IDEAS home Printed from https://ideas.repec.org/a/wly/nuhsci/v20y2018i4p494-501.html
   My bibliography  Save this article

Women's perspectives on home‐based care for family members with chronic illness: An Interpretive phenomenology study

Author

Listed:
  • Manee Arpanantikul

Abstract

The number of people with chronic illness who need home‐based care is increasing globally. Home‐based care is socially constructed to be work carried out by women. However, little attention has been paid to the opinions of middle‐aged women caring for family members with chronic illness at home. In this study, Thai women's perspectives on home‐based care for family members with chronic illness using interpretive phenomenology were identified. Fifteen middle‐aged women were interviewed twice, and the data were analyzed using thematic analysis. Four major themes emerged: (i) role obligation; (ii) social life change; (iii) doing good things; and (iv) lack of support. Important findings were that care was considered a woman's duty owing to cultural beliefs. Most participants sacrificed their own needs to care for others, as doing good things is considered an important Buddhist belief. Caring for others decreased women's social networks, but they cared more for their own health. Support with finances, information, workplaces, and care recipients should be provided to women with care responsibilities. These results can help nurses to better understand women's caring roles and the consequences of home‐based care that influence woman's health.

Suggested Citation

  • Manee Arpanantikul, 2018. "Women's perspectives on home‐based care for family members with chronic illness: An Interpretive phenomenology study," Nursing & Health Sciences, John Wiley & Sons, vol. 20(4), pages 494-501, December.
  • Handle: RePEc:wly:nuhsci:v:20:y:2018:i:4:p:494-501
    DOI: 10.1111/nhs.12541
    as

    Download full text from publisher

    File URL: https://doi.org/10.1111/nhs.12541
    Download Restriction: no

    File URL: https://libkey.io/10.1111/nhs.12541?utm_source=ideas
    LibKey link: if access is restricted and if your library uses this service, LibKey will redirect you to where you can use your library subscription to access this item
    ---><---

    References listed on IDEAS

    as
    1. Bauer, Jan Michael & Sousa-Poza, Alfonso, 2015. "Impacts of Informal Caregiving on Caregiver Employment, Health, and Family," IZA Discussion Papers 8851, Institute of Labor Economics (IZA).
    2. Navaie-Waliser, M. & Feldman, P.H. & Gould, D.A. & Levine, C. & Kuerbis, A.N. & Donelan, K., 2002. "When the caregiver needs care: The plight of vulnerable caregivers," American Journal of Public Health, American Public Health Association, vol. 92(3), pages 409-413.
    3. Helder Rocha Pereira & Maria Antónia Rebelo Botelho, 2011. "Sudden informal caregivers: the lived experience of informal caregivers after an unexpected event," Journal of Clinical Nursing, John Wiley & Sons, vol. 20(17‐18), pages 2448-2457, September.
    4. Tarja Välimäki & Katri Vehviläinen‐Julkunen & Anna‐Maija Pietilä & Anne Koivisto, 2012. "Life orientation in Finnish family caregivers' of persons with Alzheimer's disease: A diary study," Nursing & Health Sciences, John Wiley & Sons, vol. 14(4), pages 480-487, December.
    5. Max van Manen & Isabel Higgins & Pamela van der Riet, 2016. "A conversation with Max van Manen on phenomenology in its original sense," Nursing & Health Sciences, John Wiley & Sons, vol. 18(1), pages 4-7, March.
    6. Ya‐Fen Lien & Hui‐Man Huang, 2017. "Challenges in intergenerational caregiving for frail older people: A multiple case study," Nursing & Health Sciences, John Wiley & Sons, vol. 19(1), pages 81-87, March.
    Full references (including those not matched with items on IDEAS)

    Most related items

    These are the items that most often cite the same works as this one and are cited by the same works as this one.
    1. Heger, Dörte & Korfhage, Thorben, 2017. "Does the negative effect of caregiving on work persist over time?," Ruhr Economic Papers 703, RWI - Leibniz-Institut für Wirtschaftsforschung, Ruhr-University Bochum, TU Dortmund University, University of Duisburg-Essen.
    2. M Khurram Malik & KS Jacob, 2015. "Psychological morbidity among co-residents of older people in rural South India: Prevalence and risk factors," International Journal of Social Psychiatry, , vol. 61(2), pages 183-187, March.
    3. Takashi Oshio & Emiko Usui, 2017. "Informal parental care and female labour supply in Japan," Applied Economics Letters, Taylor & Francis Journals, vol. 24(9), pages 635-638, May.
    4. Yemisi Okikiade Oyegbile & Petra Brysiewicz, 2017. "Family caregiver's experiences of providing care to patients with End‐Stage Renal Disease in South‐West Nigeria," Journal of Clinical Nursing, John Wiley & Sons, vol. 26(17-18), pages 2624-2632, September.
    5. Kolodziej, Ingo & Coe, Norma B. & Van Houtven, Courtney Harold, 2023. "Intensive informal care and impairments in work productivity and activity," Ruhr Economic Papers 1010, RWI - Leibniz-Institut für Wirtschaftsforschung, Ruhr-University Bochum, TU Dortmund University, University of Duisburg-Essen.
    6. Annette Peart & Virginia Lewis & Chris Barton & Grant Russell, 2020. "Healthcare professionals providing care coordination to people living with multimorbidity: An interpretative phenomenological analysis," Journal of Clinical Nursing, John Wiley & Sons, vol. 29(13-14), pages 2317-2328, July.
    7. Rellstab, Sara & Bakx, Pieter & García-Gómez, Pilar & van Doorslaer, Eddy, 2020. "The kids are alright - labour market effects of unexpected parental hospitalisations in the Netherlands," Journal of Health Economics, Elsevier, vol. 69(C).
    8. Jennifer Searle & Lisa Goldberg & Megan Aston & Sylvia Burrow, 2017. "Accessing new understandings of trauma‐informed care with queer birthing women in a rural context," Journal of Clinical Nursing, John Wiley & Sons, vol. 26(21-22), pages 3576-3587, November.
    9. Kamila Hynek & Aslaug Gotehus & Fredrik Methi & Ragnhild Bang Nes & Vegard Skirbekk & Thomas Hansen, 2023. "Caregiving + Migrant Background = Double Jeopardy? Associations between Caregiving and Physical and Psychological Health According to Migrant Backgrounds in Norway," IJERPH, MDPI, vol. 20(10), pages 1-13, May.
    10. Alberto Pench, 2018. "Intra Generational Solidarity and Long Term Care: A Role for In Kind Transfers," ECONOMIA PUBBLICA, FrancoAngeli Editore, vol. 2018(1), pages 35-57.
    11. Mazzotta, Fernanda & Bettio, Francesca & Zigante, Valentina, 2018. "And Thou Shalt Honor: children’s caregiving, work and religion," GLO Discussion Paper Series 202, Global Labor Organization (GLO).
    12. Marie Blaise & Laetitia Dillenseger, 2023. "Informal Caregivers and Life Satisfaction: Empirical Evidence from the Netherlands," Journal of Happiness Studies, Springer, vol. 24(6), pages 1883-1930, August.
    13. Yoko Niimi, 2016. "The “Costs” of informal care: an analysis of the impact of elderly care on caregivers’ subjective well-being in Japan," Review of Economics of the Household, Springer, vol. 14(4), pages 779-810, December.
    14. Norén, Anna, 2020. "Sick of my parents? Consequences of parental ill health on adult children," Working Paper Series 2020:1, IFAU - Institute for Evaluation of Labour Market and Education Policy.
    15. Longobardo, Luz María Peña & Rodríguez-Sánchez, Beatriz & Oliva, Juan, 2023. "Does becoming an informal caregiver make your health worse? A longitudinal analysis across Europe," Economics & Human Biology, Elsevier, vol. 50(C).
    16. Bom, Judith & Stöckel, Jannis, 2021. "Is the grass greener on the other side? The health impact of providing informal care in the UK and the Netherlands," Social Science & Medicine, Elsevier, vol. 269(C).
    17. Miller, Ray & Sedai, Ashish Kumar, 2022. "Opportunity costs of unpaid caregiving: Evidence from panel time diaries," The Journal of the Economics of Ageing, Elsevier, vol. 22(C).
    18. Weili Gao & Virginia Plummer & Lisa McKenna, 2020. "Using metaphor method to interpret and understand meanings of international operating room nurses' experiences in organ procurement surgery," Journal of Clinical Nursing, John Wiley & Sons, vol. 29(23-24), pages 4604-4613, December.
    19. Reemal Shahbaz & Allison Williams & Bharati Sethi & Olive Wahoush, 2023. "Commonalities and Differences in the Experiences of Visible Minority Transnational Carer–Employees: A Qualitative Study," IJERPH, MDPI, vol. 20(18), pages 1-19, September.
    20. Elisa Labbas & Maria Stanfors, 2023. "Does Caring for Parents Take Its Toll? Gender Differences in Caregiving Intensity, Coresidence, and Psychological Well-Being Across Europe," European Journal of Population, Springer;European Association for Population Studies, vol. 39(1), pages 1-29, December.

    More about this item

    Statistics

    Access and download statistics

    Corrections

    All material on this site has been provided by the respective publishers and authors. You can help correct errors and omissions. When requesting a correction, please mention this item's handle: RePEc:wly:nuhsci:v:20:y:2018:i:4:p:494-501. See general information about how to correct material in RePEc.

    If you have authored this item and are not yet registered with RePEc, we encourage you to do it here. This allows to link your profile to this item. It also allows you to accept potential citations to this item that we are uncertain about.

    If CitEc recognized a bibliographic reference but did not link an item in RePEc to it, you can help with this form .

    If you know of missing items citing this one, you can help us creating those links by adding the relevant references in the same way as above, for each refering item. If you are a registered author of this item, you may also want to check the "citations" tab in your RePEc Author Service profile, as there may be some citations waiting for confirmation.

    For technical questions regarding this item, or to correct its authors, title, abstract, bibliographic or download information, contact: Wiley Content Delivery (email available below). General contact details of provider: https://doi.org/10.1111/(ISSN)1442-2018 .

    Please note that corrections may take a couple of weeks to filter through the various RePEc services.

    IDEAS is a RePEc service. RePEc uses bibliographic data supplied by the respective publishers.