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Respiratory Telerehabilitation of Boys and Young Men with Duchenne Muscular Dystrophy in the COVID-19 Pandemic

Author

Listed:
  • Agnieszka Sobierajska-Rek

    (Department of Rehabilitation Medicine, Faculty of Health Sciences with Institute of Maritime and Tropical Medicine, Medical University of Gdansk, 80-219 Gdansk, Poland)

  • Łukasz Mański

    (Department of Physical Therapy, Faculty of Health Sciences with Institute of Maritime and Tropical Medicine, Medical University of Gdansk, 80-211 Gdansk, Poland)

  • Joanna Jabłońska-Brudło

    (Department of Rehabilitation Medicine, Faculty of Health Sciences with Institute of Maritime and Tropical Medicine, Medical University of Gdansk, 80-219 Gdansk, Poland)

  • Karolina Śledzińska

    (Department of Internal and Pediatric Nursing, Faculty of Health Sciences with Institute of Maritime and Tropical Medicine, Medical University of Gdansk, 80-211 Gdansk, Poland)

  • Eliza Wasilewska

    (Department of Pulmonology and Allergology, Faculty of Medicine, Medical University of Gdansk, 80-211 Gdansk, Poland)

  • Dominika Szalewska

    (Department of Rehabilitation Medicine, Faculty of Health Sciences with Institute of Maritime and Tropical Medicine, Medical University of Gdansk, 80-219 Gdansk, Poland)

Abstract

Background: The COVID-19 pandemic forced reorganization of the multidisciplinary healthcare system for Duchenne muscular dystrophy. Digital solutions seem to be optimal for providing rehabilitation at this time. The aim of this study was to investigate whether it is possible to conduct respiratory physical therapy with the use of telerehabilitation in Duchenne muscular dystrophy. Methods: The study was conducted during an online conference for families with DMD. During the physical therapy panel we showed the video with the instructions of respiratory exercises. All participants ( n = 152) were asked to fill in the online survey evaluating the quality, acceptance, and understanding of the instructions. Results: The survey was filled in by 45 (29.6%) participants. The mean rating of satisfaction was 4.70/5, and for intelligibility was 4.78/5. Thirty-seven (82.2%) patients declared that they had performed the exercises, all caregivers declared that it was possible to perform the proposed exercises a few times a week or daily, and only two respondents replied to invitations to individual online sessions. Conclusions: Findings from the study show that respiratory telerehabilitation may be implemented for DMD patients; however, the interest in digital rehabilitation among caregivers of DMD boys in Poland is low. The reasons for this situation require further research.

Suggested Citation

  • Agnieszka Sobierajska-Rek & Łukasz Mański & Joanna Jabłońska-Brudło & Karolina Śledzińska & Eliza Wasilewska & Dominika Szalewska, 2021. "Respiratory Telerehabilitation of Boys and Young Men with Duchenne Muscular Dystrophy in the COVID-19 Pandemic," IJERPH, MDPI, vol. 18(12), pages 1-10, June.
    • Handle: RePEc:gam:jijerp:v:18:y:2021:i:12:p:6179-:d:570684
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    Citations

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    Cited by:

    1. Eliza Wasilewska & Agnieszka Sobierajska-Rek & Karolina Śledzińska & Sylwia Małgorzewicz & Ewa Jassem & Jolanta Wierzba, 2021. "Morbidity, Clinical Course and Vaccination against SARS-CoV-2 Virus in Patients with Duchenne Muscular Dystrophy: A Patient Reported Survey," IJERPH, MDPI, vol. 19(1), pages 1-10, December.
    2. Agnieszka Sobierajska-Rek & Eliza Wasilewska & Karolina Śledzińska & Joanna Jabłońska-Brudło & Sylwia Małgorzewicz & Andrzej Wasilewski & Dominika Szalewska, 2022. "The Association between the Respiratory System and Upper Limb Strength in Males with Duchenne Muscular Dystrophy: A New Field for Intervention?," IJERPH, MDPI, vol. 19(23), pages 1-12, November.
    3. Eliza Wasilewska & Agnieszka Sobierajska-Rek & Sylwia Małgorzewicz & Mateusz Soliński & Dominika Szalewska & Ewa Jassem, 2021. "Is It Possible to Have Home E-Monitoring of Pulmonary Function in Our Patients with Duchenne Muscular Dystrophy in the COVID-19 Pandemic?—A One Center Pilot Study," IJERPH, MDPI, vol. 18(17), pages 1-12, August.

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