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Utilization of Formal and Informal Care by Community-Living People with Dementia: A Comparative Study between Sweden and Italy

Author

Listed:
  • Carlos Chiatti

    (Department of Health Sciences, Faculty of medicine, Lund University, Box 157, SE-221 00 Lund, Sweden)

  • Danae Rodríguez Gatta

    (Department of Health Sciences, Faculty of medicine, Lund University, Box 157, SE-221 00 Lund, Sweden)

  • Agneta Malmgren Fänge

    (Department of Health Sciences, Faculty of medicine, Lund University, Box 157, SE-221 00 Lund, Sweden)

  • Valerio Mattia Scandali

    (Department of Biomedical Sciences, Polytechnic University of Marche, 60030 Ancona, Italy)

  • Filippo Masera

    (Department of Health Care Planning, Regional Health Agency of Marche Region, 60015 Ancona, Italy)

  • Connie Lethin

    (Department of Health Sciences, Faculty of medicine, Lund University, Box 157, SE-221 00 Lund, Sweden
    Department of Clinical Sciences, Clinical Memory Research Unit, Faculty of Medicine, Lund University, SE-214 28 Malmö, Sweden)

  • On behalf of the UP-TECH and TECH@HOME research groups

Abstract

Background: Dementia is a public health priority with a dramatic social and economic impact on people with dementia (PwD), their caregivers and societies. The aim of this study was to contribute to the knowledge on how utilization of formal and informal care varies between Sweden and Italy. Methods: Data were retrieved from two trials: TECH@HOME (Sweden) and UP-TECH (Italy). The sample consisted of 89 Swedish and 317 Italian dyads (PwD and caregivers). Using bivariate analysis, we compared demographic characteristics and informal resource utilization. Multiple linear regression was performed to analyze factors associated with time spent on care by the informal caregivers. Results: Swedish participants utilized more frequently health care and social services. Informal caregivers in Italy spent more time in caregiving than the Swedish ones (6.3 and 3.7 h per day, respectively). Factors associated with an increased time were country of origin, PwD level of dependency, living situation, use of formal care services and occupation. Conclusions: Care and service utilization significantly varies between Sweden and Italy. The level of formal care support received by the caregivers has a significant impact on time spent on informal care. Knowledge on the factors triggering formal care resources utilization by PwD and their caregivers might further support care services planning and delivery across different countries.

Suggested Citation

  • Carlos Chiatti & Danae Rodríguez Gatta & Agneta Malmgren Fänge & Valerio Mattia Scandali & Filippo Masera & Connie Lethin & On behalf of the UP-TECH and TECH@HOME research groups, 2018. "Utilization of Formal and Informal Care by Community-Living People with Dementia: A Comparative Study between Sweden and Italy," IJERPH, MDPI, vol. 15(12), pages 1-15, November.
    • Handle: RePEc:gam:jijerp:v:15:y:2018:i:12:p:2679-:d:186186
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    References listed on IDEAS

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    1. Alessio Cangiano, 2014. "Elder Care and Migrant Labor in Europe: A Demographic Outlook," Population and Development Review, The Population Council, Inc., vol. 40(1), pages 131-154, March.
    2. Pierre Moïse & Michael Schwarzinger & Myung-Yong Um, 2004. "Dementia Care in 9 OECD Countries: A Comparative Analysis," OECD Health Working Papers 13, OECD Publishing.
    3. Wimo, Anders & von Strauss, Eva & Nordberg, Gunilla & Sassi, Franco & Johansson, Lennarth, 2002. "Time spent on informal and formal care giving for persons with dementia in Sweden," Health Policy, Elsevier, vol. 61(3), pages 255-268, September.
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    1. Fernando L. Vázquez & Patricia Otero & Miguel A. Simón & Ana M. Bueno & Vanessa Blanco, 2019. "Psychometric Properties of the Spanish Version of the Caregiver Burden Inventory," IJERPH, MDPI, vol. 16(2), pages 1-19, January.

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