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Design and Development of an At-Birth Detection and Monitoring Digital System for Children Born with Down Syndrome in Rwanda

In: Advancement in Embedded and Mobile Systems

Author

Listed:
  • Habimana Jean Claude

    (University of Rwanda, Health Informatics Department at the Regional Centre of Excellence in Biomedical Engineering and eHealth, College of Medicine and Health Sciences)

  • Murererehe Julienne

    (University of Rwanda, College of Medicine and Health Sciences)

  • Rugema Joselyne

    (University of Rwanda, College of Medicine and Health Sciences)

  • Ingabire Speciose

    (The Nelson Mandela African Institute of Science and Technology, Embedded and Mobile Systems)

  • Uwamahirwe Yvonne

    (University of Rwanda, Internet of Things Embedded Computing Systems at the Africa Centre of Excellence of Things (ACE-IoT), College of Science and Technology)

  • Nzayisenga Joselyne

    (University of Rwanda, Health Informatics Department at the Regional Centre of Excellence in Biomedical Engineering and eHealth, College of Medicine and Health Sciences)

  • Boniface Ntambara

    (IEEE Tanzania Section, Europe, Middle East, and Africa
    University of Rwanda, Africa Center of Excellence in Internet of Things (ACEIoT), College of Science and Technology)

  • Mutesa Leon

    (University of Rwanda, Centre of Human Genetics, College of Medicine and Health Sciences)

  • Niyoyita Jean Paul

    (University of Rwanda, College of Medicine and Health Sciences)

Abstract

In Rwanda, enhancing awareness and early detection of Down syndrome at birth is crucial for healthcare providers, parents, and the community. Currently, the identification of Down syndrome symptoms in newborns is often delayed. To tackle this problem, we developed a web-based tracking system for Down syndrome. Through thorough analysis and surveys with 158 healthcare professionals from various regions, including the Eastern Province and Kigali City. The findings indicated that healthcare providers are well-versed in health information systems and have access to the necessary technology and internet connectivity, which supports the system's feasibility. Our web-based application, built using HTML, CSS, JavaScript, PHP, and MySQL, enables authorized healthcare personnel to document suspected Down syndrome cases and coordinate referrals to district and referral hospitals for further evaluation and treatment. Feedback loops and treatment recommendations are efficiently managed, ensuring timely interventions. This system shows significant potential to enhance care and facilitate timely interventions for children with Down syndrome in Rwanda.

Suggested Citation

  • Habimana Jean Claude & Murererehe Julienne & Rugema Joselyne & Ingabire Speciose & Uwamahirwe Yvonne & Nzayisenga Joselyne & Boniface Ntambara & Mutesa Leon & Niyoyita Jean Paul, 2026. "Design and Development of an At-Birth Detection and Monitoring Digital System for Children Born with Down Syndrome in Rwanda," Progress in IS, in: Jorge Marx Gómez & Antoine Gatera & Devotha Godfrey Nyambo (ed.), Advancement in Embedded and Mobile Systems, pages 143-156, Springer.
    • Handle: RePEc:spr:prochp:978-3-031-99219-3_11
    DOI: 10.1007/978-3-031-99219-3_11
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