IDEAS home Printed from https://ideas.repec.org/a/cog/socinc/v4y2016i1p127-141.html
   My bibliography  Save this article

“I Like to Play with My Friends”: Children with Spina Bifida and Belonging in Uganda

Author

Listed:
  • Femke Bannink

    (Department of Special Needs Education, Faculty of Psychology and Educational Sciences, Ghent University, Belgium)

  • Richard Idro

    (Department of Paediatrics and Child Health, Makerere University, Uganda)

  • Geert van Hove

    (Department of Special Needs Education, Faculty of Psychology and Educational Sciences, Ghent University, Belgium)

Abstract

This paper describes experiences of living and belonging from the perspectives of Ugandan children with spina bifida and their siblings and parents. We explored belonging at micro, meso and macro level taking into consideration African Childhood Disability Studies, central concepts of family, cultural conceptions of disability, poverty, and the notion of ‘ubuntu’, and using child-friendly culturally adjusted interview methods including play. Whilst children with spina bifida had a strong sense of belonging at household level, they experienced more difficulties engaging in larger social networks, including school. Poverty and stigma were important barriers to inclusion. We propose strengthening the network at family level, where the environment is more enabling for the children to find a place of belonging and support, and expanding investment and awareness at community and national level.

Suggested Citation

  • Femke Bannink & Richard Idro & Geert van Hove, 2016. "“I Like to Play with My Friends”: Children with Spina Bifida and Belonging in Uganda," Social Inclusion, Cogitatio Press, vol. 4(1), pages 127-141.
    • Handle: RePEc:cog:socinc:v:4:y:2016:i:1:p:127-141
    as

    Download full text from publisher

    File URL: https://www.cogitatiopress.com/socialinclusion/article/view/630
    Download Restriction: no
    ---><---

    References listed on IDEAS

    as
    1. Deon Filmer, 2008. "Disability, Poverty, and Schooling in Developing Countries: Results from 14 Household Surveys," The World Bank Economic Review, World Bank, vol. 22(1), pages 141-163, January.
    Full references (including those not matched with items on IDEAS)

    Citations

    Citations are extracted by the CitEc Project, subscribe to its RSS feed for this item.
    as


    Cited by:

    1. Mitchell, Rafael, 2023. "Peer support in sub-Saharan Africa: A critical interpretive synthesis of school-based research," International Journal of Educational Development, Elsevier, vol. 96(C).

    Most related items

    These are the items that most often cite the same works as this one and are cited by the same works as this one.
    1. Mizunoya, Suguru & Mitra, Sophie & Yamasaki, Izumi, 2018. "Disability and school attendance in 15 low- and middle-income countries," World Development, Elsevier, vol. 104(C), pages 388-403.
    2. Mont, Daniel & Nguyen, Cuong, 2013. "Does Parental Disability Matter to Child Education? Evidence from Vietnam," World Development, Elsevier, vol. 48(C), pages 88-107.
    3. Parul Bakhshi & Ganesh M. Babulal & Jean-Francois Trani, 2021. "Disability, Poverty, and Schooling in Post-civil War in Sierra Leone," The European Journal of Development Research, Palgrave Macmillan;European Association of Development Research and Training Institutes (EADI), vol. 33(3), pages 482-501, June.
    4. Jeyapraba Suresh, 2023. "Poverty is Lack of Capabilities: A Literature Review," International Journal of Research and Innovation in Social Science, International Journal of Research and Innovation in Social Science (IJRISS), vol. 7(3), pages 462-476, March.
    5. Kuroda, Kazuo & Kartika, Diana & Kitamura, Yuto, 2017. "Implications for Teacher Training and Support for Inclusive Education in Cambodia: An Empirical Case Study in a Developing Country," Working Papers 148, JICA Research Institute.
    6. Muhammad Qahraman Kakar, 2021. "Ethnic Disparities, Women Education and Empowerment in South Asia," Erudite Ph.D Dissertations, Erudite, number ph21-01 edited by Manon Domingues Dos Santos, February.
    7. Lamichhane, Kamal & Sawada, Yasuyuki, 2013. "Disability and returns to education in a developing country," Economics of Education Review, Elsevier, vol. 37(C), pages 85-94.
    8. Md Shariful Islam & Md Ismail Tareque & Md Nazrul Islam Mondal & Ahbab Mohammad Fazle Rabbi & Hafiz T A Khan & Sharifa Begum, 2017. "Urban-rural differences in disability-free life expectancy in Bangladesh using the 2010 HIES data," PLOS ONE, Public Library of Science, vol. 12(7), pages 1-13, July.
    9. Luo, Yifeng & Zhou, Rachel Yang & Mizunoya, Suguru & Amaro, Diogo, 2020. "How various types of disabilities impact children’s school attendance and completion - Lessons learned from censuses in eight developing countries," International Journal of Educational Development, Elsevier, vol. 77(C).
    10. Mina, Christian D. & Agbon, Adrian D., 2017. "School Participation of Children with Disability: The Case of San Remigio and Mandaue City, Cebu, Philippines," Discussion Papers DP 2017-59, Philippine Institute for Development Studies.
    11. Nidhiya Menon & Susan L. Parish & Roderick A. Rose, 2014. "The "State" of Persons with Disabilities in India," Journal of Human Development and Capabilities, Taylor & Francis Journals, vol. 15(4), pages 391-412, November.
    12. Ahmed Ramadan Shokry Shahat & Giulia Greco, 2021. "The Economic Costs of Childhood Disability: A Literature Review," IJERPH, MDPI, vol. 18(7), pages 1-25, March.
    13. Zhang , Huafeng & Holden, Stein T., 2023. "Country Socio-economic Development and Disparity in School Children's Reading Skills Learning in Africa," CLTS Working Papers 8/23, Norwegian University of Life Sciences, Centre for Land Tenure Studies.
    14. Trani, Jean-François & Cannings, Tim I., 2013. "Child Poverty in an Emergency and Conflict Context: A Multidimensional Profile and an Identification of the Poorest Children in Western Darfur," World Development, Elsevier, vol. 48(C), pages 48-70.
    15. Lamichhane, Kamal & Kawakatsu, Yoshito, 2015. "Disability and determinants of schooling: A case from Bangladesh," International Journal of Educational Development, Elsevier, vol. 40(C), pages 98-105.
    16. Takasaki, Yoshito, 2020. "Impacts of disability on poverty: Quasi-experimental evidence from landmine amputees in Cambodia," Journal of Economic Behavior & Organization, Elsevier, vol. 180(C), pages 85-107.
    17. Trani, Jean-Francois & Browne, Joyce & Kett, Maria & Bah, Osman & Morlai, Teddy & Bailey, Nicki & Groce, Nora, 2011. "Access to health care, reproductive health and disability: A large scale survey in Sierra Leone," Social Science & Medicine, Elsevier, vol. 73(10), pages 1477-1489.
    18. Schultz, T. Paul, 2010. "Population and Health Policies," Handbook of Development Economics, in: Dani Rodrik & Mark Rosenzweig (ed.), Handbook of Development Economics, edition 1, volume 5, chapter 0, pages 4785-4881, Elsevier.
    19. Daniel Mont & Cuong Nguyen, 2018. "Spatial Variation in the Poverty Gap Between People With and Without Disabilities: Evidence from Vietnam," Social Indicators Research: An International and Interdisciplinary Journal for Quality-of-Life Measurement, Springer, vol. 137(2), pages 745-763, June.
    20. El-Saadani, Somaya & Metwally, Soha, 2019. "Inequality of opportunity linked to disability in school enrollment among youth: Evidence from Egypt," International Journal of Educational Development, Elsevier, vol. 67(C), pages 73-84.

    Corrections

    All material on this site has been provided by the respective publishers and authors. You can help correct errors and omissions. When requesting a correction, please mention this item's handle: RePEc:cog:socinc:v:4:y:2016:i:1:p:127-141. See general information about how to correct material in RePEc.

    If you have authored this item and are not yet registered with RePEc, we encourage you to do it here. This allows to link your profile to this item. It also allows you to accept potential citations to this item that we are uncertain about.

    If CitEc recognized a bibliographic reference but did not link an item in RePEc to it, you can help with this form .

    If you know of missing items citing this one, you can help us creating those links by adding the relevant references in the same way as above, for each refering item. If you are a registered author of this item, you may also want to check the "citations" tab in your RePEc Author Service profile, as there may be some citations waiting for confirmation.

    For technical questions regarding this item, or to correct its authors, title, abstract, bibliographic or download information, contact: António Vieira (email available below). General contact details of provider: https://www.cogitatiopress.com/ .

    Please note that corrections may take a couple of weeks to filter through the various RePEc services.

    IDEAS is a RePEc service. RePEc uses bibliographic data supplied by the respective publishers.