IDEAS home Printed from https://ideas.repec.org/p/hal/journl/hal-05484149.html

An affordance lens for family caregivers’ individual information systems: the case of pediatric cancer

Author

Listed:
  • Anne-Laure Delaunay

    (LITEM - Laboratoire en Innovation, Technologies, Economie et Management (EA 7363) - UEVE - Université d'Évry-Val-d'Essonne - Université Paris-Saclay - IMT-BS - Institut Mines-Télécom Business School - IMT - Institut Mines-Télécom [Paris], IMT-BS - TIM - Département Technologies, Information & Management - TEM - Télécom Ecole de Management - IMT-BS - Institut Mines-Télécom Business School - IMT - Institut Mines-Télécom [Paris])

  • Jamila Lahmar
  • Amélie Clauzel

Abstract

This research-in-progress paper investigates how caregiving parents of children with cancer construct and adapt their own Individual Information Systems (IIS) through situated uses of digital technologies. Drawing on a relational understanding of affordances, our focus is on examining how the concrete practices of caregivers shape the configuration of their IIS. The study adopts an interpretive approach based on 37 semi-structured interviews with parents. Our analysis follows a five-step coding process that combines inductive categorization with theoretical grounding. Preliminary findings — focusing on the Human–Technology lens — reveal a wide range of interactions between parents and digital tools, shaped by emotional regulation, organizational needs, and strategies of distancing. Future phases will expand the analysis, involving institutional dimensions ( hospital, family, school, administrative systems) as well as the triadic interplay between human, technology, and institution. This work contributes to theorizing affordances as dynamic elements of action in extreme care context.

Suggested Citation

  • Anne-Laure Delaunay & Jamila Lahmar & Amélie Clauzel, 2025. "An affordance lens for family caregivers’ individual information systems: the case of pediatric cancer," Post-Print hal-05484149, HAL.
    • Handle: RePEc:hal:journl:hal-05484149
    as

    Download full text from publisher

    To our knowledge, this item is not available for download. To find whether it is available, there are three options:
    1. Check below whether another version of this item is available online.
    2. Check on the provider's web page whether it is in fact available.
    3. Perform a
    for a similarly titled item that would be available.

    More about this item

    Keywords

    ;
    ;
    ;
    ;
    ;

    Statistics

    Access and download statistics

    Corrections

    All material on this site has been provided by the respective publishers and authors. You can help correct errors and omissions. When requesting a correction, please mention this item's handle: RePEc:hal:journl:hal-05484149. See general information about how to correct material in RePEc.

    If you have authored this item and are not yet registered with RePEc, we encourage you to do it here. This allows to link your profile to this item. It also allows you to accept potential citations to this item that we are uncertain about.

    We have no bibliographic references for this item. You can help adding them by using this form .

    If you know of missing items citing this one, you can help us creating those links by adding the relevant references in the same way as above, for each refering item. If you are a registered author of this item, you may also want to check the "citations" tab in your RePEc Author Service profile, as there may be some citations waiting for confirmation.

    For technical questions regarding this item, or to correct its authors, title, abstract, bibliographic or download information, contact: CCSD (email available below). General contact details of provider: https://hal.archives-ouvertes.fr/ .

    Please note that corrections may take a couple of weeks to filter through the various RePEc services.

    IDEAS is a RePEc service. RePEc uses bibliographic data supplied by the respective publishers.