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International Practice and Important Policies and Consensus

In: Governance and Management of Medical Scientific Data Sharing and Application

Author

Listed:
  • Jian Guan

    (Peking Union Medical College Hospital, Peking Union Medical College (PUMC) & Chinese Academy of Medical Sciences (CAMS))

Abstract

International organizations and regional alliances have developed international policies during data-sharing practices, including reaching principles and consensus that significantly influence governance. This chapter briefly introduces international data-sharing practices. The primary objective is to select and introduce representative international and regional policies and principles of international guiding value, data governance and ethics, personal data processing rules, and open access. The documents covered include the OECD's “Principles and Guidelines for Access to Research Data from Public Funding” and “Good Practice Principles for Data Ethics in the Public Sector,” the European Union's General Data Protection Regulation, and the FAIR principles.

Suggested Citation

  • Jian Guan, 2026. "International Practice and Important Policies and Consensus," Springer Books, in: Governance and Management of Medical Scientific Data Sharing and Application, chapter 0, pages 69-95, Springer.
    • Handle: RePEc:spr:sprchp:978-981-95-2806-6_3
    DOI: 10.1007/978-981-95-2806-6_3
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