IDEAS home Printed from https://ideas.repec.org/a/sae/socpsy/v69y2023i4p1024-1032.html

Affiliate stigma and caregiving burden among family caregivers of persons with schizophrenia in rural China

Author

Listed:
  • Yi-Zhou Wang
  • Xian-Dong Meng
  • Tian-Ming Zhang
  • Xue Weng
  • Ming Li
  • Wei Luo
  • Yi Huang
  • Graham Thornicroft
  • Mao-Sheng Ran

Abstract

Background: Although stigma and caregiving burden are important in relation to mental health recovery, few studies have been conducted on affiliate stigma and caregiving burden among family caregivers of persons with schizophrenia (FCPWS) in rural China. Aims: This study aimed to examine the severity level of affiliate stigma and caregiving burden, and identify the correlates among FCPWS in rural China. Methods: A mental health survey was conducted ( N  = 253 FCPWS) in Xinjin county, Sichuan province, China. Affiliate Self-Stigma Scale and Zarit Burden Interview Short Form were used. The regression analysis was performed to explore the correlates of stigma and burden. Results: Most FCPWS reported experiencing high and severe level of affiliate stigma (78.66%) and caregiving burden (95.26%). Family caregivers who were middle aged, unemployed, with high caregiving burden and low quality of life (QoL), showed more severe affiliate stigma. Family caregivers who were female, older, with low income, high affiliate stigma and low QoL, experienced greater caregiving burden. Conclusions: The large majority of FCPWS in rural China experienced severe affiliate stigma, caregiving burden and poor QoL. It is crucial to develop culture-specific anti-stigma interventions to reduce caregivers’ stigma and caregiving burden, and improve QoL. Specific risk factors of family caregivers’ affiliate stigma and caregiving burden should be considered for development of health policy and community-based mental health services.

Suggested Citation

  • Yi-Zhou Wang & Xian-Dong Meng & Tian-Ming Zhang & Xue Weng & Ming Li & Wei Luo & Yi Huang & Graham Thornicroft & Mao-Sheng Ran, 2023. "Affiliate stigma and caregiving burden among family caregivers of persons with schizophrenia in rural China," International Journal of Social Psychiatry, , vol. 69(4), pages 1024-1032, June.
    • Handle: RePEc:sae:socpsy:v:69:y:2023:i:4:p:1024-1032
    DOI: 10.1177/00207640231152206
    as

    Download full text from publisher

    File URL: https://journals.sagepub.com/doi/10.1177/00207640231152206
    Download Restriction: no
    File URL: https://libkey.io/10.1177/00207640231152206?utm_source=ideas
    LibKey link: if access is restricted and if your library uses this service, LibKey will redirect you to where you can use your library subscription to access this item
    ---><---

    References listed on IDEAS

    as
    1. Xu-Hong Li & Shu-Yu Deng & Tian-Ming Zhang & Yi-Zhou Wang & Dan-Nuo Wei & Irene Yin Ling Wong & Cecilia Lai-Wan Chan & Mao-Sheng Ran, 2022. "Affiliate stigma of mental illness in family caregivers of persons with mental illness in Hong Kong," International Journal of Social Psychiatry, , vol. 68(8), pages 1698-1707, December.
    2. Yu Yu & Zi-wei Liu & Bing-wei Tang & Mei Zhao & Xi-guang Liu & Shui-yuan Xiao, 2017. "Reported family burden of schizophrenia patients in rural China," PLOS ONE, Public Library of Science, vol. 12(6), pages 1-18, June.
    3. Man-Man Peng & Hong-Lin Chen & Tin Zhang & Yong-You Yao & Zi-Han Li & Lan Long & Qing-Qing Duan & Fu-Rong Lin & Ya Zen & Jia Chen & Siu-Man Ng & Cecilia Lai-Wan Chan & Mao-Sheng Ran, 2019. "Disease-related stressors of caregiving burden among different types of family caregivers of persons with schizophrenia in rural China," International Journal of Social Psychiatry, , vol. 65(7-8), pages 603-614, November.
    4. Man-Man Peng & Tian-Ming Zhang & Ke-Zhi Liu & Ke Gong & Chao-Hua Huang & Guang-Zhi Dai & Shi-Hui Hu & Fu-Rong Lin & Sherry Kit Wa Chan & Siuman Ng & Mao-Sheng Ran, 2019. "Perception of social support and psychotic symptoms among persons with schizophrenia: A strategy to lessen caregiver burden," International Journal of Social Psychiatry, , vol. 65(7-8), pages 548-557, November.
    5. F. Javier García-Castro & Ana Alba & María J. Blanca, 2020. "Association Between Character Strengths and Caregiver Burden: Hope as a Mediator," Journal of Happiness Studies, Springer, vol. 21(4), pages 1445-1462, April.
    6. Man-Man Peng & Jianli Xing & Xinfeng Tang & Qinglu Wu & Dannuo Wei & Mao-Sheng Ran, 2022. "Disease-Related Risk Factors for Caregiver Burden among Family Caregivers of Persons with Schizophrenia: A Systematic Review and Meta-Analysis," IJERPH, MDPI, vol. 19(3), pages 1-16, February.
    Full references (including those not matched with items on IDEAS)

    Citations

    Citations are extracted by the CitEc Project, subscribe to its RSS feed for this item.
    as


    Cited by:

    1. Ziyue Zhu & Michelle Yik, 2026. "The emotional trajectory of non-suicidal self-injury: sentiment analysis using social media data," Journal of Computational Social Science, Springer, vol. 9(1), pages 1-17, February.
    2. Lihua Wang & Huijie Lu & Yihua Jiang & Dianming Zhu & Ping Sun & Haiming Sun & Lanlan Wang & Wenhui Jiang & Yanru Wu & Zeping Xiao, 2025. "Implementation of the modified NAVIGATE program for early schizophrenia in Shanghai through the specialized hospital and community integration: A comparative study," International Journal of Social Psychiatry, , vol. 71(6), pages 1127-1140, September.

    Most related items

    These are the items that most often cite the same works as this one and are cited by the same works as this one.
    1. Chi-Hsuan Fan & Shih-Chieh Hsu & Fei-Hsiu Hsiao & Chia-Ming Chang & Chia-Yih Liu & Yu-Ming Lai & Yu-Ting Chen, 2021. "The Association of Social Support and Symptomatic Remission among Community-Dwelling Schizophrenia Patients: A Cross-Sectional Study," IJERPH, MDPI, vol. 18(8), pages 1-14, April.
    2. Man-Man Peng & Jianli Xing & Xinfeng Tang & Qinglu Wu & Dannuo Wei & Mao-Sheng Ran, 2022. "Disease-Related Risk Factors for Caregiver Burden among Family Caregivers of Persons with Schizophrenia: A Systematic Review and Meta-Analysis," IJERPH, MDPI, vol. 19(3), pages 1-16, February.
    3. Xia Zhang & Sizhe Wang & Ran Zhao & Nan Zhao & Shilong Tao & Haiyang Zhang & Baiqun Wu & Xiaojuan Xia & Hong Fan, 2024. "Analysis of factors associated with family disease burden and correlation with social support among family caregivers of patients with severe mental illnesses," International Journal of Social Psychiatry, , vol. 70(1), pages 218-226, February.
    4. Erdinç Kalayci & İmran Uzunaslan & Şerif Uzunaslan, 2023. "Caregiver burden experiences of caregivers of patients with schizophrenia: A qualitative inquiry," International Journal of Social Psychiatry, , vol. 69(3), pages 543-550, May.
    5. Xu-Hong Li & Tian-Ming Zhang & Yuen Yum Yau & Yi-Zhou Wang & Yin-Ling Irene Wong & Lawrence Yang & Xiao-li Tian & Cecilia Lai-Wan Chan & Mao-Sheng Ran, 2021. "Peer-to-peer contact, social support and self-stigma among people with severe mental illness in Hong Kong," International Journal of Social Psychiatry, , vol. 67(6), pages 622-631, September.
    6. Hua Ren & Qin Yang & Changjiu He & Jian Jiao & Zaiquan Dong, 2026. "Community management: An effective model to reduce medication discontinuation rate in patients with schizophrenia," PLOS ONE, Public Library of Science, vol. 21(1), pages 1-13, January.
    7. David Feligreras-Alcalá & María del Pilar Cazalilla-López & Rafael del-Pino-Casado & Antonio Frías-Osuna, 2021. "Validity and Reliability of the Caregiver Strain Index Scale in Women during the Puerperium in Spain," IJERPH, MDPI, vol. 18(7), pages 1-11, March.
    8. Man-Man Peng & Hong-Lin Chen & Tin Zhang & Yong-You Yao & Zi-Han Li & Lan Long & Qing-Qing Duan & Fu-Rong Lin & Ya Zen & Jia Chen & Siu-Man Ng & Cecilia Lai-Wan Chan & Mao-Sheng Ran, 2019. "Disease-related stressors of caregiving burden among different types of family caregivers of persons with schizophrenia in rural China," International Journal of Social Psychiatry, , vol. 65(7-8), pages 603-614, November.
    9. Lihua Wang & Huijie Lu & Yihua Jiang & Dianming Zhu & Ping Sun & Haiming Sun & Lanlan Wang & Wenhui Jiang & Yanru Wu & Zeping Xiao, 2025. "Implementation of the modified NAVIGATE program for early schizophrenia in Shanghai through the specialized hospital and community integration: A comparative study," International Journal of Social Psychiatry, , vol. 71(6), pages 1127-1140, September.
    10. Man-Man Peng & Tian-Ming Zhang & Ke-Zhi Liu & Ke Gong & Chao-Hua Huang & Guang-Zhi Dai & Shi-Hui Hu & Fu-Rong Lin & Sherry Kit Wa Chan & Siuman Ng & Mao-Sheng Ran, 2019. "Perception of social support and psychotic symptoms among persons with schizophrenia: A strategy to lessen caregiver burden," International Journal of Social Psychiatry, , vol. 65(7-8), pages 548-557, November.
    11. Yu, Yu & Liu, Zi-Wei & Li, Tong-Xin & Li, Yi-Lu & Xiao, Shui-Yuan & Tebes, Jacob Kraemer, 2020. "Test of the stress process model of family caregivers of people living with schizophrenia in China," Social Science & Medicine, Elsevier, vol. 259(C).
    12. Elaine Di Sarno & Isabel Napolitano & Mario Rodrigues Louzã, 2022. "Burden on caregivers of schizophrenia outpatients in Brazil: Relationship to symptomatology and functioning," International Journal of Social Psychiatry, , vol. 68(8), pages 1552-1560, December.
    13. Douglas José Nogueira & Ruth Minamisava & Sheila Araujo Teles & Sandra Maria Brunini de Souza & Jacqueline Andréia Bernardes Leão Cordeiro & Denise Soares de Cirqueira & Virginia Visconde Brasil & Ana, 2019. "Factors Associated with Marital Satisfaction and Quality of Life in Family Caregivers of Patients with Mental Disorders," IJERPH, MDPI, vol. 16(16), pages 1-11, August.
    14. Xiaxia Sun & Jingjing Ge & Hongdao Meng & Zhiguo Chen & Danping Liu, 2019. "The Influence of Social Support and Care Burden on Depression among Caregivers of Patients with Severe Mental Illness in Rural Areas of Sichuan, China," IJERPH, MDPI, vol. 16(11), pages 1-12, June.
    15. Tatjana Rajovic & Natasa Todorovic & Milutin Vracevic & Nina Rajovic & Andrija Pavlovic & Vedrana Pavlovic & Igor Grbic & Rosa Sapic & Slavica Krsmanovic & Marijana Vukmirovic & Tamara Stanisavljevic , 2021. "From Burden to Depressive Symptoms in Informal Caregivers during the COVID-19 Pandemic: A Path Analysis," IJERPH, MDPI, vol. 18(18), pages 1-13, September.
    16. Toshiyuki Marutani & Sotheara Chhim & Akihiro Nishio & Akiko Nosaki & Yasuko Fuse-Nagase, 2020. "Quality of life and its social determinants for patients with schizophrenia and family caregivers in Cambodia," PLOS ONE, Public Library of Science, vol. 15(3), pages 1-21, March.

    More about this item

    Keywords

    ;
    ;
    ;
    ;
    ;
    ;

    Statistics

    Access and download statistics

    Corrections

    All material on this site has been provided by the respective publishers and authors. You can help correct errors and omissions. When requesting a correction, please mention this item's handle: RePEc:sae:socpsy:v:69:y:2023:i:4:p:1024-1032. See general information about how to correct material in RePEc.

    If you have authored this item and are not yet registered with RePEc, we encourage you to do it here. This allows to link your profile to this item. It also allows you to accept potential citations to this item that we are uncertain about.

    If CitEc recognized a bibliographic reference but did not link an item in RePEc to it, you can help with this form .

    If you know of missing items citing this one, you can help us creating those links by adding the relevant references in the same way as above, for each refering item. If you are a registered author of this item, you may also want to check the "citations" tab in your RePEc Author Service profile, as there may be some citations waiting for confirmation.

    For technical questions regarding this item, or to correct its authors, title, abstract, bibliographic or download information, contact: SAGE Publications (email available below). General contact details of provider: .

    Please note that corrections may take a couple of weeks to filter through the various RePEc services.

    IDEAS is a RePEc service. RePEc uses bibliographic data supplied by the respective publishers.