IDEAS home Printed from https://ideas.repec.org/a/gam/jijerp/v22y2025i5p688-d1643179.html
   My bibliography  Save this article

What Guides Organizations’ Current Dementia-Related Practices Across Four Canadian Provinces?

Author

Listed:
  • Maria Baranowski

    (Department of Community Health Sciences, Rady Faculty of Health Sciences, Max Rady College of Medicine, University of Manitoba, Winnipeg, MB R3T 2N2, Canada
    These authors contributed equally to this work.)

  • Nancy Jokinen

    (School of Social Work, University of Northern British Columbia, Prince George, BC V2N 4Z9, Canada
    NTG Canadian Consortium c/o Reena, 927 Clark Ave West, Thornhill, ON L4J 8G6, Canada
    These authors contributed equally to this work.)

  • Leslie Udell

    (NTG Canadian Consortium c/o Reena, 927 Clark Ave West, Thornhill, ON L4J 8G6, Canada
    L Udell Consulting, 95 Point West Dr., Winnipeg, MB R3T 5J5, Canada
    These authors contributed equally to this work.)

  • Sandy Stemp

    (NTG Canadian Consortium c/o Reena, 927 Clark Ave West, Thornhill, ON L4J 8G6, Canada
    Reena, 927 Clark Ave West, Thornhill, ON L4J 8G6, Canada
    These authors contributed equally to this work.)

  • Tracey Berman

    (Reena, 927 Clark Ave West, Thornhill, ON L4J 8G6, Canada
    These authors contributed equally to this work.)

  • Shahin Shooshtari

    (Department of Community Health Sciences, Rady Faculty of Health Sciences, Max Rady College of Medicine, University of Manitoba, Winnipeg, MB R3T 2N2, Canada
    NTG Canadian Consortium c/o Reena, 927 Clark Ave West, Thornhill, ON L4J 8G6, Canada
    These authors contributed equally to this work.)

Abstract

We conducted a survey to learn what guides current dementia-related practice to support community-dwelling adults with intellectual and developmental disabilities who may be experiencing dementia in Canada. We invited organizations working in health, disability, or senior sectors in 4 Canadian provinces to complete an online cross-sectional survey between April and July 2023. A total of 173 people completed the survey, representing 125 unique organizations, and nearly half resided in Ontario. The most common support and services provided to adults with intellectual and developmental disabilities and their families were related to residential care, day programming, and group home living. Half of our survey respondents reported that they followed dementia-related practice guidelines. The most common guideline followed and early detection tool used were from the National Task Group on Intellectual Disabilities and Dementia Practices and the National Task Group-Early Detection and Screen for Dementia, respectively. Lack of awareness about guidelines and detection tools, challenges to implement the same, and organizational needs for future training and service provision were identified. Commitment to resources to monitor adults with IDD who may be experiencing dementia is recommended to provide meaningful support and service to them and their families.

Suggested Citation

  • Maria Baranowski & Nancy Jokinen & Leslie Udell & Sandy Stemp & Tracey Berman & Shahin Shooshtari, 2025. "What Guides Organizations’ Current Dementia-Related Practices Across Four Canadian Provinces?," IJERPH, MDPI, vol. 22(5), pages 1-10, April.
    • Handle: RePEc:gam:jijerp:v:22:y:2025:i:5:p:688-:d:1643179
    as

    Download full text from publisher

    File URL: https://www.mdpi.com/1660-4601/22/5/688/pdf
    Download Restriction: no
    File URL: https://www.mdpi.com/1660-4601/22/5/688/
    Download Restriction: no
    ---><---

    Corrections

    All material on this site has been provided by the respective publishers and authors. You can help correct errors and omissions. When requesting a correction, please mention this item's handle: RePEc:gam:jijerp:v:22:y:2025:i:5:p:688-:d:1643179. See general information about how to correct material in RePEc.

    If you have authored this item and are not yet registered with RePEc, we encourage you to do it here. This allows to link your profile to this item. It also allows you to accept potential citations to this item that we are uncertain about.

    We have no bibliographic references for this item. You can help adding them by using this form .

    If you know of missing items citing this one, you can help us creating those links by adding the relevant references in the same way as above, for each refering item. If you are a registered author of this item, you may also want to check the "citations" tab in your RePEc Author Service profile, as there may be some citations waiting for confirmation.

    For technical questions regarding this item, or to correct its authors, title, abstract, bibliographic or download information, contact: MDPI Indexing Manager (email available below). General contact details of provider: https://www.mdpi.com .

    Please note that corrections may take a couple of weeks to filter through the various RePEc services.

    IDEAS is a RePEc service. RePEc uses bibliographic data supplied by the respective publishers.