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Discrepancy in the preferences of place of death between terminally ill cancer patients and their primary family caregivers in Taiwan

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  • Tang, Siew Tzuh
  • Liu, Tsang-Wu
  • Lai, Mei-Shu
  • McCorkle, Ruth

Abstract

There is a worldwide common preference for dying at home. However, death at home does not come without significant challenges and potential consequences for families. Given the interactive nature of decisions regarding the place of death, the family's perspective is important and needs to be investigated. The purposes of this study were to compare (1) Taiwanese terminally ill cancer patients' and their family caregivers' preferences for the patient's place of death; and (2) important factors that are considered in choosing the preferred place of death from both points of view. A total of 617 dyads of terminally ill cancer patients and their family caregivers were surveyed. The majority of both terminally ill cancer patients and their family caregivers preferred to die at home (61.0% and 56.9%, respectively). A higher proportion of the family caregivers indicated a preference for hospital death for the patients. There was a moderate association between the two respondents in the preferences of place of death. Results underscore discrepancies between patients and their families in the importance given to cultural concerns, quality of health care, worries of being a burden to others, lack of availability of families, relationships with health care providers, and being surrounded by the home environment. Effective interventions need to be developed which can lighten the caregiving burden and help families retain dying patients at home, avoid unnecessary re-hospitalizations and unfavorable hospital deaths, and improve accordance with the patient's wishes.

Suggested Citation

  • Tang, Siew Tzuh & Liu, Tsang-Wu & Lai, Mei-Shu & McCorkle, Ruth, 2005. "Discrepancy in the preferences of place of death between terminally ill cancer patients and their primary family caregivers in Taiwan," Social Science & Medicine, Elsevier, vol. 61(7), pages 1560-1566, October.
    • Handle: RePEc:eee:socmed:v:61:y:2005:i:7:p:1560-1566
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    References listed on IDEAS

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    1. Chochinov, Harvey Max & Hack, Thomas & McClement, Susan & Kristjanson, Linda & Harlos, Mike, 2002. "Dignity in the terminally ill: a developing empirical model," Social Science & Medicine, Elsevier, vol. 54(3), pages 433-443, February.
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    4. Grande, G. E. & Addington-Hall, J. M. & Todd, C. J., 1998. "Place of death and access to home care services: are certain patient groups at a disadvantage?," Social Science & Medicine, Elsevier, vol. 47(5), pages 565-579, September.
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    1. Helen YL Chan & Samantha MC Pang, 2010. "Let me talk – an advance care planning programme for frail nursing home residents," Journal of Clinical Nursing, John Wiley & Sons, vol. 19(21‐22), pages 3073-3084, November.
    2. Xuan‐Yi Huang & Jen‐Yu Chang & Fan‐Ko Sun & Wei‐Fen Ma, 2010. "Nursing students’ experiences of their first encounter with death during clinical practice in Taiwan," Journal of Clinical Nursing, John Wiley & Sons, vol. 19(15‐16), pages 2280-2290, August.
    3. Cohen, Joachim & Bilsen, Johan & Hooft, Peter & Deboosere, Patrick & Wal, Gerrit van der & Deliens, Luc, 2006. "Dying at home or in an institution: Using death certificates to explore the factors associated with place of death," Health Policy, Elsevier, vol. 78(2-3), pages 319-329, October.
    4. Ya-Ting Huang & Ying-Wei Wang & Chou-Wen Chi & Wen-Yu Hu & Rung Lin Jr & Chih-Chung Shiao & Woung-Ru Tang, 2020. "Differences in medical costs for end-of-life patients receiving traditional care and those receiving hospice care: A retrospective study," PLOS ONE, Public Library of Science, vol. 15(2), pages 1-21, February.

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