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Co-designing Tools to Support Self-mastering of Multiple Sclerosis—A Serious Chronic Disease

In: Service Design Practices for Healthcare Innovation

Author

Listed:
  • Charlotte J. Haug

    (SINTEF Digital)

  • Ragnhild Halvorsrud

    (SINTEF Digital)

Abstract

Patients with chronic diseases such as multiple sclerosis (MS) are seen perhaps biannually by a specialist, where a 30-min consultation could encompass the following: make an account of their condition, the effect of a number of prescription drugs, medical and social needs, etc. While this evaluation is important, patients with chronic conditions must take care of themselves most of the time in order to have a good life. This chapter presents the background and preliminary findings from a project with the overall goal of supporting self-mastering of multiple sclerosis. The project will provide tools for documenting and communicating patient functions, needs, and preferences. Due to the coronavirus pandemic, we had to change our planned method of using in-person co-design workshops. While this had its disadvantages, we also describe how carefully planned digital workshops can replace in-person workshops and in some ways even improve the outcome.

Suggested Citation

  • Charlotte J. Haug & Ragnhild Halvorsrud, 2022. "Co-designing Tools to Support Self-mastering of Multiple Sclerosis—A Serious Chronic Disease," Springer Books, in: Mario A. Pfannstiel & Nataliia Brehmer & Christoph Rasche (ed.), Service Design Practices for Healthcare Innovation, chapter 0, pages 449-465, Springer.
    • Handle: RePEc:spr:sprchp:978-3-030-87273-1_22
    DOI: 10.1007/978-3-030-87273-1_22
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