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Excess burden of a chronic disabling condition: life lost due to traumatic spinal cord injury in a Swiss population-based cohort study

Author

Listed:
  • Jonviea D. Chamberlain

    (Swiss Paraplegic Research
    University of Lucerne, Health Sciences and Health Policy
    University of Bern)

  • Anne Buzzell

    (Swiss Paraplegic Research
    University of Lucerne, Health Sciences and Health Policy)

  • Hans Peter Gmünder

    (Swiss Paraplegic Center)

  • Kerstin Hug

    (REHAB, Basel)

  • Xavier Jordan

    (Clinique Romande de Réadaptation)

  • André Moser

    (University of Zurich)

  • Martin Schubert

    (Balgrist University Hospital)

  • Marcel Zwahlen

    (University of Bern)

  • Martin W. G. Brinkhof

    (Swiss Paraplegic Research
    University of Lucerne, Health Sciences and Health Policy)

Abstract

Objectives To estimate excess mortality and life years lost in a Swiss cohort of individuals with traumatic spinal cord injury (TSCI). Methods This study uses population-based data collected in the Swiss Spinal Cord Injury Cohort (SwiSCI) study, which covers all specialized rehabilitation centres. Flexible parametric survival models were used to model life years remaining (LYR), potential years life lost (PYLL), relative survival and excess hazard ratios. Results Men and women with TSCI and an attained age of 30 were estimated to have 42 LYR (95% CI = 37.9–45.5) and 43 LYR (95% CI = 40.1–45.5), respectively; this equates to a life expectancy (LE) of 80.6 and 76.9% of that of the Swiss general population. With respect to lesion level and completeness, persons with incomplete paraplegia had 45.1 LYR at an attained age of 30, whereas individuals with complete tetraplegia only had 28.7 LYR. This pattern was similar for PYLL. Conclusions The extended LE following TSCI, even for the most severe lesions, underscores the need for sustained follow-up to support functioning and health for individuals ageing with SCI.

Suggested Citation

  • Jonviea D. Chamberlain & Anne Buzzell & Hans Peter Gmünder & Kerstin Hug & Xavier Jordan & André Moser & Martin Schubert & Marcel Zwahlen & Martin W. G. Brinkhof, 2019. "Excess burden of a chronic disabling condition: life lost due to traumatic spinal cord injury in a Swiss population-based cohort study," International Journal of Public Health, Springer;Swiss School of Public Health (SSPH+), vol. 64(7), pages 1097-1105, September.
    • Handle: RePEc:spr:ijphth:v:64:y:2019:i:7:d:10.1007_s00038-019-01265-6
    DOI: 10.1007/s00038-019-01265-6
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    References listed on IDEAS

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    1. Paul W. Dickman & Enzo Coviello, 2015. "Estimating and modeling relative survival," Stata Journal, StataCorp LP, vol. 15(1), pages 186-215, March.
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