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Non-professional caregiver burden is associated with the severity of patients’ cognitive impairment

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  • Christopher M Black
  • Craig W Ritchie
  • Rezaul K Khandker
  • Robert Wood
  • Eddie Jones
  • Xiaohan Hu
  • Baishali M Ambegaonkar

Abstract

Background/Objectives: To analyse the relationship between caregiver burden and severity of patients’ cognitive impairment. Design: Data were drawn from the cross-sectional 2015/2016 Adelphi Real World Dementia Disease-Specific Programme. Setting: This research was multi-national and studied physicians and their consulting patients with cognitive impairment. Participants: 1,201 caregivers completed self-assessment forms. Measurements: Validated instruments of caregiver wellbeing and burden (EQ-5D-3L questionnaire, EQ-VAS, Zarit Burden Interview, and Work Productivity and Activity Impairment questionnaire) and number of caregiver hours were analysed by severity of patients’ cognitive impairment, categorised according to the Mini-Mental State Examination. Data were analysed using Spearman’s rank correlation coefficients and ordinary least squares regression models, to compare outcomes between caregivers of patients with prodromal, mild, moderate, and severe dementia. Results: The majority of caregivers were female (69.1%), lived with the patient they cared for (75.8%), and only approximately one third (28.3%) were in part- or full-time employment. There were statistically significant (p

Suggested Citation

  • Christopher M Black & Craig W Ritchie & Rezaul K Khandker & Robert Wood & Eddie Jones & Xiaohan Hu & Baishali M Ambegaonkar, 2018. "Non-professional caregiver burden is associated with the severity of patients’ cognitive impairment," PLOS ONE, Public Library of Science, vol. 13(12), pages 1-14, December.
    • Handle: RePEc:plo:pone00:0204110
    DOI: 10.1371/journal.pone.0204110
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