IDEAS home Printed from https://ideas.repec.org/h/spr/sprchp/978-981-95-2806-6_7.html

Institutional Management for Privacy Protection and Informed Consent

In: Governance and Management of Medical Scientific Data Sharing and Application

Author

Listed:
  • Jian Guan

    (Peking Union Medical College Hospital, Peking Union Medical College (PUMC) & Chinese Academy of Medical Sciences (CAMS))

Abstract

Privacy protection and informed consent are two fundamental rights in the application of personal health information, including data sharing, which are subject to legal and ethical oversight. Privacy protection and informed consent face significant challenges, often clashing with data sharing practices and exhibiting contradictory relationships. This chapter presents our standards and methods for assessing the severity of private information and the potential risks of re-identification to provide a foundation for hierarchical management. Recommendations are provided for choosing informed consent models based on refined privacy conditions. Additionally, it investigates related factors and methods. Specifically, to determine the potential risks of re-identification, we innovatively introduced the concepts of ‘general technical personnel’ and ‘prior art’ as used in patent definitions. We suggest the ‘pre-engagement’ consent pathway as an active protective measure.

Suggested Citation

  • Jian Guan, 2026. "Institutional Management for Privacy Protection and Informed Consent," Springer Books, in: Governance and Management of Medical Scientific Data Sharing and Application, chapter 0, pages 201-233, Springer.
    • Handle: RePEc:spr:sprchp:978-981-95-2806-6_7
    DOI: 10.1007/978-981-95-2806-6_7
    as

    Download full text from publisher

    To our knowledge, this item is not available for download. To find whether it is available, there are three options:
    1. Check below whether another version of this item is available online.
    2. Check on the provider's web page whether it is in fact available.
    3. Perform a
    for a similarly titled item that would be available.

    More about this item

    Keywords

    ;
    ;
    ;
    ;
    ;
    ;
    ;
    ;

    Statistics

    Access and download statistics

    Corrections

    All material on this site has been provided by the respective publishers and authors. You can help correct errors and omissions. When requesting a correction, please mention this item's handle: RePEc:spr:sprchp:978-981-95-2806-6_7. See general information about how to correct material in RePEc.

    If you have authored this item and are not yet registered with RePEc, we encourage you to do it here. This allows to link your profile to this item. It also allows you to accept potential citations to this item that we are uncertain about.

    We have no bibliographic references for this item. You can help adding them by using this form .

    If you know of missing items citing this one, you can help us creating those links by adding the relevant references in the same way as above, for each refering item. If you are a registered author of this item, you may also want to check the "citations" tab in your RePEc Author Service profile, as there may be some citations waiting for confirmation.

    For technical questions regarding this item, or to correct its authors, title, abstract, bibliographic or download information, contact: Sonal Shukla or Springer Nature Abstracting and Indexing (email available below). General contact details of provider: http://www.springer.com .

    Please note that corrections may take a couple of weeks to filter through the various RePEc services.

    IDEAS is a RePEc service. RePEc uses bibliographic data supplied by the respective publishers.