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Accessibility to Occupational Therapy Services for Hereditary Transthyretin Amyloidosis

Author

Listed:
  • Aina Gayà-Barroso

    (Internal Medicine Department, Son Llàtzer University Hospital, 07198 Palma de Mallorca, Spain
    Health Research Institute of the Balearic Islands (IdISBa), Son Llàtzer University Hospital, 07198 Palma de Mallorca, Spain)

  • Juan González-Moreno

    (Internal Medicine Department, Son Llàtzer University Hospital, 07198 Palma de Mallorca, Spain
    Health Research Institute of the Balearic Islands (IdISBa), Son Llàtzer University Hospital, 07198 Palma de Mallorca, Spain)

  • Adrián Rodríguez

    (Internal Medicine Department, Son Llàtzer University Hospital, 07198 Palma de Mallorca, Spain
    Health Research Institute of the Balearic Islands (IdISBa), Son Llàtzer University Hospital, 07198 Palma de Mallorca, Spain)

  • Tomás Ripoll-Vera

    (Health Research Institute of the Balearic Islands (IdISBa), Son Llàtzer University Hospital, 07198 Palma de Mallorca, Spain
    Cardiology Department, Son Llàtzer University Hospital, 07198 Palma de Mallorca, Spain)

  • Inés Losada-López

    (Internal Medicine Department, Son Llàtzer University Hospital, 07198 Palma de Mallorca, Spain
    Health Research Institute of the Balearic Islands (IdISBa), Son Llàtzer University Hospital, 07198 Palma de Mallorca, Spain)

  • Margarita Gili

    (Department of Psychology, Spain Health Research Institute of the Balearic Islands (IdISBa), University of Balearic Islands, 07122 Palma de Mallorca, Spain)

  • Eugenia Cisneros-Barroso

    (Internal Medicine Department, Son Llàtzer University Hospital, 07198 Palma de Mallorca, Spain
    Health Research Institute of the Balearic Islands (IdISBa), Son Llàtzer University Hospital, 07198 Palma de Mallorca, Spain)

Abstract

This study was designed to investigate the global utilization of occupational therapy (OT) services by patients with hereditary transthyretin amyloidosis (ATTRv) in Spain. The main objective was to find out whether these patients have access to OT services and the types of interventions being offered to them, together with their satisfaction and real benefits as users. We developed an online questionnaire which was distributed to patients with ATTRv in Spain through patient associations. Seventy-four patients with a diagnosis of ATTRv residing in Spain participated in the study. Thirteen had already used OT services at least once, felt that OT interventions improved their quality of life, would recommend OT services to others, and would return to see an occupational therapist. However, 61 had never used this type of service before. Of these, 35 knew what OT is and 13 declared that they considered that OT interventions in ATTRv could be positive for them. The results suggest that the use of OT services by ATTRv patients is low, mainly because of the lack of information about the occupational profile of individuals with this disease. The low response rate obtained for the survey limits generalization, and thus further research to confirm these preliminary findings is needed.

Suggested Citation

  • Aina Gayà-Barroso & Juan González-Moreno & Adrián Rodríguez & Tomás Ripoll-Vera & Inés Losada-López & Margarita Gili & Eugenia Cisneros-Barroso, 2022. "Accessibility to Occupational Therapy Services for Hereditary Transthyretin Amyloidosis," IJERPH, MDPI, vol. 19(8), pages 1-8, April.
    • Handle: RePEc:gam:jijerp:v:19:y:2022:i:8:p:4464-:d:789064
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    Cited by:

    1. Aina Gayà-Barroso & Juan González-Moreno & Adrián Rodríguez & Tomás Ripoll-Vera & Inés Losada-López & Margarita Gili & Milena Paneque & Eugenia Cisneros-Barroso, 2022. "Establishing Occupational Therapy Needs: A Semi-Structured Interview with Hereditary Transthyretin Amyloidosis Patients," IJERPH, MDPI, vol. 19(18), pages 1-10, September.

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