IDEAS home Printed from https://ideas.repec.org/a/gam/jijerp/v22y2025i7p1096-d1698941.html
   My bibliography  Save this article

Achieving Family-Integrated Care for Older Patients with Major Neurodegenerative and Mental Health Conditions: A Systematic Review of Intervention Characteristics and Outcomes

Author

Listed:
  • Shruti Jindal

    (Department of Psychology, Jamia Millia Islamia University, Jamia Nagar, New Delhi 110025, India)

  • Mohammad Hamiduzzaman

    (Faculty of Medicine and Health, The University of Sydney, Sydney, NSW 2006, Australia)

  • Harry Gaffney

    (Faculty of Medicine and Health, The University of Sydney, Sydney, NSW 2006, Australia)

  • Noore Siddiquee

    (Faculty of Arts, University of Melbourne, Melbourne, VIC 3010, Australia)

  • Helen McLaren

    (School of Allied Health, Australian Catholic University, Melbourne, VIC 3065, Australia)

Abstract

National and international aged care frameworks recommend family-integrated care to enhance care quality and outcomes, supported by evidence demonstrating improvements in patient and clinician experiences. Yet uncertainty remains about how to integrate family carers effectively in diverse healthcare models and settings for neurodegenerative and mental health conditions. A systematic integrative review was conducted to answer two research questions: how do the studies describe the integration of family carers in health services design and delivery for older patients with neurodegenerative and mental health conditions? And what is the evidence for family-integrated care models impacting the health and wellbeing of these older patients? Structured and iterative searches of five databases (CINAHL, Medline (Ovid), Web of Science, PsycINFO, and ProQuest) and the Google Scholar search engine identified 2271 records. A Covidence screening process resulted in 14 studies for review, comprising randomised controlled trials, mixed methods studies, qualitative studies, and quasi-experimental designs. The following four themes emerged from the evidence synthesis: (1) family participation in service delivery, (2) health and wellbeing outcomes, (3) satisfaction with care, and (4) service dynamics in enabling family-integrated care successfully. This review highlights that while family-integrated care models contribute to positive health and wellbeing outcomes for older patients with neurodegenerative and mental health conditions, challenges remain for implementation due to the extent and variability in integration strategies, a lack of rigorous evaluation, and an absence of standardised frameworks.

Suggested Citation

  • Shruti Jindal & Mohammad Hamiduzzaman & Harry Gaffney & Noore Siddiquee & Helen McLaren, 2025. "Achieving Family-Integrated Care for Older Patients with Major Neurodegenerative and Mental Health Conditions: A Systematic Review of Intervention Characteristics and Outcomes," IJERPH, MDPI, vol. 22(7), pages 1-26, July.
    • Handle: RePEc:gam:jijerp:v:22:y:2025:i:7:p:1096-:d:1698941
    as

    Download full text from publisher

    File URL: https://www.mdpi.com/1660-4601/22/7/1096/pdf
    Download Restriction: no
    File URL: https://www.mdpi.com/1660-4601/22/7/1096/
    Download Restriction: no
    ---><---

    References listed on IDEAS

    as
    1. Thin Nyein Nyein Aung & Myo Nyein Aung & Saiyud Moolphate & Yuka Koyanagi & Siripen Supakankunti & Motoyuki Yuasa, 2021. "Caregiver Burden and Associated Factors for the Respite Care Needs among the Family Caregivers of Community Dwelling Senior Citizens in Chiang Mai, Northern Thailand," IJERPH, MDPI, vol. 18(11), pages 1-15, May.
    2. Robert T Woods & Martin Orrell & Errollyn Bruce & Rhiannon T Edwards & Zoe Hoare & Barry Hounsome & John Keady & Esme Moniz-Cook & Vasiliki Orgeta & Janice Rees & Ian Russell, 2016. "REMCARE: Pragmatic Multi-Centre Randomised Trial of Reminiscence Groups for People with Dementia and their Family Carers: Effectiveness and Economic Analysis," PLOS ONE, Public Library of Science, vol. 11(4), pages 1-19, April.
    Full references (including those not matched with items on IDEAS)

    Most related items

    These are the items that most often cite the same works as this one and are cited by the same works as this one.
    1. Thin Nyein Nyein Aung & Myo Nyein Aung & Saiyud Moolphate & Yuka Koyanagi & Mariko Ichikawa & Siripen Supakankunti & Motoyuki Yuasa, 2021. "Estimating Service Demand for Intermediary Care at a Community Integrated Intermediary Care Center among Family Caregivers of Older Adults Residing in Chiang Mai, Northern Thailand," IJERPH, MDPI, vol. 18(11), pages 1-14, June.
    2. Wilfried Guets & Hareth Al-Janabi & Lionel Perrier, 2020. "Cost–Utility Analyses of Interventions for Informal Carers: A Systematic and Critical Review," PharmacoEconomics, Springer, vol. 38(4), pages 341-356, April.
    3. Mo Hu & Zhiyuan Hao & Yinrui Yin, 2022. "Promoting the Integration of Elderly Healthcare and Elderly Nursing: Evidence from the Chinese Government," IJERPH, MDPI, vol. 19(24), pages 1-18, December.
    4. Thin Nyein Nyein Aung & Saiyud Moolphate & Yuka Koyanagi & Chaisiri Angkurawaranon & Siripen Supakankunti & Motoyuki Yuasa & Myo Nyein Aung, 2022. "Depression and Associated Factors among Community-Dwelling Thai Older Adults in Northern Thailand: The Relationship between History of Fall and Geriatric Depression," IJERPH, MDPI, vol. 19(17), pages 1-10, August.
    5. Kathrin Steinbeisser & Larissa Schwarzkopf & Elmar Graessel & Hildegard Seidl, 2020. "Cost-effectiveness of a non-pharmacological treatment vs. “care as usual” in day care centers for community-dwelling older people with cognitive impairment: results from the German randomized controll," The European Journal of Health Economics, Springer;Deutsche Gesellschaft für Gesundheitsökonomie (DGGÖ), vol. 21(6), pages 825-844, August.

    More about this item

    Keywords

    ;
    ;
    ;
    ;
    ;

    Statistics

    Access and download statistics

    Corrections

    All material on this site has been provided by the respective publishers and authors. You can help correct errors and omissions. When requesting a correction, please mention this item's handle: RePEc:gam:jijerp:v:22:y:2025:i:7:p:1096-:d:1698941. See general information about how to correct material in RePEc.

    If you have authored this item and are not yet registered with RePEc, we encourage you to do it here. This allows to link your profile to this item. It also allows you to accept potential citations to this item that we are uncertain about.

    If CitEc recognized a bibliographic reference but did not link an item in RePEc to it, you can help with this form .

    If you know of missing items citing this one, you can help us creating those links by adding the relevant references in the same way as above, for each refering item. If you are a registered author of this item, you may also want to check the "citations" tab in your RePEc Author Service profile, as there may be some citations waiting for confirmation.

    For technical questions regarding this item, or to correct its authors, title, abstract, bibliographic or download information, contact: MDPI Indexing Manager (email available below). General contact details of provider: https://www.mdpi.com .

    Please note that corrections may take a couple of weeks to filter through the various RePEc services.

    IDEAS is a RePEc service. RePEc uses bibliographic data supplied by the respective publishers.