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Ethical and Economic Issues in the Appraisal of Medicines for Ultra-Rare Conditions

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  • Nadine Henderson;Maria Errea;Chris Skedgel;Mireia Jofre-Bonet

Abstract

In light of concerns that not all medicines for ultra-rare (also known as ultra-orphan) conditions are appraised under the same NICE process, a new OHE Consulting Report discusses the distinct ethical and economic challenges faced by medicines for ultra-rare conditions, with particular reference to the challenges of HTA in the UK. A failure to consistently consider all ultra-rare disease medicines under the HST process could lead to inequalities in access and health outcomes for patients with ultra-rare conditions.

Suggested Citation

  • Nadine Henderson;Maria Errea;Chris Skedgel;Mireia Jofre-Bonet, 2020. "Ethical and Economic Issues in the Appraisal of Medicines for Ultra-Rare Conditions," Contract Research 002236, Office of Health Economics.
    • Handle: RePEc:ohe:conres:002236
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    File URL: https://www.ohe.org/publications/ethical-and-economic-issues-appraisal-medicines-ultra-rare-conditions-0/attachment-hst-ethical-and-economic-challenges-final/
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    Keywords

    Ethical and Economic Issues in the Appraisal of Medicines for Ultra-Rare Conditions;

    JEL classification:

    • I1 - Health, Education, and Welfare - - Health

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