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Illness Experiences and Attitudes towards Medication in Online Communities for People with Fibromyalgia

Author

Listed:
  • Sabrina Cipolletta

    (Department of General Psychology, University of Padua, 35131 Padua, Italy)

  • Silvia Caterina Maria Tomaino

    (Department of General Psychology, University of Padua, 35131 Padua, Italy)

  • Eliana Lo Magno

    (Department of General Psychology, University of Padua, 35131 Padua, Italy)

  • Elena Faccio

    (Department of Philosophy, Sociology, Pedagogy and Applied Psychology, University of Padua, 35131 Padua, Italy)

Abstract

Fibromyalgia is a chronic disabling syndrome, and the legitimacy of its diagnosis is still debated. Internet and online communities may become a relevant resource for affected people. This present study aims to understand the role of online communities relating to fibromyalgia syndrome (FMS) patients’ illness experiences and their attitudes towards medication. A qualitative content analysis based on the grounded theory approach was conducted on 19 conversations from an online forum, and 14 online interviews. Illness experience, lack of reference points, online communities, personal role and attitude towards medication were the five categories identified, with the search for recognition as the core category. The study highlighted that online communities represent a resource that allows users to express and share their needs, especially in terms of legitimacy and recognition.

Suggested Citation

  • Sabrina Cipolletta & Silvia Caterina Maria Tomaino & Eliana Lo Magno & Elena Faccio, 2020. "Illness Experiences and Attitudes towards Medication in Online Communities for People with Fibromyalgia," IJERPH, MDPI, vol. 17(22), pages 1-11, November.
    • Handle: RePEc:gam:jijerp:v:17:y:2020:i:22:p:8683-:d:449516
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    References listed on IDEAS

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    1. Sabrina Cipolletta & Giorgia Rosamaria Gammino & Arianna Palmieri, 2017. "Illness trajectories in patients with amyotrophic lateral sclerosis: How illness progression is related to life narratives and interpersonal relationships," Journal of Clinical Nursing, John Wiley & Sons, vol. 26(23-24), pages 5033-5043, December.
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    Cited by:

    1. Sabrina Cipolletta & Francesca Gris, 2021. "Older People’s Lived Perspectives of Social Isolation during the First Wave of the COVID-19 Pandemic in Italy," IJERPH, MDPI, vol. 18(22), pages 1-16, November.

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