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A Delphi Study on the Healthcare Needs of Patients with Type 1 Diabetes during the Transition from Adolescence to Adulthood: Consensus among Patients, Primary Caregivers, and Healthcare Providers

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  • Yuehtao Chiang

    (School of Nursing, College of Medicine, Chang-Gung University, Taoyuan 33302, Taiwan
    Division of Pediatric Endocrinology & Genetics, Department of Pediatrics, Chang-Gung Memorial Hospital, Taoyuan 33305, Taiwan
    Yuehtao Chiang and Fusung Lo contributed equally to this article.)

  • Peikwei Tsay

    (Department of Public Health and Center of Biostatistics, College of Medicine, Chang-Gung University, Taoyuan 33302, Taiwan)

  • Chiwen Chen

    (College of Nursing, National Yang Ming Chiao Tung University, Taipei 11221, Taiwan)

  • Chienlung Hsu

    (Department of Information Management, Chang-Gung University, Taoyuan 33302, Taiwan
    Graduate Institute of Business and Management, Chang Gung University, Taoyuan 33302, Taiwan
    Healthy Aging Research Center, Chang Gung University, Taoyuan 33302, Taiwan
    Department of Visual Communication Design, Ming Chi University of Technology, New Taipei 24301, Taiwan)

  • Hsingyi Yu

    (School of Nursing, College of Medicine, Chang-Gung University, Taoyuan 33302, Taiwan
    Department of Nursing, Chang-Gung Memorial Hospital, Taoyuan 33305, Taiwan)

  • Chiwen Chang

    (School of Nursing, College of Medicine, Chang-Gung University, Taoyuan 33302, Taiwan
    Division of Pediatric Endocrinology & Genetics, Department of Pediatrics, Chang-Gung Memorial Hospital, Taoyuan 33305, Taiwan)

  • Fusung Lo

    (Division of Pediatric Endocrinology & Genetics, Department of Pediatrics, Chang-Gung Memorial Hospital, Taoyuan 33305, Taiwan
    College of Medicine, Chung-Gung University, Taoyuan 33302, Taiwan
    Yuehtao Chiang and Fusung Lo contributed equally to this article.)

  • Philip Moons

    (Department of Public Health and Primary Care, KU Leuven-University of Leuven, 3000 Leuven, Belgium
    Institute of Health and Care Sciences, University of Gothenburg, 40530 Gothenburg, Sweden
    Department of Paediatrics and Child Health, University of Cape Town, Cape Town 7701, South Africa)

Abstract

Patients with type 1 diabetes mellitus at the age of 16–25 face the challenges of the deterioration of disease control and accelerated exacerbation. Providing interventions that meet patient’s healthcare needs can reduce the impact and improve health outcome. The purpose of this study was to identify the healthcare needs of patients with type 1 diabetes during the adolescence to adulthood transition period from the perspectives of patients, parents and healthcare providers. A two-round Delphi study was conducted among 48 participants, and included 17 patients, 16 primary caregivers, and 15 healthcare providers. The central tendency and dispersion were computed to establish a consensus. Seventy-one healthcare needs were identified across five dimensions—technology, external support, internal support, management, and healthcare—and 56 were considered as important healthcare needs and with a moderate to high level of agreement. Meanwhile, patients, primary caregivers, and healthcare providers were found to display significantly different opinions ( p < 0.05) for 23 healthcare needs. This study concluded the consensus of the healthcare needs of patients with type 1 diabetes mellitus during the adolescence to adulthood transition period from a systematic investigation. The findings can serve as reference for developing transitional intervention strategies.

Suggested Citation

  • Yuehtao Chiang & Peikwei Tsay & Chiwen Chen & Chienlung Hsu & Hsingyi Yu & Chiwen Chang & Fusung Lo & Philip Moons, 2021. "A Delphi Study on the Healthcare Needs of Patients with Type 1 Diabetes during the Transition from Adolescence to Adulthood: Consensus among Patients, Primary Caregivers, and Healthcare Providers," IJERPH, MDPI, vol. 18(13), pages 1-15, July.
    • Handle: RePEc:gam:jijerp:v:18:y:2021:i:13:p:7149-:d:588225
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    References listed on IDEAS

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    1. Bodil Rasmussen & Glenn Ward & Alicia Jenkins & Susan J King & Trisha Dunning, 2011. "Young adults’ management of Type 1 diabetes during life transitions," Journal of Clinical Nursing, John Wiley & Sons, vol. 20(13‐14), pages 1981-1992, July.
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