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A coordination model for enhancing research on rare diseases

In: Advanced Decision Making Methods Applied to Health Care

Author

Listed:
  • Michela Chessa

    (University of Milano)

  • Vito Fragnelli

    (University of Eastern Piedmont)

  • Stefano Gagliardo

    (University of Genova)

Abstract

Rare diseases affect a great number of patients that suffer of the non existence of effective cures. Medical products for prevention, diagnosis or treatment of this kind of disorders are called orphan drugs and pharmaceutical industries have not a great interest under normal market conditions in developing and marketing products for a small number of patients. The Orphan Drug Act and the Regulation on Orphan Medicinal Products played a relevant role in encouraging the development of new orphan drugs, as in America as in Europe. In this chapter we propose that pharmaceutical industries coordinate their researches in order to avoid that two or more of them study a new molecule for the same disease, with the aim of further enhancing the research on rare diseases.

Suggested Citation

  • Michela Chessa & Vito Fragnelli & Stefano Gagliardo, 2012. "A coordination model for enhancing research on rare diseases," International Series in Operations Research & Management Science, in: Elena Tànfani & Angela Testi (ed.), Advanced Decision Making Methods Applied to Health Care, chapter 0, pages 51-66, Springer.
    • Handle: RePEc:spr:isochp:978-88-470-2321-5_4
    DOI: 10.1007/978-88-470-2321-5_4
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