IDEAS home Printed from https://ideas.repec.org/a/plo/pone00/0157042.html
   My bibliography  Save this article

Ethics in Community-Based Research with Vulnerable Children: Perspectives from Rwanda

Author

Listed:
  • Theresa Betancourt
  • Mary C Smith Fawzi
  • Anne Stevenson
  • Fredrick Kanyanganzi
  • Catherine Kirk
  • Lauren Ng
  • Christina Mushashi
  • Justin I Bizimana
  • William Beardslee
  • Giuseppe Raviola
  • Stephanie Smith
  • Yvonne Kayiteshonga
  • Agnes Binagwaho

Abstract

A “risk of harm” protocol to identify youth in need of immediate emergency assistance in a study on mental health and HIV in Rwanda among 680 youth ages 10–17 is described. Cases are presented that describe the experience in using this protocol to ensure safety of participants, with ethical and logistical challenges considered. Among the population of the study, 3.2% were deemed “risk of harm.” The most prevalent presenting problem was non-fatal suicidal behavior (91% of risk of harm cases), with 36% having a history of a reported previous attempt. Challenges included: acute food insecurity/significant poverty; lack of support/adequate supervision from family members; family violence; alcohol abuse; and HIV-related stigma. Development of a “risk of harm” protocol and collaboration between study staff, community leadership, health authorities, and health workers are critical to ensuring participants’ safety in research among vulnerable populations.

Suggested Citation

  • Theresa Betancourt & Mary C Smith Fawzi & Anne Stevenson & Fredrick Kanyanganzi & Catherine Kirk & Lauren Ng & Christina Mushashi & Justin I Bizimana & William Beardslee & Giuseppe Raviola & Stephanie, 2016. "Ethics in Community-Based Research with Vulnerable Children: Perspectives from Rwanda," PLOS ONE, Public Library of Science, vol. 11(6), pages 1-10, June.
  • Handle: RePEc:plo:pone00:0157042
    DOI: 10.1371/journal.pone.0157042
    as

    Download full text from publisher

    File URL: https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0157042
    Download Restriction: no

    File URL: https://journals.plos.org/plosone/article/file?id=10.1371/journal.pone.0157042&type=printable
    Download Restriction: no

    File URL: https://libkey.io/10.1371/journal.pone.0157042?utm_source=ideas
    LibKey link: if access is restricted and if your library uses this service, LibKey will redirect you to where you can use your library subscription to access this item
    ---><---

    References listed on IDEAS

    as
    1. Binagwaho, Agnes & Hartwig, Renate & Ingeri, Denyse & Makaka, Andrew, 2012. "Mutual health insurance and its contribution to improving child health in Rwanda," Passauer Diskussionspapiere, Volkswirtschaftliche Reihe V-66-12, University of Passau, Faculty of Business and Economics.
    Full references (including those not matched with items on IDEAS)

    Most related items

    These are the items that most often cite the same works as this one and are cited by the same works as this one.
    1. Shimeles Abebe & Andinet Woldemichael, 2015. "Working Paper 225 - Measuring the Impact of Micro-Health Insurance on Healthcare Utilization: A Bayesian Potential Outcomes Approach," Working Paper Series 2166, African Development Bank.
    2. World Bank Group, 2015. "Rwanda Poverty Assessment," World Bank Publications - Reports 22970, The World Bank Group.
    3. Lisa Bagnoli, 2017. "Does National Health Insurance Improve Children's Health ?National and Regional Evidence from Ghana," Working Papers ECARES ECARES 2017-03, ULB -- Universite Libre de Bruxelles.

    More about this item

    Statistics

    Access and download statistics

    Corrections

    All material on this site has been provided by the respective publishers and authors. You can help correct errors and omissions. When requesting a correction, please mention this item's handle: RePEc:plo:pone00:0157042. See general information about how to correct material in RePEc.

    For technical questions regarding this item, or to correct its authors, title, abstract, bibliographic or download information, contact: . General contact details of provider: https://journals.plos.org/plosone/ .

    If you have authored this item and are not yet registered with RePEc, we encourage you to do it here. This allows to link your profile to this item. It also allows you to accept potential citations to this item that we are uncertain about.

    If CitEc recognized a bibliographic reference but did not link an item in RePEc to it, you can help with this form .

    If you know of missing items citing this one, you can help us creating those links by adding the relevant references in the same way as above, for each refering item. If you are a registered author of this item, you may also want to check the "citations" tab in your RePEc Author Service profile, as there may be some citations waiting for confirmation.

    For technical questions regarding this item, or to correct its authors, title, abstract, bibliographic or download information, contact: plosone (email available below). General contact details of provider: https://journals.plos.org/plosone/ .

    Please note that corrections may take a couple of weeks to filter through the various RePEc services.

    IDEAS is a RePEc service hosted by the Research Division of the Federal Reserve Bank of St. Louis . RePEc uses bibliographic data supplied by the respective publishers.