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Exploring Barriers to Participation in Pediatric Rehabilitation: Voices of Children and Young People with Disabilities, Parents, and Professionals

Author

Listed:
  • Britta Teleman

    (School of Health and Welfare, Halmstad University, SE-30118 Halmstad, Sweden)

  • Elin Vinblad

    (Child and Young Rehabilitation Services Kristianstad, Region Skåne, SE-29133 Kristianstad, Sweden)

  • Petra Svedberg

    (School of Health and Welfare, Halmstad University, SE-30118 Halmstad, Sweden)

  • Jens M. Nygren

    (School of Health and Welfare, Halmstad University, SE-30118 Halmstad, Sweden)

  • Ingrid Larsson

    (School of Health and Welfare, Halmstad University, SE-30118 Halmstad, Sweden)

Abstract

In order to develop suitable support for participation in pediatric rehabilitation, it is important to understand what barriers need to be bridged from the perspectives of both children and adults. The aim of this study was to explore barriers to participation in pediatric rehabilitation services, according to children and young people with disabilities, parents to children with disabilities, and professionals. Data was collected in individual interviews ( n = 48) and focus groups ( n = 8), which were analyzed with qualitative content analysis to extract barriers to participation. Identified barriers include three categories: (1) insufficient access (controlling adults, adult-centered healthcare); (2) insufficient trust (low level of trust in adults, low level of trust in children, low self-confidence in children); and (3) insufficient involvement (norms of non-participation, low level of commitment in children). The participant groups had divergent conceptions of where and how barriers originate, and for what situations child participation is appropriate. Adult-centered healthcare and parental presence were described as barriers by all participant groups. Understanding differences in the perceptions of barriers and their origins is crucial when striving to change norms of non-participation. The findings can inform the development of new support tools and participatory formats in pediatric rehabilitation.

Suggested Citation

  • Britta Teleman & Elin Vinblad & Petra Svedberg & Jens M. Nygren & Ingrid Larsson, 2021. "Exploring Barriers to Participation in Pediatric Rehabilitation: Voices of Children and Young People with Disabilities, Parents, and Professionals," IJERPH, MDPI, vol. 18(19), pages 1-13, September.
    • Handle: RePEc:gam:jijerp:v:18:y:2021:i:19:p:10119-:d:643715
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    References listed on IDEAS

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    1. Carina Sjöberg & Petra Svedberg & Jens M Nygren & Ing‐Marie Carlsson, 2017. "Participation in paediatric perioperative care: ‘what it means for parents’," Journal of Clinical Nursing, John Wiley & Sons, vol. 26(23-24), pages 4246-4254, December.
    2. Ya-Tzu Liao & Ai-Wen Hwang & Hua-Fang Liao & Mats Granlund & Lin-Ju Kang, 2019. "Understanding the Participation in Home, School, and Community Activities Reported by Children with Disabilities and Their Parents: A Pilot Study," IJERPH, MDPI, vol. 16(12), pages 1-14, June.
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    Cited by:

    1. Lisa Kronsell & Petra Svedberg & Jens Nygren & Ingrid Larsson, 2021. "Parents’ Perceptions of the Value of Children’s Participation in Pediatric Rehabilitation Services: A Phenomenographic Study," IJERPH, MDPI, vol. 18(20), pages 1-16, October.

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