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Decision validity should determine whether a generic or condition‐specific HRQOL measure is used in health care decisions

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  • Jack Dowie

Abstract

When a HRQOL measure is needed in health care decision making should it be a generic measure (a GEN), intended to cover the entire domain of health, a condition‐specific measure (a CSM) intended to embrace those aspects of health associated with the condition concerned, or both? This paper proposes that it will never be appropriate to use both a CSM and a GEN for the same decision; that a GEN alone will probably be the appropriate measure in the majority of decisions; that a CSM alone will sometimes be appropriate; and that whether it is a GEN alone or a CSM alone that is appropriate depends entirely on the structure of the decision. The argument rests on the distinction between knowledge validity and decision validity. But it has a supplementary basis in rejection of the widespread (but unjustifiable) belief that CSMs are more ‘sensitive’ or ‘responsive’ than GENs and hence can detect ‘small but important changes’ that GENs always or often miss. Copyright © 2002 John Wiley & Sons, Ltd.

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  • Jack Dowie, 2002. "Decision validity should determine whether a generic or condition‐specific HRQOL measure is used in health care decisions," Health Economics, John Wiley & Sons, Ltd., vol. 11(1), pages 1-8, January.
    • Handle: RePEc:wly:hlthec:v:11:y:2002:i:1:p:1-8
    DOI: 10.1002/hec.667
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    1. John Brazier & Mark Deverill, 1999. "A checklist for judging preference‐based measures of health related quality of life: Learning from psychometrics," Health Economics, John Wiley & Sons, Ltd., vol. 8(1), pages 41-51, February.
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    2. Brazier, J, 2005. "Current state of the art in preference-based measures of health and avenues for further research," MPRA Paper 29762, University Library of Munich, Germany.
    3. Michela Tinelli & Mandy Ryan & Christine Bond & Anthony Scott, 2013. "Valuing Benefits to Inform a Clinical Trial in Pharmacy," PharmacoEconomics, Springer, vol. 31(2), pages 163-171, February.
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    5. Aureliano Paolo Finch & John Brazier & Clara Mukuria, 2021. "Selecting Bolt-on Dimensions for the EQ-5D: Testing the Impact of Hearing, Sleep, Cognition, Energy, and Relationships on Preferences Using Pairwise Choices," Medical Decision Making, , vol. 41(1), pages 89-99, January.
    6. Yaling Yang & John E. Brazier & Aki Tsuchiya & Tracey A. Young, 2011. "Estimating a Preference-Based Index for a 5-Dimensional Health State Classification for Asthma Derived from the Asthma Quality of Life Questionnaire," Medical Decision Making, , vol. 31(2), pages 281-291, March.
    7. Julie Ratcliffe & John Brazier & Aki Tsuchiya & Tara Symonds & Martin Brown, 2009. "Using DCE and ranking data to estimate cardinal values for health states for deriving a preference‐based single index from the sexual quality of life questionnaire," Health Economics, John Wiley & Sons, Ltd., vol. 18(11), pages 1261-1276, November.
    8. Yaling Yang & John Brazier & Aki Tsuchiya, 2014. "Effect of Adding a Sleep Dimension to the EQ-5D Descriptive System," Medical Decision Making, , vol. 34(1), pages 42-53, January.
    9. Ifigeneia Mavranezouli & John E. Brazier & Donna Rowen & Michael Barkham, 2013. "Estimating a Preference-Based Index from the Clinical Outcomes in Routine Evaluation–Outcome Measure (CORE-OM)," Medical Decision Making, , vol. 33(3), pages 381-395, April.
    10. John Brazier & Jennifer Roberts & Donna Rowen, 2012. "Methods for Developing Preference-based Measures of Health," Chapters, in: Andrew M. Jones (ed.), The Elgar Companion to Health Economics, Second Edition, chapter 37, Edward Elgar Publishing.
    11. Donna Rowen & John Brazier & Aki Tsuchiya & Mónica Hernández Alava, 2012. "Valuing states from multiple measures on the same visual analogue sale: a feasibility study," Health Economics, John Wiley & Sons, Ltd., vol. 21(6), pages 715-729, June.
    12. Desirée Vos-Vromans & Silvia Evers & Ivan Huijnen & Albère Köke & Minou Hitters & Nieke Rijnders & Menno Pont & André Knottnerus & Rob Smeets, 2017. "Economic evaluation of multidisciplinary rehabilitation treatment versus cognitive behavioural therapy for patients with chronic fatigue syndrome: A randomized controlled trial," PLOS ONE, Public Library of Science, vol. 12(6), pages 1-21, June.
    13. Brazier, John & Rowen, Donna & Tsuchiya, Aki & Yang, Yaling & Young, Tracy A., 2011. "The impact of adding an extra dimension to a preference-based measure," Social Science & Medicine, Elsevier, vol. 73(2), pages 245-253, July.
    14. John Brazier & Carolyn Czoski-Murray & Jennifer Roberts & Martin Brown & Tara Symonds & Con Kelleher, 2008. "Estimation of a Preference-Based Index from a Condition-Specific Measure: The King's Health Questionnaire," Medical Decision Making, , vol. 28(1), pages 113-126, January.
    15. Hubert R. Jocham & Theo Dassen & Guy Widdershoven & Ruud Halfens, 2006. "Quality of life in palliative care cancer patients: a literature review," Journal of Clinical Nursing, John Wiley & Sons, vol. 15(9), pages 1188-1195, September.
    16. John Brazier & Aki Tsuchiya, 2010. "Preference‐based condition‐specific measures of health: what happens to cross programme comparability?," Health Economics, John Wiley & Sons, Ltd., vol. 19(2), pages 125-129, February.
    17. SeungJin Bae & Eun Bae & Sang Lim, 2014. "Sourcing Quality-of-Life Weights Obtained from Previous Studies: Theory and Reality in Korea," The Patient: Patient-Centered Outcomes Research, Springer;International Academy of Health Preference Research, vol. 7(2), pages 141-150, June.

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