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Observations on the US working definition for Long Covid as of May 2023

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  • Perego, Elisa

Abstract

Patient-driven perspectives are of key importance for the development of efficacious case definitions of diseases. This issue has been brought to the fore by Long Covid, a disease entity identified, named and defined by those affected by the disease itself in the early COVID-19 pandemic. In this article, I provide a commentary on the US working definition (USG) for Long Covid as of May 2023. This article is a revised, written version, with bibliography, of my oral presentation for the “patient perspective panel” of the US National Academies of Sciences, Engineering, and Medicine (NASEM) Committee Meeting 3 on “Examining the Working Definition for Long COVID”, to which I participated virtually on Friday 12 May 2023. In the first part of the article, I will offer some observations on the US working definition for Long Covid, as discussed at NASEM, in light of research, pathophysiology, and lived experience. In the second part, I will raise some pressing concerns that relevant stakeholders will want to consider while approaching Long Covid as a disease entity and as a concept. It is my hope the observations in this article will contribute to effective debates around definitions and guidelines for Long Covid

Suggested Citation

  • Perego, Elisa, 2023. "Observations on the US working definition for Long Covid as of May 2023," SocArXiv hfa8e, Center for Open Science.
    • Handle: RePEc:osf:socarx:hfa8e
    DOI: 10.31219/osf.io/hfa8e
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