IDEAS home Printed from https://ideas.repec.org/a/bla/srbeha/v39y2022i4p734-749.html
   My bibliography  Save this article

Community‐based system dynamics modelling of stigmatized public health issues: Increasing diverse representation of individuals with personal experiences

Author

Listed:
  • Arielle R. Deutsch
  • Rebecca Lustfield
  • Mohammad S. Jalali

Abstract

Utility of community‐based system dynamics (CBSD) models on stigmatized public health issues and health disparities depends upon how representative the model is to real‐world experience within the community. ‘Personal experience’ participants (PEP), especially from marginalized groups, are essential model contributors but are often underrepresented in modelling groups due to multiple barriers. This study details a method to increase PEP representation for models on stigmatized issues. We use a case study from a CBSD project on health disparities within the association between alcohol misuse (AM) and intimate partner violence (IPV) for Northern Plains Indigenous women. Short group model building sessions were held at three community organizations providing relevant resources. Each model contributed unique system components, and there were few similarities between models. A consolidated model provided a rich picture of the complex system. Adding brief PEP‐based group modelling sessions can enhance PEP representation in model development for stigmatized public health issues.

Suggested Citation

  • Arielle R. Deutsch & Rebecca Lustfield & Mohammad S. Jalali, 2022. "Community‐based system dynamics modelling of stigmatized public health issues: Increasing diverse representation of individuals with personal experiences," Systems Research and Behavioral Science, Wiley Blackwell, vol. 39(4), pages 734-749, July.
  • Handle: RePEc:bla:srbeha:v:39:y:2022:i:4:p:734-749
    DOI: 10.1002/sres.2807
    as

    Download full text from publisher

    File URL: https://doi.org/10.1002/sres.2807
    Download Restriction: no

    File URL: https://libkey.io/10.1002/sres.2807?utm_source=ideas
    LibKey link: if access is restricted and if your library uses this service, LibKey will redirect you to where you can use your library subscription to access this item
    ---><---

    References listed on IDEAS

    as
    1. Frerichs, L. & Lich, K.H. & Dave, G. & Corbie-Smith, G., 2016. "Integrating systems science and community-based participatory research to achieve health equity," American Journal of Public Health, American Public Health Association, vol. 106(2), pages 215-222.
    2. Miller, Keva M. & Cahn, Katharine & Orellana, E. Roberto, 2012. "Dynamics that contribute to racial disproportionality and disparity: Perspectives from child welfare professionals, community partners, and families," Children and Youth Services Review, Elsevier, vol. 34(11), pages 2201-2207.
    3. Cobb, N. & Espey, D. & King, J., 2014. "Health behaviors and risk factors among American Indians and Alaska natives, 2000û2010," American Journal of Public Health, American Public Health Association, vol. 104(S3), pages 481-489.
    4. Braveman, P.A. & Kumanyika, S. & Fielding, J. & LaVeist, T. & Borrell, L.N. & Manderscheid, R. & Troutman, A., 2011. "Health disparities and health equity: The issue is justice," American Journal of Public Health, American Public Health Association, vol. 101(SUPPL. 1), pages 149-155.
    5. Rebecca Reno, 2018. "Using group model building to develop a culturally grounded model of breastfeeding for low‐income African American women in the USA," Journal of Clinical Nursing, John Wiley & Sons, vol. 27(17-18), pages 3363-3376, September.
    6. Bayer, Ronald, 2008. "Stigma and the ethics of public health: Not can we but should we," Social Science & Medicine, Elsevier, vol. 67(3), pages 463-472, August.
    7. Dovidio, John F. & Penner, Louis A. & Albrecht, Terrance L. & Norton, Wynne E. & Gaertner, Samuel L. & Shelton, J. Nicole, 2008. "Disparities and distrust: The implications of psychological processes for understanding racial disparities in health and health care," Social Science & Medicine, Elsevier, vol. 67(3), pages 478-486, August.
    8. Gábor Király & Péter Miskolczi, 2019. "Dynamics of participation: System dynamics and participation—An empirical review," Systems Research and Behavioral Science, Wiley Blackwell, vol. 36(2), pages 199-210, March.
    Full references (including those not matched with items on IDEAS)

    Most related items

    These are the items that most often cite the same works as this one and are cited by the same works as this one.
    1. Arnold, Michael & Hsu, Ling & Pipkin, Sharon & McFarland, Willi & Rutherford, George W., 2009. "Race, place and AIDS: The role of socioeconomic context on racial disparities in treatment and survival in San Francisco," Social Science & Medicine, Elsevier, vol. 69(1), pages 121-128, July.
    2. Judith Muhonja Ochieng & Janice D. Crist, 2021. "“I put diabetes on the shelf†: African-American Women’s Perceptions of Risk for Diabetes Complications," Clinical Nursing Research, , vol. 30(7), pages 1012-1022, September.
    3. Tamara Power & Denise Wilson & Odette Best & Teresa Brockie & Lisa Bourque Bearskin & Eugenia Millender & John Lowe, 2020. "COVID‐19 and Indigenous Peoples: An imperative for action," Journal of Clinical Nursing, John Wiley & Sons, vol. 29(15-16), pages 2737-2741, August.
    4. Jessica Naidu & Elizabeth Oddone Paolucci & Tanvir C. Turin, 2023. "A Critical Lens on Health: Key Principles of Critical Discourse Analysis and Its Benefits to Anti-Racism in Population Public Health Research," Societies, MDPI, vol. 13(2), pages 1-10, February.
    5. Ovrum, Arnstein & Gustavsen, Geir Waehler & Rickertsen, Kyrre, 2012. "Health inequalities over the adult life course: the role of lifestyle choices," 2012 Conference, August 18-24, 2012, Foz do Iguacu, Brazil 125862, International Association of Agricultural Economists.
    6. Cook, Jonathan E. & Purdie-Vaughns, Valerie & Meyer, Ilan H. & Busch, Justin T.A., 2014. "Intervening within and across levels: A multilevel approach to stigma and public health," Social Science & Medicine, Elsevier, vol. 103(C), pages 101-109.
    7. Stine Glenstrup & Lotus Sofie Bast & Dina Danielsen & Anette Andersen & Tine Tjørnhøj-Thomsen, 2021. "Places to Smoke: Exploring Smoking-Related Practices among Danish Adolescents," IJERPH, MDPI, vol. 18(2), pages 1-12, January.
    8. Walsh, Mike & Kittler, Markus G. & Throp, Maria & Shaw, Fraser, 2019. "Designing a recovery-orientated system of care: A community operational research perspective," European Journal of Operational Research, Elsevier, vol. 272(2), pages 595-607.
    9. Elisabeth Paul & Céline Deville & Oriane Bodson & N'koué Emmanuel Sambiéni & Ibrahima Thiam & Marc Bourgeois & Valéry Ridde & Fabienne Fecher, 2019. "How is equity approached in universal health coverage? An analysis of global and country policy documents in Benin and Senegal," ULB Institutional Repository 2013/298047, ULB -- Universite Libre de Bruxelles.
    10. Meenakshi Richardson & Sara F. Waters, 2023. "Indigenous Voices Against Suicide: A Meta-Synthesis Advancing Prevention Strategies," IJERPH, MDPI, vol. 20(22), pages 1-19, November.
    11. Manning, Mark & Byrd, DeAnnah & Lucas, Todd & Zahodne, Laura B., 2023. "Complex effects of racism and discrimination on African Americans' health and well-being: Navigating the status quo," Social Science & Medicine, Elsevier, vol. 316(C).
    12. Gagnon-Dufresne, Marie-Catherine & Gautier, Lara & Beaujoin, Camille & Boivin, Pauline & Coulibaly, Abdourahmane & Richard, Zoé & Gomes de Medeiros, Stéphanie & Dutra Da Nóbrega, Raylson Emanuel & de , 2023. "Did the design and planning of testing and contact tracing interventions for COVID-19 consider social inequalities in health? A multiple case study from Brazil, Canada, France & Mali," Social Science & Medicine, Elsevier, vol. 335(C).
    13. Carpiano, Richard M. & Fitz, Nicholas S., 2017. "Public attitudes toward child undervaccination: A randomized experiment on evaluations, stigmatizing orientations, and support for policies," Social Science & Medicine, Elsevier, vol. 185(C), pages 127-136.
    14. Therese Riley & Liza Hopkins & Maria Gomez & Seanna Davidson & Daniel Chamberlain & Jessica Jacob & Sonia Wutzke, 2021. "A Systems Thinking Methodology for Studying Prevention Efforts in Communities," Systemic Practice and Action Research, Springer, vol. 34(5), pages 555-573, October.
    15. Slack, Kristen S. & Berger, Lawrence M. & Reilly, Aaron & Reynders, Rachel & Cai, Julie Y., 2022. "Preventing child protective services system involvement by asking families what they need: Findings from a multi-site RCT of the community response program (CRP)," Children and Youth Services Review, Elsevier, vol. 141(C).
    16. Barlow, P. & Thow, A.M., 2021. "Neoliberal discourse, actor power, and the politics of nutrition policy: A qualitative analysis of informal challenges to nutrition labelling regulations at the World Trade Organization, 2007–2019," Social Science & Medicine, Elsevier, vol. 273(C).
    17. Kelly, Brian C. & Vuolo, Mike & Frizzell, Laura C. & Hernandez, Elaine M., 2018. "Denormalization, smoke-free air policy, and tobacco use among young adults," Social Science & Medicine, Elsevier, vol. 211(C), pages 70-77.
    18. Ricciardi, Francesca & De Bernardi, Paola & Cantino, Valter, 2020. "System dynamics modeling as a circular process: The smart commons approach to impact management," Technological Forecasting and Social Change, Elsevier, vol. 151(C).
    19. Timian M. Godfrey & Edgar A. Villavicencio & Kimberly Barra & Priscilla R. Sanderson & Kimberly Shea & Xiaoxiao Sun & David O. Garcia, 2022. "Advancing Liver Cancer Prevention for American Indian Populations in Arizona: An Integrative Review," IJERPH, MDPI, vol. 19(6), pages 1-16, March.
    20. Judith M. Ochieng & Janice D. Crist, 2021. "Social Determinants of Health and Health Care Delivery: African American Women’s T2DM Self-Management," Clinical Nursing Research, , vol. 30(3), pages 263-272, March.

    More about this item

    Statistics

    Access and download statistics

    Corrections

    All material on this site has been provided by the respective publishers and authors. You can help correct errors and omissions. When requesting a correction, please mention this item's handle: RePEc:bla:srbeha:v:39:y:2022:i:4:p:734-749. See general information about how to correct material in RePEc.

    If you have authored this item and are not yet registered with RePEc, we encourage you to do it here. This allows to link your profile to this item. It also allows you to accept potential citations to this item that we are uncertain about.

    If CitEc recognized a bibliographic reference but did not link an item in RePEc to it, you can help with this form .

    If you know of missing items citing this one, you can help us creating those links by adding the relevant references in the same way as above, for each refering item. If you are a registered author of this item, you may also want to check the "citations" tab in your RePEc Author Service profile, as there may be some citations waiting for confirmation.

    For technical questions regarding this item, or to correct its authors, title, abstract, bibliographic or download information, contact: Wiley Content Delivery (email available below). General contact details of provider: http://onlinelibrary.wiley.com/journal/10.1111/1092-7026 .

    Please note that corrections may take a couple of weeks to filter through the various RePEc services.

    IDEAS is a RePEc service. RePEc uses bibliographic data supplied by the respective publishers.