IDEAS home Printed from https://ideas.repec.org/a/gam/jijerp/v17y2020i24p9299-d460964.html
   My bibliography  Save this article

Health-Related Quality of Life and Related Factors among Primary Caregivers of Children with Disabilities in Shanghai, China: A Cross-Sectional Study

Author

Listed:
  • Cong Xia

    (School of Public Health, Fudan University, Shanghai 200032, China
    China Research Center on Disability, Fudan University, Shanghai 200032, China
    These authors contributed to the work equally and should be regarded as co-first authors.)

  • Mei Sun

    (School of Public Health, Fudan University, Shanghai 200032, China
    China Research Center on Disability, Fudan University, Shanghai 200032, China
    These authors contributed to the work equally and should be regarded as co-first authors.)

  • Xinying Li

    (School of Public Health, Fudan University, Shanghai 200032, China
    China Research Center on Disability, Fudan University, Shanghai 200032, China)

  • Chenhao Lu

    (Rollins School of Public Health, Emory University, Atlanta, GA 30322, USA)

  • Xiu Gao

    (School of Public Health, Fudan University, Shanghai 200032, China
    China Research Center on Disability, Fudan University, Shanghai 200032, China)

  • Jun Lu

    (School of Public Health, Fudan University, Shanghai 200032, China
    China Research Center on Disability, Fudan University, Shanghai 200032, China)

  • Gang Chen

    (School of Public Health, Fudan University, Shanghai 200032, China
    China Research Center on Disability, Fudan University, Shanghai 200032, China)

Abstract

Health-related quality of life (HRQOL) of caregivers of children with disabilities (CWD) is important for both children’s rehabilitation and caregivers’ life, but the corresponding attention is far from enough in mainland China. Thus, we investigated the HRQOL of 170 caregivers and related factors in Shanghai. The 12-item Short Form Health Survey (SF-12) was used to measure HRQOL. The potential factors were collected, including child characteristics, caregiver characteristics, and environmental factors. Univariate analysis and multiple linear regression were performed to identify the key factors that could be intervened. Compared with the general population, caregivers of CWD had a slightly higher score on the physical component summary (PCS, 52.57 ± 8.41), but the score of mental component summary (MCS, 31.58 ± 7.72) was extremely low. Caregiver’s illness condition, family size, and household income were significant factors of physical HRQOL. Caregivers with illness and caregivers living in an extended family were associated with higher mental HRQOL. Whereas these two factors had opposite effects on physical HRQOL. This finding indicated poor mental HRQOL among caregivers of CWD in Shanghai and thus requiring urgent attention and intervention. Improving physical fitness, maintaining family integration, and providing financial support should be considered when developing intervention for this population.

Suggested Citation

  • Cong Xia & Mei Sun & Xinying Li & Chenhao Lu & Xiu Gao & Jun Lu & Gang Chen, 2020. "Health-Related Quality of Life and Related Factors among Primary Caregivers of Children with Disabilities in Shanghai, China: A Cross-Sectional Study," IJERPH, MDPI, vol. 17(24), pages 1-15, December.
    • Handle: RePEc:gam:jijerp:v:17:y:2020:i:24:p:9299-:d:460964
    as

    Download full text from publisher

    File URL: https://www.mdpi.com/1660-4601/17/24/9299/pdf
    Download Restriction: no
    File URL: https://www.mdpi.com/1660-4601/17/24/9299/
    Download Restriction: no
    ---><---

    Citations

    Citations are extracted by the CitEc Project, subscribe to its RSS feed for this item.
    as


    Cited by:

    1. Cong Xia & Qi Jing & Gang Chen & Mei Sun & Jun Lu, 2022. "Association between Participation of Children with Disabilities and the Child, Family, and Environmental Factors in Shanghai, China: A Cross-Sectional Study," IJERPH, MDPI, vol. 20(1), pages 1-12, December.
    2. Wai Chan & Meiqi Xin & Erin Yiqing Lu & Wai Ming Cheung & Hector Wing Hong Tsang, 2022. "Double Disadvantage of Carers with a Disability: A Cross-Sectional Study of Care Duration and Perceived Importance for Service Improvement in Hong Kong, China," IJERPH, MDPI, vol. 20(1), pages 1-13, December.
    3. Xi Zhang & Chenyang Liu & Xuehan Zhang, 2023. "Research on the Experience of Influencing Elements and the Strategy Model of Children’s Outpatient Medical Services under the Guidance of Design Thinking," Sustainability, MDPI, vol. 15(12), pages 1-42, June.

    Corrections

    All material on this site has been provided by the respective publishers and authors. You can help correct errors and omissions. When requesting a correction, please mention this item's handle: RePEc:gam:jijerp:v:17:y:2020:i:24:p:9299-:d:460964. See general information about how to correct material in RePEc.

    If you have authored this item and are not yet registered with RePEc, we encourage you to do it here. This allows to link your profile to this item. It also allows you to accept potential citations to this item that we are uncertain about.

    We have no bibliographic references for this item. You can help adding them by using this form .

    If you know of missing items citing this one, you can help us creating those links by adding the relevant references in the same way as above, for each refering item. If you are a registered author of this item, you may also want to check the "citations" tab in your RePEc Author Service profile, as there may be some citations waiting for confirmation.

    For technical questions regarding this item, or to correct its authors, title, abstract, bibliographic or download information, contact: MDPI Indexing Manager (email available below). General contact details of provider: https://www.mdpi.com .

    Please note that corrections may take a couple of weeks to filter through the various RePEc services.

    IDEAS is a RePEc service. RePEc uses bibliographic data supplied by the respective publishers.