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Factors associated with caregiver burden of toileting assistance at home versus in a nursing home: A cross-sectional study

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  • Miho Shogenji
  • Mikako Yoshida
  • Takahiro Kakuchi
  • Kohei Hirako

Abstract

This study aimed to identify differences in caregiver burden related to toileting assistance, and examine the factors associated with the most burdensome aspects of providing toileting assistance. In 2019, a self-administered postal survey was conducted with 743 caregivers of older adults who received subsidies for continence products in Komatsu City, Japan. Both family caregivers and nursing home staff answered questions regarding older adults’ urinary/fecal symptoms, toileting assistance, and perceived caregiver burden. Older adults living at home had less need for toileting assistance than those in nursing homes. However, family caregivers experienced more burden than nursing home staff. The most frequent physical burden associated with toileting assistance for family caregivers was urinary/fecal leakage from absorbent incontinence products. This burden was linked to family caregivers providing care at home, using a combination of urinary pads and diapers, and symptoms that caused burdens on caregivers including urinary/fecal incontinence, nocturia, and no desire to urinate. These results suggest that leakage caused by the inappropriate use of urinary pads combined with diapers is a source of caregiver burden. Continence care experts should provide guidance to family caregivers of older adults, particularly those who are underweight and frail, regarding the selection and fitting of absorbent incontinence products.

Suggested Citation

  • Miho Shogenji & Mikako Yoshida & Takahiro Kakuchi & Kohei Hirako, 2024. "Factors associated with caregiver burden of toileting assistance at home versus in a nursing home: A cross-sectional study," PLOS ONE, Public Library of Science, vol. 19(3), pages 1-11, March.
    • Handle: RePEc:plo:pone00:0299721
    DOI: 10.1371/journal.pone.0299721
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    References listed on IDEAS

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    1. Dianne Gove & Anthony Scerri & Jean Georges & Paul van Houten & Nicole Huige & Daniela Hayder‐Beichel & Kai Leichsenring & Vikky Christina Morris, 2017. "Continence care for people with dementia living at home in Europe: a review of literature with a focus on problems and challenges," Journal of Clinical Nursing, John Wiley & Sons, vol. 26(3-4), pages 356-365, February.
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