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Quality of life of family primary caregivers of individuals with bipolar disorder and schizophrenia in south of Brazil

Author

Listed:
  • Mírian Cohen
  • Ana Flávia Barros da Silva Lima
  • Clarissa Pereira de Albuquerque Silva
  • Sandro René Pinto de Sousa Miguel
  • Marcelo Pio de Almeida Fleck

Abstract

Background: The process of deinstitutionalization of individuals with mental disorders (MD) brought greater family responsibility in terms of patient care. Aims: Evaluate the Quality of Life (QoL) and its associated factors of primary caregivers of bipolar and schizophrenic subjects. Methods: A cross-sectional survey was conducted from 2012 to 2015 with 125 caregivers at an outpatient service of a teaching hospital in the South of Brazil. QoL instruments (WHOQOL-Bref, SF-36), questionnaires regarding socio-demographic, clinical data and depressive symptoms (BDI) were applied. Results: Caregivers of schizophrenic individuals presented lower QoL scores than caregivers of bipolar individuals, with moderate effect in physical, and social domains of WHOQOL-Bref, and in physical functioning, role-physical, and role-emotional domains of SF-36. QoL scores of caregivers were lower when compared with the normative data of the Brazilian population. The factors associated with lower QoL scores were: patient diagnosis of schizophrenia, female gender, presence of clinical disease and presence of depressive symptoms in the caregiver. Conclusions: Caregivers of patients with schizophrenia or bipolar disorder present a significant impairment in their QoL when compared with the general population, highlighting the relevance of developing support programs in the mental health services that include these caregivers.

Suggested Citation

  • Mírian Cohen & Ana Flávia Barros da Silva Lima & Clarissa Pereira de Albuquerque Silva & Sandro René Pinto de Sousa Miguel & Marcelo Pio de Almeida Fleck, 2022. "Quality of life of family primary caregivers of individuals with bipolar disorder and schizophrenia in south of Brazil," International Journal of Social Psychiatry, , vol. 68(4), pages 818-826, June.
    • Handle: RePEc:sae:socpsy:v:68:y:2022:i:4:p:818-826
    DOI: 10.1177/00207640211006737
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    References listed on IDEAS

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    1. Chiu‐Yueh Hsiao & Chun‐Te Lee & Huei‐Lan Lu & Yun‐Fang Tsai, 2017. "Living with schizophrenia: Health‐related quality of life among primary family caregivers," Journal of Clinical Nursing, John Wiley & Sons, vol. 26(23-24), pages 5151-5159, December.
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