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The Potential for Fetal Alcohol Spectrum Disorder Prevention of a Harmonized Approach to Data Collection about Alcohol Use in Pregnancy Cohort Studies

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  • Nancy Poole

    (Centre of Excellence for Women’s Health, Vancouver, BC V6H 3N1, Canada)

  • Rose A. Schmidt

    (Centre of Excellence for Women’s Health, Vancouver, BC V6H 3N1, Canada)

  • Alan Bocking

    (Lunenfeld-Tanenbaum Research Institute, Sinai Health System, Toronto, ON M5G 1X5, Canada
    Department of Obstetrics and Gynaecology, Mount Sinai Hospital, Toronto, ON M5G 1X5, Canada
    Department of Obstetrics and Gynaecology, University of Toronto, Toronto, ON M5G 1X5, Canada)

  • Julie Bergeron

    (Research Institute of the McGill University Health Center, Montreal, QC H3H 2R9, Canada)

  • Isabel Fortier

    (Research Institute of the McGill University Health Center, Montreal, QC H3H 2R9, Canada)

Abstract

Prenatal alcohol exposure is a leading cause of disability, and a major public health concern in Canada. There are well-documented barriers for women and for service providers related to asking about alcohol use in pregnancy. Confidential research is important for learning about alcohol use before, during and after pregnancy, in order to inform fetal alcohol spectrum disorder (FASD) prevention strategies. The Research Advancement through Cohort Cataloguing and Harmonization (ReACH) initiative provides a unique opportunity to leverage the integration of the Canadian pregnancy and birth cohort information regarding women’s drinking during pregnancy. In this paper, we identify: The data that can be collected using formal validated alcohol screening tools; the data currently collected through Canadian provincial/territorial perinatal surveillance efforts; and the data currently collected in the research context from 12 pregnancy cohorts in the ReACH Catalogue. We use these findings to make recommendations for data collection about women’s alcohol use by future pregnancy cohorts, related to the frequency and quantity of alcohol consumed, the number of drinks consumed on an occasion, any alcohol consumption before pregnancy, changes in use since pregnancy recognition, and the quit date. Leveraging the development of a Canadian standard to measure alcohol consumption is essential to facilitate harmonization and co-analysis of data across cohorts, to obtain more accurate data on women’s alcohol use and also to inform FASD prevention strategies.

Suggested Citation

  • Nancy Poole & Rose A. Schmidt & Alan Bocking & Julie Bergeron & Isabel Fortier, 2019. "The Potential for Fetal Alcohol Spectrum Disorder Prevention of a Harmonized Approach to Data Collection about Alcohol Use in Pregnancy Cohort Studies," IJERPH, MDPI, vol. 16(11), pages 1-13, June.
    • Handle: RePEc:gam:jijerp:v:16:y:2019:i:11:p:2019-:d:237740
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    References listed on IDEAS

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    1. John Gallacher & Scott M. Hofer, 2011. "Generating Large-Scale Longitudinal Data Resources for Aging Research," The Journals of Gerontology: Series B, The Gerontological Society of America, vol. 66(suppl_1), pages 172-179.
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    Cited by:

    1. Vivian Lyall & Lindsay Wolfson & Natasha Reid & Nancy Poole & Karen M. Moritz & Sonya Egert & Annette J. Browne & Deborah A. Askew, 2021. "“The Problem Is that We Hear a Bit of Everything…”: A Qualitative Systematic Review of Factors Associated with Alcohol Use, Reduction, and Abstinence in Pregnancy," IJERPH, MDPI, vol. 18(7), pages 1-24, March.
    2. Larry Burd & Svetlana Popova, 2019. "Fetal Alcohol Spectrum Disorders: Fixing Our Aim to Aim for the Fix," IJERPH, MDPI, vol. 16(20), pages 1-6, October.
    3. Sophia L. Young & Sarah E. Steane & Nykola L. Kent & Natasha Reid & Linda A. Gallo & Karen M. Moritz, 2022. "Prevalence and Patterns of Prenatal Alcohol Exposure in Australian Cohort and Cross-Sectional Studies: A Systematic Review of Data Collection Approaches," IJERPH, MDPI, vol. 19(20), pages 1-20, October.

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