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A Longitudinal Study of the Association of Awareness of Disease Incurability with Patient-Reported Outcomes in Heart Failure

Author

Listed:
  • Jia Jia Lee

    (Lien Centre for Palliative Care, Signature Programme in Health Services and System Research, Duke-NUS Medical School, Singapore)

  • Chetna Malhotra

    (Lien Centre for Palliative Care, Signature Programme in Health Services and System Research, Duke-NUS Medical School, Singapore)

  • Kheng Leng David Sim

    (National Heart Centre Singapore, Singapore
    Singapore General Hospital, Singapore)

  • Khung Keong Yeo

    (National Heart Centre Singapore, Singapore
    Singapore General Hospital, Singapore)

  • Eric Finkelstein

    (Lien Centre for Palliative Care, Signature Programme in Health Services and System Research, Duke-NUS Medical School, Singapore
    Duke Global Health Institute, Duke University, Durham, NC, USA)

  • Semra Ozdemir

    (Lien Centre for Palliative Care, Signature Programme in Health Services and System Research, Duke-NUS Medical School, Singapore
    Department of Population Health Science, Duke Clinical Research Institute, Durham, NC, USA)

Abstract

Objectives To examine awareness of disease incurability among patients with heart failure over 24 mo and its associations with patient characteristics and patient-reported outcomes (distress, emotional, and spiritual well-being). Methods This study analyzed 24-mo data from a prospective cohort study of 251 patients with heart failure (New York Heart Association class III/IV) recruited from inpatient wards in Singapore General Hospital and National Heart Centre Singapore. Patients were asked to report if their doctor told them they were receiving treatment to cure their condition. “No†responses were categorized as being aware of disease incurability, while “Yes†and “Uncertain†were categorized as being unaware and being uncertain about disease incurability, respectively. We used mixed-effects multinomial logistic regression to investigate the associations between awareness of disease incurability and patient characteristics and mixed-effects linear regressions to investigate associations with patient outcomes. Results The percentage of patients who were aware of disease incurability increased from 51.6% at baseline to 76.4% at 24-mo follow-up ( P

Suggested Citation

  • Jia Jia Lee & Chetna Malhotra & Kheng Leng David Sim & Khung Keong Yeo & Eric Finkelstein & Semra Ozdemir, 2025. "A Longitudinal Study of the Association of Awareness of Disease Incurability with Patient-Reported Outcomes in Heart Failure," Medical Decision Making, , vol. 45(1), pages 97-108, January.
    • Handle: RePEc:sae:medema:v:45:y:2025:i:1:p:97-108
    DOI: 10.1177/0272989X241297694
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    References listed on IDEAS

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    1. Semra Ozdemir & Jia Jia Lee & Khung Keong Yeo & Kheng Leng David Sim & Eric Andrew Finkelstein & Chetna Malhotra, 2023. "A Prospective Cohort Study of Medical Decision-Making Roles and Their Associations with Patient Characteristics and Patient-Reported Outcomes among Patients with Heart Failure," Medical Decision Making, , vol. 43(7-8), pages 863-874, October.
    2. Semra Ozdemir & Isha Chaudhry & Si Ning Germaine Tan & Irene Teo & Chetna Malhotra & Rahul Malhotra & Eric Andrew Finkelstein, 2023. "Variation in Patient-Reported Decision-Making Roles in the Last Year of Life among Patients with Metastatic Cancer: A Longitudinal Study," Medical Decision Making, , vol. 43(2), pages 203-213, February.
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