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State of the Art of Family Quality of Life in Early Care and Disability: A Systematic Review

Author

Listed:
  • Carmen Francisco Mora

    (Faculty of Psychology, Education and Sports Sciences, Ramon Llull University, 08022 Barcelona, Spain)

  • Alba Ibáñez

    (Faculty of Education, University of Cantabria, 39005 Santander, Spain
    Group in Health Economics and Management of Health Services, Instituto de Investigación Sanitaria Valdecilla (IDIVAL), 39011 Santander, Spain)

  • Anna Balcells-Balcells

    (Faculty of Psychology, Education and Sports Sciences, Ramon Llull University, 08022 Barcelona, Spain)

Abstract

Background : In recent years, there has been a growing international interest in family quality of life The objective of this systematic review is to understand and analyze the conceptualization of the quality of life of families with children with disabilities between 0 and 6 years of age, the instruments for their measurement and the most relevant research results. Method : A bibliographic search was conducted in the Web of Science, Scopus and Eric databases of studies published in English and Spanish from 2000 to July 2019 focused on “family quality of life” or “quality of family life” in the disability field. A total of 63 studies were selected from a total of 1119 and analyzed for their theoretical and applied contributions to the field of early care. Results : The functional conceptualization of family quality of life predominates in this area, and a nascent and enriching holistic conceptualization is appreciated. There are three instruments that measure family quality of life in early care, although none of them is based on unified theory of FQoL; none of them focus exclusively on the age range 0–6 nor do they cover all disabilities. Conclusions : The need to deepen the dynamic interaction of family relationships and to understand the ethical requirement that the methods used to approach family quality of life respect the holistic nature of the research is noted.

Suggested Citation

  • Carmen Francisco Mora & Alba Ibáñez & Anna Balcells-Balcells, 2020. "State of the Art of Family Quality of Life in Early Care and Disability: A Systematic Review," IJERPH, MDPI, vol. 17(19), pages 1-16, October.
    • Handle: RePEc:gam:jijerp:v:17:y:2020:i:19:p:7220-:d:423058
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    References listed on IDEAS

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    1. Lien Vanderkerken & Mieke Heyvaert & Patrick Onghena & Bea Maes, 2018. "Quality of Life in Flemish Families with a Child with an Intellectual Disability: a Multilevel Study on Opinions of Family Members and the Impact of Family Member and Family Characteristics," Applied Research in Quality of Life, Springer;International Society for Quality-of-Life Studies, vol. 13(3), pages 779-802, September.
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    Cited by:

    1. Irene Damen & Alice Schippers & Alistair Niemeijer & Tineke Abma, 2022. "Living with a Rare Disease as a Family: A Co-Constructed Autoethnography from a Mother," Disabilities, MDPI, vol. 2(2), pages 1-17, June.
    2. Ghaleb H. Alnahdi & Arwa Alwadei & Flora Woltran & Susanne Schwab, 2022. "Measuring Family Quality of Life: Scoping Review of the Available Scales and Future Directions," IJERPH, MDPI, vol. 19(23), pages 1-26, November.

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    1. Ghaleb H. Alnahdi & Arwa Alwadei & Flora Woltran & Susanne Schwab, 2022. "Measuring Family Quality of Life: Scoping Review of the Available Scales and Future Directions," IJERPH, MDPI, vol. 19(23), pages 1-26, November.

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