010. "The psychological effect of orphanhood in a matured HIV epidemic: An analysis of young people in Mukono, Uganda," Social Science & Medicine, Elsevier, vol. 70(7), pages 1002-1010, April.
    4. Betancourt, Theresa Stichick & Meyers-Ohki, Sarah & Stulac, Sara N. & Elizabeth Barrera, Amy & Mushashi, Christina & Beardslee, William R., 2011. "Nothing can defeat combined hands (Abashize hamwe ntakibananira): Protective processes and resilience in Rwandan children and families affected by HIV/AIDS," Social Science & Medicine, Elsevier, vol. 73(5), pages 693-701, September.
    5. Titeca, Kristof & Omwa, Samuel Samson, 2011. "Community-based initiatives in response to the OVC crisis in North Central Uganda," IOB Discussion Papers 2011.04, Universiteit Antwerpen, Institute of Development Policy (IOB).
    6. Kasedde, Susan & Doyle, Aoife M. & Seeley, Janet A. & Ross, David A., 2014. "They are not always a burden: Older people and child fostering in Uganda during the HIV epidemic," Social Science & Medicine, Elsevier, vol. 113(C), pages 161-168.
    7. Kumakech, Edward & Cantor-Graae, Elizabeth & Maling, Samuel & Bajunirwe, Francis, 2009. "Peer-group support intervention improves the psychosocial well-being of AIDS orphans: Cluster randomized trial," Social Science & Medicine, Elsevier, vol. 68(6), pages 1038-1043, March.
    8. Hy V Huynh & Susan P Limber & Christine L Gray & Martie P Thompson & Augustine I Wasonga & Vanroth Vann & Dafrosa Itemba & Misganaw Eticha & Ira Madan & Kathryn Whetten, 2019. "Factors affecting the psychosocial well-being of orphan and separated children in five low- and middle-income countries: Which is more important, quality of care or care setting?," PLOS ONE, Public Library of Science, vol. 14(6), pages 1-12, June.
    9. Campbell, Catherine & Skovdal, Morten & Mupambireyi, Zivai & Gregson, Simon, 2010. "Exploring children's stigmatisation of AIDS-affected children in Zimbabwe through drawings and stories," Social Science & Medicine, Elsevier, vol. 71(5), pages 975-985, September.
    10. Thurman, Tonya Renee & Snider, Leslie A. & Boris, Neil W. & Kalisa, Edward & Nyirazinyoye, Laetitia & Brown, Lisanne, 2008. "Barriers to the community support of orphans and vulnerable youth in Rwanda," Social Science & Medicine, Elsevier, vol. 66(7), pages 1557-1567, April.
    11. Refaeli, Tehila, 2017. "Narratives of care leavers: What promotes resilience in transitions to independent lives?," Children and Youth Services Review, Elsevier, vol. 79(C), pages 1-9.
    12. Karimli, Leyla & Ssewamala, Fred M. & Neilands, Torsten B. & Wells, Christine R. & Bermudez, Laura Gauer, 2019. "Poverty, economic strengthening, and mental health among AIDS orphaned children in Uganda: Mediation model in a randomized clinical trial," Social Science & Medicine, Elsevier, vol. 228(C), pages 17-24.
    13. Kathryn Whetten & Jan Ostermann & Brian W Pence & Rachel A Whetten & Lynne C Messer & Sumedha Ariely & Karen O'Donnell & Augustine I Wasonga & Vanroth Vann & Dafrosa Itemba & Misganaw Eticha & Ira Mad, 2014. "Three-Year Change in the Wellbeing of Orphaned and Separated Children in Institutional and Family-Based Care Settings in Five Low- and Middle-Income Countries," PLOS ONE, Public Library of Science, vol. 9(8), pages 1-10, August.
    14. Abebe, Tatek & Aase, Asbjorn, 2007. "Children, AIDS and the politics of orphan care in Ethiopia: The extended family revisited," Social Science & Medicine, Elsevier, vol. 64(10), pages 2058-2069, May.
    15. Qi Zhao & Hui He & Huang Gu & Junfeng Zhao & Peilian Chi & Xiaoming Li, 2021. "Facial Expression Processing of Children Orphaned by Parental HIV/AIDS: A Cross-Sectional ERP Study with Rapid Serial Visual Presentation," IJERPH, MDPI, vol. 18(19), pages 1-11, September.
    16. Garman, E.C. & Avendano, Mauricio & Araya, Ricardo & Evans-Lacko, Sara & McDaid, David & Zimmerman, A. & Lund, C., 2022. "Understanding the complex relationship between multidimensional poverty and depressive symptoms among young South Africans: a cross-sectional study," LSE Research Online Documents on Economics 116674, London School of Economics and Political Science, LSE Library.
    17. Wang, Bo & Li, Xiaoming & Barnett, Douglas & Zhao, Guoxiang & Zhao, Junfeng & Stanton, Bonita, 2012. "Risk and protective factors for depression symptoms among children affected by HIV/AIDS in rural China: A structural equation modeling analysis," Social Science & Medicine, Elsevier, vol. 74(9), pages 1435-1443.
    18. Hagen, Jens & Omar Mahmoud, Toman & Trofimenko, Natalia, 2010. "Orphanhood and critical periods in children's human capital formation: Long-run evidence from North-Western Tanzania," Kiel Working Papers 1649, Kiel Institute for the World Economy (IfW Kiel).
    19. Yanagisawa, Satoko & Poudel, Krishna C. & Jimba, Masamine, 2010. "Sibling caregiving among children orphaned by AIDS: Synthesis of recent studies for policy implications," Health Policy, Elsevier, vol. 98(2-3), pages 121-130, December.
    20. Haag, Katharina & Du Toit, Stefani & Rudgard, William E. & Skeen, Sarah & Meinck, Franziska & Gordon, Sarah L. & Mebrahtu, Helen & Roberts, Kathryn J. & Cluver, Lucie & Tomlinson, Mark & Sherr, Lorrai, 2022. "Accelerators for achieving the sustainable development goals in Sub-Saharan-African children and young adolescents – A longitudinal study," World Development, Elsevier, vol. 151(C).

    Corrections

    All material on this site has been provided by the respective publishers and authors. You can help correct errors and omissions. When requesting a correction, please mention this item's handle: RePEc:eee:cysrev:v:45:y:2014:i:c:p:55-63. See general information about how to correct material in RePEc.

    If you have authored this item and are not yet registered with RePEc, we encourage you to do it here. This allows to link your profile to this item. It also allows you to accept potential citations to this item that we are uncertain about.

    If CitEc recognized a bibliographic reference but did not link an item in RePEc to it, you can help with this form .

    If you know of missing items citing this one, you can help us creating those links by adding the relevant references in the same way as above, for each refering item. If you are a registered author of this item, you may also want to check the "citations" tab in your RePEc Author Service profile, as there may be some citations waiting for confirmation.

    For technical questions regarding this item, or to correct its authors, title, abstract, bibliographic or download information, contact: Catherine Liu (email available below). General contact details of provider: http://www.elsevier.com/locate/childyouth .

    Please note that corrections may take a couple of weeks to filter through the various RePEc services.

    IDEAS is a RePEc service. RePEc uses bibliographic data supplied by the respective publishers.